Correction to: Quality of Life Research https://doi.org/10.1007/s11136-020-02594-3
Spain (n = 11) | US (n = 25) | Total (n = 36) | |
---|---|---|---|
Child age, n(%) | |||
2 to < 5 years | 5(46) | 6(24) | 11(31) |
5 to < 9 years | 4(36) | 9(36) | 13(36) |
9 to < 12 years | 2(18) | 10(40) | 12(33) |
Child gender, n(%) | |||
Female | 7(64) | 12(48) | 19(53) |
Male | 4(36) | 13(52) | 17(47) |
Child’s race/ethnicity, n(%)a | |||
Asian-American | – | 2(8) | – |
Black/African-American | – | 4(16) | – |
Latino/Hispanic | – | 2(8) | – |
White/Caucasian | – | 20(80) | – |
Age/time diagnosed with achondroplasia, n(%) | |||
In utero | 9(82) | 12(48) | 21(58) |
At birth | 1(9) | 4(16) | 5(14) |
< 2 months of age | 1(9) | 2(8) | 3(8) |
2–6 months of age | 0 | 5(20) | 5(14) |
Unknown (adopted) | 0 | 2(8) | 2(6) |
Child has parent(s) with achondroplasia, n(%) yes | 0 | 7(28) | 7(19) |
Health status (parent-reported), n(%) | |||
Excellent | 3(27) | 9(36) | 12(33) |
Very good | 3(27) | 11(44) | 14(39) |
Good | 3(27) | 4(16) | 7(19) |
Fair | 2(18) | 1(4) | 3(8) |
Height (cm) | |||
Mean(SD) | 89.5(10.4) | 93.2(15.2) | 92.1(13.9) |
(Range) | (75.0–104.0) | (63.5–121.0) | (63.5–121.0) |
Weight (kg) | |||
Mean(SD) | 17.3(5.6) | 20.4(8.4) | 19.4(7.7) |
(Range) | (10.0–28.0) | (8.3–43.9) | (8.3–43.9) |
BMI | |||
Mean(SD) | 21.0(3.0) | 23.0(6.5) | 22.4(5.7) |
(Range) | (16.7–26.9) | (18.1–45.4) | (16.7–45.4) |
Planned limb lengthening surgery for the future, n(%) yes | 5(46) | 0 | 5(14) |
Parent participant demographics | Child demographic/health characteristics | ||
---|---|---|---|
Parent age, mean(SD) | 39.1(6.4) | Child age, n(%) | |
(Range) | (31–55) | 2 to < 5 years | 4(25) |
Relationship to child, n(%) | 5 to < 9 years | 6(38) | |
Mother | 16(100) | 9 to < 12 years | 6(38) |
Parent has achondroplasia, n(%) yes | 2(12.5) | Child gender, n(%) | |
Marital status, n(%) | Female | 12(75) | |
Single | 1(6) | Male | 4(25) |
Married | 14(88) | Age/time diagnosed with achondroplasia, n(%) | |
No response | 1(6) | In utero | 5(31) |
Parent race/ethnicity, n(%)a | At birth | 1(6) | |
Asian-American | 1(6) | < 2 months of age | 2(13) |
Latino/Hispanic | 1(6) | 2–6 months of age | 5(31) |
White/Caucasian | 14(88) | > 6 months of age | 1(6) |
Parent education, n(%) | Unknown (adopted) | 2(13) | |
High school or equivalent | 2(13) | Child’s race/ethnicity, n(%)a | |
Vocational/technical school | 1(6) | Asian-American | 4(25) |
College degree | 9(56) | Latino/Hispanic | 1(6) |
Post-graduate school | 4(25) | White/Caucasian | 11(69) |
Parent work status, n(%) | Child health status (parent-reported), n(%) | ||
Full-time | 7(44) | Excellent | 8(50) |
Part-time | 4(25) | Very good | 7(44) |
Retired/student | 0 | Good | 0 |
Not working (other) | 5(31) | Fair | 1(6) |
Household income, n(%) | Child height (cm) | ||
< $40,000 | 0 | Mean(SD) | 90.8(12.0) |
$40,001 to $60,000 | 1(6) | (Range) | (66.0–106.7) |
$60,001 to $80,000 | 1(6) | Child weight (kg) | |
$80,001 to $100,000 | 6(38) | Mean(SD) | 18.3(5.8) |
> $100,000 | 6(38) | (Range) | (10.9–31.7) |
Decline to answer | 2(13) | BMI | |
Mean(SD) | 21.8(3.8) | ||
(Range) | (16.3–32.4) |