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Journal of Autism and Developmental Disorders

Gepubliceerd in:

25-02-2022 | Original Paper

Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy

Auteurs: Tierney Kim, Kassandra Martinez, Breanna Lopez Cruz, Jeannie S. Huang, Nicole A. Stadnick

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 4/2023

Abstract

Limited guidance is available for families of youth with ASD (YASD) to prepare for invasive medical procedures. This study examined caregiver perspectives regarding YASD’s gastrointestinal endoscopy (GE) experience to improve the endoscopy experience for YASD. Thirty-four caregivers of YASD, (M = 9.85 years, SD = 4.6) who underwent GE at Rady Children’s Hospital, San Diego between May 2018 and July 2019 (identified via electronic health record) participated in a structured phone interview. Caregivers reported a positive experience due to the procedural team’s responsiveness to the needs of YASD and appropriately answering/addressing questions/concerns. Caregivers reported a need for ASD-specific information on how to prepare for GE. Specific recommendations are discussed. Study findings offer strategies to improve the care experience of YASD undergoing GE.

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volgende artikel Treatment Acceptability for Interventions Addressing Challenging Behavior Among Chinese Caregivers of Children with Autism Spectrum Disorder

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Titel: Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy
Auteurs: Tierney Kim
Kassandra Martinez
Breanna Lopez Cruz
Jeannie S. Huang
Nicole A. Stadnick
Publicatiedatum: 25-02-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 4/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05346-5

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Caregiver Insights and Improvement Strategies for Youth with Autism Undergoing Gastrointestinal Endoscopy

Abstract

Andere artikelen Uitgave 4/2023

Validation of an Adapted Version of the Glasgow Anxiety Scale for People with Intellectual Disabilities (GAS-ID)

Supporting Social Play Skill Acquisition and Generalization of Children with Autism Through Video Modeling

The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK

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Brief Report: Links Between Nonconformity to Gender Norms, Autistic Features, and Internalizing Symptoms in a Non-clinical College Sample

Correction to: Developmental Changes of Autistic Symptoms, ADHD Symptoms, and Attentional Performance in Children and Adolescents with Autism Spectrum Disorder

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

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Abstract

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Validation of an Adapted Version of the Glasgow Anxiety Scale for People with Intellectual Disabilities (GAS-ID)

Supporting Social Play Skill Acquisition and Generalization of Children with Autism Through Video Modeling

The Impact of COVID-19 Restrictions on Psychological Distress in Family Caregivers of Children with Neurodevelopmental Disability in the UK

Trajectories of Vocabulary Development in Children with Autism Spectrum Disorder Across Multiple Measures

Brief Report: Links Between Nonconformity to Gender Norms, Autistic Features, and Internalizing Symptoms in a Non-clinical College Sample

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