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Journal of Autism and Developmental Disorders

Gepubliceerd in:

09-12-2022 | Original Paper

A Qualitative Study of Adults’ and Support Persons’ Experiences of Support After Autism Diagnosis

Auteurs: Yunhe Huang, Samuel R. C. Arnold, Kitty-Rose Foley, Julian N. Trollor

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 3/2024

Abstract

Adulthood autism diagnosis has become increasingly common, but little is known about post-diagnosis support experiences and needs. We interviewed 19 autistic adults and 4 support persons on experiences of formal and informal post-diagnosis support. Reflexive thematic analysis was used to identify themes. Participants reported difficulties accessing suitable formal support, especially regarding education and employment. Informal support was helpful but created challenges in the relationships between autistic adults and support persons. For autistic adults, support from autistic peers fostered belonging and self-acceptance. We also identified complex interactions between adults’ post-diagnosis identity development and support experiences as they resolved the dilemma between self-acceptance and a desire to change. Findings have important implications for services working with autistic adults and their families.

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Titel: A Qualitative Study of Adults’ and Support Persons’ Experiences of Support After Autism Diagnosis
Auteurs: Yunhe Huang
Samuel R. C. Arnold
Kitty-Rose Foley
Julian N. Trollor
Publicatiedatum: 09-12-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 3/2024
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05828-0

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A Qualitative Study of Adults’ and Support Persons’ Experiences of Support After Autism Diagnosis

Abstract

Andere artikelen Uitgave 3/2024

Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis

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Correction: Autism Prevalence and the Intersectionality of Assigned Sex at Birth, Race, and Ethnicity on Age of Diagnosis

Extending the Usefulness of the Brief Observation of Social Communication Change (BOSCC): Validating the Phrase Speech and Young Fluent Version

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