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Journal of Autism and Developmental Disorders

Gepubliceerd in:

24-08-2022 | Original Paper

Adaptation and pilot implementation of the Psychosocial Assessment Tool for Autism Spectrum Disorders (PAT-ASD)

Auteurs: Anne Kazak, Alejandra Perez Ramirez, Michele A. Scialla, Melissa A. Alderfer, Carrie Sewell-Roberts, Diane Treadwell-Deering

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2023

Abstract

Recognizing the multifaceted and chronic demands on families of children with Autism Spectrum Disorder (ASD) and challenges in providing care matched to need, we adapted the Psychosocial Assessment Tool (PAT), a brief caregiver-report screener of family psychosocial risk, for this population. Study methods included literature review, focus groups with providers, and feedback from caregivers. The PAT-ASD is consistent with the original PAT, with new items reflecting core behavioral manifestations of ASD and parent and family challenges associated with chronicity. The PAT-ASD was implemented in a four-month pilot and was completed online by 59% of families. Although further testing of its validity is necessary, the PAT-ASD is a promising means of assessing family psychosocial risk for families of children with ASD.

vorige artikel Network Structure of Autism Spectrum Disorder Behaviors and Its Evolution in Preschool Children: Insights from a New Longitudinal Network Analysis Method

volgende artikel A Randomized Controlled Trial for Audiovisual Multisensory Perception in Autistic Youth

The red flag items were those related to suicidality, having been the victim of crime, abuse or domestic violence, or reporting an unstable living arrangement. Other red flags included a serious medical problem in caregiver(s) and a child or sibling who wanders. Two family beliefs, “This is a disaster” and “It’s my fault my child has ASD” were also categorized as red flags.

Using data from the electronic health record at our institution, the race/ethnicity, and patient age and gender are comparable to the broader patient population treated at this AC.

Alderfer, M., Mougianis, I., Barakat, L., Beele, D., DiTaranto, S., Hwang, W. T., Reilly, A., & Kazak, A. (2009). Family psychosocial risk, distress and service utilization in pediatric cancer: Predictive validity of the Psychosocial Assessment Tool. Cancer, 115, 4339–4349CrossRefPubMed

Benson, P. R., & Karlof, K. L. (2009). Anger, stress proliferation, and depressed mood amongparents of children with ASD: A longitudinal replication. Journal of autism and developmental disorders, 39(2), 350–362CrossRefPubMed

Bonis, S. (2016). Stress and parents of children with autism: A review. Issues in Mental Health Nursing, 37, 153–163CrossRefPubMed

Brewer, A. (2018). “We were on our own”: Mothers’ experiences navigating the fragmented system of professional care for autism. Social Science & Medicine, 215, 61–68. https://doi.org/10.1016/j.socscimed.2018.08.039CrossRef

Crerand, C. E., Kapa, H. M., Litteral, J., Pearson, G. D., Eastman, K., & Kirschner, R. E. (2018). Identifying psychosocial risk factors among families of children with craniofacial conditions: Validation of the psychosocial assessment tool–craniofacial version. The Cleft Palate-Craniofacial Journal, 55(4), 536–545. doi: https://doi.org/10.1177/1055665617748010CrossRefPubMed

Cousino, M., Schumacher, J., Rea, K., Eder, S., Zamberlin, M., Jordan, J., & Fredericks, E. (2018). Psychosocial functioning in pediatric heart transplant recipients and their families. Pediatric transplantation. e13110

Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of autsim and developmental disorders, 38(7), 1278CrossRef

Elo, S., & Kyngas, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115. doi: https://doi.org/10.1111/j.1365-2648.2007.04569.xCrossRefPubMed

Ernst, M., Gardner, M., Mara, C., Delot, E., Fechner, P., Fox, M., Rutter, M., Speiser, P., Vilain, E., Weidler, E., Sandberg, D., & The DSD-Translational Research Network Leadership Group and Psychosocial Workgroup. (2018). and. Psychosocial screening in disorders/differences in sex development: Psychometric evaluation of the Psychosocial Assessment Tool (PAT). Hormone Research in Pediatrics, DOI: https://doi.org/10.1159/000496114

Gunty, A. (2021). Rethinking resilience in families of chidlren with autism spectrum disorders. Couple and Family Psychology: Research and Practice, 10, 87–102CrossRef

Harris, P. A., Taylor, R., Minor, B. L., Elliott, V., Fernandez, M., O’Neal, L., & REDCap Consortium. (2019). The REDCap consortium: Building an international community of software platform partners. Journal of Biomedical Informatics, 95, 103208CrossRefPubMedPubMedCentral

Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3),629–642. https://doi.org/10.1007/s10803-012-1604-y

Kazak, A. E. (2006). Pediatric Psychosocial Preventative Health Model (PPPHM): Research, practice, and collaboration in pediatric family systems medicine. Families Systems & Health, 24(4), 381–395. doi: https://doi.org/10.1037/1091-7527.24.4.381CrossRef

Kazak, A. E., Chen, F. F., Hwang, W. T., Askins, M. A., Vega, G., Kolb, E. A., Reilly, A., & Barakat, L. P. (2020). Stability and change in family psychosocial risk over 6 months in pediatric cancer and its association with medical and psychosocial healthcare utilization. Pediatric Blood & Cancer, 67(2), e28051. doi: https://doi.org/10.1002/pbc.28051CrossRef

Kazak, A. E., Hwang, W. T., Chen, F. F., Askins, M. A., Carlson, O., Argueta-Ortiz, F., & Barakat, L. P. (2018). Screening for family psychosocial risk in pediatric cancer: Validation of the Psychosocial Assessment Tool (PAT) Version 3. Journal of Pediatric Psychology, 43(7), 737–748. doi: https://doi.org/10.1093/jpepsy/jsy012CrossRefPubMed

Kazak, A. E., Schneider, S., Didonato, S., & Pai, A. L. (2015). Family psychosocial risk screening guided by the Pediatric Psychosocial Preventative Health Model (PPPHM) using the Psychosocial Assessment Tool (PAT). Acta Oncologica, 54(5), 574–580. doi: https://doi.org/10.3109/0284186X.2014.995774CrossRefPubMed

Law, E. F., Powers, S. W., Blume, H., & Palermo, T. M. (2019). Screening Family and Psychosocial risk in pediatric migraine and tension-type headache: Validation of the Psychosocial Assessment Tool (PAT). Headache: The Journal of Head and Face Pain, 59(9), 1516–1529. doi: https://doi.org/10.1111/head.13599CrossRef

Lord, C., et al. (2022). The Lancet Commission on the future of care and clinical resarch in autism. The Lancet, 399, 271–334CrossRef

Navot, N., Jorgenson, A. G., Stoep, V., Toth, A., K., & Webb, S. J. (2016). Family planning and family vision in mothers after diagnosis of a child with autism spectrum disorder. Autism, 20(5), 605–615CrossRefPubMed

Pai, A. L., Patiño-Fernández, A. M., McSherry, M., Beele, D., Alderfer, M. A., Reilly, A. T., Hwang, W. T., & Kazak, A. E. (2008). The Psychosocial Assessment Tool (PAT2.0): Psychometric properties of a screener for psychosocial distress in families of children newly diagnosed with cancer. Journal of Pediatric Psychology, 33(1), 50–62. doi: https://doi.org/10.1093/jpepsy/jsm053CrossRefPubMed

Phan, T. L., Chen, F., Pinto, T., Cox, A., Robbins, C., J., & Kazak, A. (2018). Impact of psychosocial risk on attrition and weight outcomes among families seeking treatment for obesity. Journal of Pediatrics, 198, 110–116CrossRefPubMed

Raza, S., Sacrey, L. A. R., Zwaigenbaum, L., et al. (2020). Relationship Between Early Social-Emotional Behavior and Autism Spectrum Disorder: A High-Risk Sibling Study. Journal of Autism and Developmental Disorders, 50, 2527–2539. https://doi.org/10.1007/s10803-019-03977-3CrossRefPubMed

Rogge, N., & Janssen, J. (2019). The Economic costs of autism spectrum disorder: A Literature review. Journal of Autism and Developmental Disorders, 49(7), 2873–2900. https://doi.org/10.1007/s10803-019-04014-zCrossRefPubMed

Samsell, B., Lothman, K., Samsell, E., & Ideiski, R. (2022). Parents’ experiences of caring for a child with Autism Spectrum Disorder in the United States: A systematic review and metasynthesis of qualitative evidence. Families Systems and Health, 40, 93–104CrossRef

Verma, R., Mehdian, Y., Sheth, N., et al. (2020). Screening for caregiver psychosocial risk in children with medical complexity: a cross-sectional study. BMJ Paediatrics Open, 4, e000671. doi:https://doi.org/10.1136/bmjpo-2020-000671CrossRefPubMedPubMedCentral

Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative health research, 18(8), 1075–1083CrossRefPubMed

Titel: Adaptation and pilot implementation of the Psychosocial Assessment Tool for Autism Spectrum Disorders (PAT-ASD)
Auteurs: Anne Kazak
Alejandra Perez Ramirez
Michele A. Scialla
Melissa A. Alderfer
Carrie Sewell-Roberts
Diane Treadwell-Deering
Publicatiedatum: 24-08-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 11/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05713-w

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Adaptation and pilot implementation of the Psychosocial Assessment Tool for Autism Spectrum Disorders (PAT-ASD)

Abstract

Andere artikelen Uitgave 11/2023

Altered Developmental Trajectory in Male and Female Rats in a Prenatal Valproic Acid Exposure Model of Autism Spectrum Disorder

Parental Imitations and Expansions of Child Language Predict Later Language Outcomes of Autistic Preschoolers

Evaluation of the Integrated Therapy Model in Preschool Education for Children with Autism Spectrum Disorder in China

Do Autistic People’s Support Needs and Non-Autistic People’s Support for the Neurodiversity Movement Contribute to Heightened Autism Stigma in South Korea vs. the US?

Prevalence of Autism Spectrum Disorder in Children in Andalusia (Spain)

Correction: A Survey of Community Providers on Feeding Problems in Autism Spectrum Disorder

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

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Abstract

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Altered Developmental Trajectory in Male and Female Rats in a Prenatal Valproic Acid Exposure Model of Autism Spectrum Disorder

Parental Imitations and Expansions of Child Language Predict Later Language Outcomes of Autistic Preschoolers

Evaluation of the Integrated Therapy Model in Preschool Education for Children with Autism Spectrum Disorder in China

Do Autistic People’s Support Needs and Non-Autistic People’s Support for the Neurodiversity Movement Contribute to Heightened Autism Stigma in South Korea vs. the US?

Prevalence of Autism Spectrum Disorder in Children in Andalusia (Spain)

Correction: A Survey of Community Providers on Feeding Problems in Autism Spectrum Disorder