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Gepubliceerd in:

10-08-2019

Development of a mental health recovery module for the WHOQOL

Auteurs: Melissa J. Rowthorn, D. Rex Billington, Christian U. Krägeloh, Jason Landon, Oleg N. Medvedev

Gepubliceerd in: Quality of Life Research | Uitgave 12/2019

Abstract

Purpose

The WHOQOL tools are widely used, multi-faceted, patient-rated, quality of life (QoL) measures, developed by the World Health Organization. The WHOQOL questionnaires are used to assess generic quality of life issues affected by all health problems. This study developed a module to use with the WHOQOL tools to improve their sensitivity to Health Related QoL issues relevant to mental health recovery.

Methods

Using a sequential mixed-methods approach, two research stages occurred. A qualitative stage invited 88 participants with experience of mental health recovery, into focus groups and importance rating activities, to identify candidate items for the new module. Following this, a quantitative stage involved 667 participants with, and without, mental health/addiction issues completing online or paper-based questionnaires to analyze which candidate items differentiated between those with and without mental health/addiction issues. Classical test theory and iterative Partial Credit Rasch Analysis were used to identify the most suitable candidate items for a reliable and valid mental health recovery module to be used with the WHOQOL tools.

Results

Seventeen candidate items captured important HRQoL facets relevant to mental health recovery. Rasch analysis removed 10 misfitting items. The final 7-item module, which demonstrated the best Rasch model fit, enquires about recovery beliefs, identifying strengths, self-awareness, acceptance, capacity to relate, feeling understood, and recovery progress. Ordinal-to-interval conversion tables have been developed to optimize measurement precision when using the module.

Conclusions

Important HRQoL issues central to mental health recovery can be reliably evaluated by using the recovery module with the WHOQOL tools.

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Alleen toegankelijk voor geautoriseerde gebruikers

World Health Organisation. (2018). Retrieved from https://www.who.int/mental_health/world-mental-health-day/2018/en/.

World Health Organisation (WHO). Global status report mental health action plan 2013-2020, NLM classification: WM 101 ISBN: 978-92-4-150602-1. http://apps.who.int/iris/bitstream/handle/10665/89966/9789241506021_eng.pdf?sequence=1.

World Health Organisation. (2012). Agenda item 13.2 WHA65.4: The global burden of mental disorders and the need for a comprehensive, coordinated response from health and social sectors at country level. The 65th World Health Assembly, 9th Plenary Meeting, 25th May, A65/VR/9. Retrieved from https://www.who.int/mental_health/WHA65.4_resolution.pdf.

Akvardar, Y., Akdede, B. B., Ozerdem, A., Eser, E., Topyaka, S., & Alptekin, K. (2006). Assessment of quality of life with the WHOQOL-BREF in a group of Turkish psychiatric patients compared with diabetic and healthy subjects. Psychiatry Clinical Neuroscience,60(6), 693–699. https://doi.org/10.1111/j.1440-1819.2006.01584.x.CrossRef

Skevington, S. M., & McCrate, F. M. (2011). Expecting a good quality of life in health: assessing people with diverse diseases and conditions using the WHOQOL-BREF. Health Expectations,15(1), 49–62. https://doi.org/10.1111/j.1369-7625.2010.00650.x.CrossRefPubMedPubMedCentral

Revicki, D. A., Kleinman, L., & Cella, D. (2014). A history of health-related quality of life outcomes in psychiatry. Dialogues in Clinical Neuroscience,16(2), 127–135. (PMID: 25152652).PubMedPubMedCentral

Köhler, S., Unger, T., Hoffman, S., Mackert, A., Ross, B., & Fydrich, T. (2015). The relationship of health-related quality of life and treatment outcome during inpatient treatment of depression. Quality of Life Research,24(3), 641–649. https://doi.org/10.1007/s11136-014-0811-8.CrossRefPubMed

Awad, G. A. (2016). The concept of quality of life in Schizophrenia: From ‘‘An Ethereal Entity’’ to a valued health outcome. Journal of Psychosocial. Rehabilitation Mental Health,3(2), 51–52. https://doi.org/10.1007/s40737-016-0062-9.CrossRef

Royal College of Psychiatrists. (1999). Predictors of quality of life in people with severe mental illness. Study methodology with baseline analysis in the UK700 trial. The British Journal of Psychiatry,175(5), 426–432. https://doi.org/10.1192/bjp.175.5.426.CrossRef

10.

Prince, P. N., & Prince, C. R. (2001). Subjective quality of life in the evaluation of programs for people with serious and persistent mental illness. Clinical Psychology Review,21(7), 1005–1036. https://doi.org/10.1016/S0272-7358(00)00079-9.CrossRefPubMed

11.

Larsen, T. K., Melle, I., Friis, S., Haahr, U., Johannesen, J. O., Larsen, T. K., et al. (2005). Measuring quality of life in first-episode psychosis. European Psychiatry,20(7), 474–483. https://doi.org/10.1016/j.eurpsy.2005.03.002.CrossRefPubMed

12.

Masthoff, E. D., Trompenaars, F. J., Van Heck, G. L., Hodiamont, P. P., & De Vries, J. (2006). Quality of life and psychopathology: Investigations into their relationship. Australian and New Zealand Journal of Psychiatry,40(4), 333–340. https://doi.org/10.1080/j.1440-1614.2006.01799.x.CrossRefPubMed

13.

Masthoff, E. D., Trompenaars, F. J., Van Heck, G. L., De Vries, J., & Hodiamont, P. P. (2006). The relationship between stress and quality of life in psychiatric outpatients. Stress and Health,22(4), 249–255. https://doi.org/10.1002/smi.1105.CrossRef

14.

Bayliss, M., Rendas-Baum, R., White, M. K., Maruish, M., Bjorner, J., & Tunis, S. L. (2012). Health-related quality of life (HRQL) for individuals with self-reported chronic physical and/or mental health conditions: Panel survey of an adult sample in the United States. Health and Quality of Life Outcomes,10, 154–164. https://doi.org/10.1186/1477-7525-10-154.CrossRefPubMedPubMedCentral

15.

Renwick, L., Jackson, D., Foley, S., Owens, E., Ramperti, N., Behan, C., et al. (2012). Depression and quality of life in first-episode psychosis. Comprehensive Psychiatry,53(5), 451–455. https://doi.org/10.1016/j.comppsych.2011.07.003.CrossRefPubMed

16.

Connell, J., Brazier, J., O’Cathain, A., Lloyd-Jones, M., & Paisley, S. (2012). Quality of life of people with mental health problems: A synthesis of qualitative research. Health and Quality of Life Outcomes,10. https://doi.org/10.1186/1477-7525-10-138. (Article number: 138).CrossRefPubMedPubMedCentral

17.

Medici, C. R., Vestergaard, C. H., Hjorth, P., Hansen, M. V., Shanmuganathan, J. W., Viuff, A. G., et al. (2016). Quality of life and clinical characteristics in a non-selected sample of patients with schizophrenia. International Journal of Social Psychiatry,62(1), 12–20. https://doi.org/10.1177/0020764015585330.CrossRefPubMed

18.

Ponizovsky, A. M., Grinshpoon, A., Levav, I., & Ritsner, M. S. (2003). Life satisfaction and suicidal attempts among persons with schizophrenia. Comprehensive Psychiatry,44(6), 442–447. https://doi.org/10.1016/S0010-440X(03)00146-9.CrossRefPubMed

19.

De Abreu, L. N., Nery, F. G., Harkavy-Friedman, J. M., de Almeida, K. M., Gomes, B. C., Oquendo, M. A., et al. (2012). Suicide attempts are associated with worse quality of life in patients with bipolar disorder type I. Comprehensive Psychiatry,53(2), 125–129. https://doi.org/10.1016/j.comppsych.2011.03.003.CrossRefPubMed

20.

Orley, J., Saxena, S., & Herrman, H. (1998). Quality of life and mental illness: Reflections from the perspective of the WHOQOL. The British Journal of Psychiatry,172(4), 291–293. https://doi.org/10.1192/bjp.172.4.291.CrossRefPubMed

21.

Katschnig, H. (2006). Quality of life in mental disorders: Challenges for research and clinical practice. World Psychiatry,5(3), 139–145. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1636133/.PubMedPubMedCentral

22.

Karimi, M., & Brazier, J. (2016). Health, health-related quality of life, and quality of life: What’s the difference? Pharmacoeconomics,34(7), 645–649. https://doi.org/10.1007/s40273-016-0389-9.CrossRefPubMed

23.

Bakas, T., McLennon, S. M., Carpenter, J. S. Buelow, J. M., Otte, J. L., Hanna, K. M., Ellett, M. L., Hadler, K. A., Welch, J. L. (2012). Systematic review of health-related quality of life models. Health and Quality of Life Outcomes, 10, 134–146. https://doi.org/10.1186/1477-7525-10-134.

24.

Keetharuth, A. D., Brazier, J., Connell, J., Bjorner, J. B., Carlton, J., Taylor-Buck, E., et al. (2018). Recovering Quality of Life (ReQoL): a new generic self-reported outcome measure for use with people experiencing mental health difficulties. The British Journal of Psychiatry,212(1), 42–49. https://doi.org/10.1192/bjp.2017.10.CrossRefPubMedPubMedCentral

25.

Onken, S. J., Craig, C. M., Ridgway, P., Ralph, R. O., & Cook, J. A. (2007). An analysis of the definitions and elements of recovery: A review of the literature. Psychiatric Rehabilitation Journal,31(1), 9–22. https://doi.org/10.2975/31.1.2007.9.22.CrossRefPubMed

26.

Anthony, W. (1993). Recovery from mental illness: The guiding vision of the mental health system in the 1990’s. Psychosocial Rehabilitation Journal,16(4), 11–23. https://doi.org/10.1037/h0095655.CrossRef

27.

Slade, M. (2013). 100 ways to support recovery: A guide for mental health professionals (2nd ed.). London: Rethink. Retrieved from URL: https://www.rethink.org/advice-information/living-with-mental-illness/treatment-and-support/100-ways-to-support-recovery/.

28.

Masthoff, E. D., Trompenaars, F. J., Van Heck, G. L., Hodiamont, P. P., & De Vries, J. (2005). Validation of the WHO quality of life assessment instrument (WHOQOL-100) in a population of Dutch adult psychiatric outpatients. European Psychiatry,20(7), 465–473. https://doi.org/10.1016/j.eurpsy.2004.09.012.CrossRefPubMed

29.

Trompenaars, F. J., Masthoff, E. D., Van Heck, G. L., Hodiamont, P. P., & De Vries, J. (2006). The WHO Quality of Life Assessment Instrument (WHOQOL-100)—Investigating its discriminant ability for psychiatric outpatients. European Journal of Psychological Assessment,22(3), 207–215. https://doi.org/10.1027/1015-5759.22.3.207.CrossRef

30.

Trompenaars, F. J., Masthoff, E. D., Van Heck, G. L., Hodiamont, P. P., & De Vries, J. (2006). Relationship between mood-related disorders and quality of life in a population of Dutch adult psychiatric outpatients. Depression and Anxiety,23(6), 353–363. https://doi.org/10.1002/da.20180.CrossRefPubMed

31.

Mas-Exposito, L., Amador-Campos, J. A., Gomez-Benito, J., & Lalucat-Jo, L. (2011). The World Health Organization Quality of Life Scale Brief Version: A validation study in patients with schizophrenia. Quality of Life Research,20(7), 1079–1089. https://doi.org/10.1007/s11136-011-9847-1.CrossRefPubMed

32.

Berlim, M., Pavanello, D., Caldieraro, M., & Fleck, M. P. (2005). Reliability and validity of the WHOQOL-BREF in a sample of Brazilian outpatients with major depression. Quality of Life Research,14(2), 561–564. https://doi.org/10.1007/s11136-004-4694-y.CrossRefPubMed

33.

Garcia-Rea, E. A., & LePage, J. P. (2010). Reliability and validity of the World Health Organization quality of life: brief version (WHOQOL-BREF) in a homeless substance dependent veteran population. Social Indicators Research,99(2), 333–340. https://doi.org/10.1007/s11205-010-9583-x.CrossRef

34.

De Vries, J., & Van Heck, G. L. (1994). Quality of life and refugees. International Journal of Mental Health,23(3), 57–75. https://doi.org/10.1080/00207411.1994.11449287.CrossRef

35.

Oliveira, S. E. H., Carvalho, H., & Francisco Esteves, F. (2016). Toward an understanding of the quality of life construct: Validity and reliability of the WHOQOL-BREF in a psychiatric sample. Psychiatry Research,244, 37–44. https://doi.org/10.1016/j.psychres.2016.07.007.CrossRefPubMed

36.

Priebe, S., Reininghaus, U., McCabe, R., Burns, T., Eklund, M., Hansson, L., et al. (2010). Factors influencing subjective quality of life in patients with schizophrenia and other mental disorders: a pooled analysis. Schizophrenia Research,121(1–3), 251–258. https://doi.org/10.1016/j.schres.2009.12.020.CrossRefPubMed

37.

Rocha, N. S., Power, M. J., Bushnell, D. M., & Fleck, M. P. (2012). Cross-cultural evaluation of the WHOQOL-BREF domains in primary care depressed patients using Rasch analysis. Medical Decision Making,32(41), 41–55. https://doi.org/10.1177/0272989X11415112.CrossRefPubMed

38.

Skevington, S. M., Sartorius, N., & Amir, M. (2004). Developing methods for assessing quality of life in different cultural settings. The history of the WHOQOL instruments. Social Psychiatry and Psychiatric Epidemiology,39(1), 1–8. https://doi.org/10.1007/s00127-004-0700-5.CrossRefPubMed

39.

WHOQOL (World Health Organization’s Quality of Life Instrument) HIV Group. (2003). Initial steps to developing the World Health Organization’s Quality of Life Instrument (WHOQOL) module for international assessment in HIV/AIDS. AIDS Care,15(3), 347–357. https://doi.org/10.1080/0954012031000105405.CrossRef

40.

Mason, V. L., Skevington, S. M., & Osborn, M. (2004). Development of a pain and discomfort module for use with the WHOQOL 100. Quality of Life Research,13(6), 1139–1152. https://doi.org/10.1023/B:QURE.0000031344.53009.eb.CrossRefPubMed

41.

Power, M., Quinn, K., Schmidt, S., & The WHOQOL OLD Group. (2005). Development of the WHOQOL-old module. Quality of Life Research,14(10), 2197–2214. https://doi.org/10.1007/s11136-005-7380-9.CrossRefPubMed

42.

Caballero, F. F., Miret, M., Power, M., Chatterji, S., Tobiasz-Adamczyk, B., Koskinen, S., et al. (2013). Validation of an instrument to evaluate quality of life in the aging population: WHOQOL-AGE. Health and Quality of Life Outcomes,11, 177. https://doi.org/10.1186/1477-7525-11-177.CrossRefPubMedPubMedCentral

43.

Yang, S. C., Kuo, P. W., Wang, J. D., Lin, M. I., & Su, S. (2006). Development and psychometric properties of the dialysis module of the WHOQOL BREF Taiwan version. Journal of Formosan Medical Association,105(4), 299–309. https://doi.org/10.1016/S0929-6646(09)60121-2.CrossRef

44.

Power, M. J., Green, A. M. & The WHOQOL-Dis Group. (2010). Development of the WHOQOL disability module. Quality of Life Research, 19, 571–584. https://doi.org/10.1007/s11136-010-9616-6. CrossRefPubMed

45.

Lin, C. Y., Lee, T. Y., Sun, Z. J., Yang, Y. C., Wu, J. S., & Ou, H. T. (2017). Development of diabetes-specific quality of life module to be in conjunction with the World Health Organization quality of life scale brief version (WHOQOL-BREF). Health and Quality of Life Outcomes,15, 167. https://doi.org/10.1186/s12955-017-0744-3.CrossRefPubMedPubMedCentral

46.

Skevington, S. M., Gunson, K. S., & O’Connell, K. A. (2013). Introducing the WHOQOL-SRPB BREF: Developing a short-form instrument for assessing spiritual, religious and personal beliefs within quality of life. Quality of Life Research,22(5), 1073–1083. https://doi.org/10.1007/s11136-012-0237-0.CrossRefPubMed

47.

Connell, J. (2014). Measuring quality of life in mental health: Are we asking the right questions? Social Science and Medicine,120, 12–20. https://doi.org/10.1016/j.socscimed.2014.08.026.CrossRefPubMed

48.

Siggins Miller Consultants. (2003). Consumer self-rated outcome measures in mental health: A report to the Mental Health Branch, Department of Human Services. Retrieved from http://www.health.vic.gov.au/mentalhealth/outcomes/csrfinal.pdf.

49.

Slade, M. (2002). What outcomes to measure in routine mental health services, and how to assess them: a systematic review. Australian and New Zealand Journal of Psychiatry,36(6), 743–753. https://doi.org/10.1046/j.1440-1614.2002.01099.x.CrossRefPubMed

50.

Reeve, B. B., Wyrwich, K. W., Wu, A. W., Velikova, G., Terwee, C. B., Snyder, …, Butt, Z. (2012). ISOQOL recommends minimum standards for patient-reported outcome measures used in patient-centered outcomes and comparative effectiveness research. Quality of Life Research, 22(8), 1889–1905. https://doi.org/10.1007/s11136-012-0344-y.

51.

World Health Organisation. (1993). WHOQOL Study Protocol: The development of the World Health Organisation Quality of Life Assessment instrument: Publication MNH/PSF/93.9. Geneva: Division of Mental Health, WHO. https://doi.org/10.1007/BF00435734.CrossRef

52.

Krägeloh, C. U., Billington, D. R., Hsu P. H.-C., Feng, X. J., Medvedev, O. N., Kersten, P., Landon, J., & Siegert, R. J. (2016). Ordinal-to-interval scale conversion tables and national items for the New Zealand Version of the WHOQOL-BREF. PLoS ONE, 11(11): e0166065. https://doi.org/10.1371/journal.pone.0166065.

53.

Krägeloh, C. U., Kersten, P., Billington, D. R., Hsu, P. H.-C., Shepherd, D., Landon, J., & Feng, X. J. (2013). Validation of the WHOQOL-BREF quality of life questionnaire for general use in New Zealand: Confirmatory factor analysis and Rasch analysis. Quality of Life Research,22(6), 1451–1457. https://doi.org/10.1007/s11136-012-0265-9.CrossRefPubMed

54.

Rethfeldt, S. (2007). Comparison of paper-and-pencil with online survey methodology using the quality of life instrument (WHOQOL-BREF) developed by the World Health Organisation (Unpublished BHSc(Hons) thesis), Auckland University of Technology, Auckland, New Zealand.

55.

Medvedev, O. N., Siegert, R. J., Kersten, P., & Krägeloh, C. U. (2017). Improving the precision of the five factor Mindfulness questionnaire using a Rasch approach. Mindfulness,8(4), 995–1008. https://doi.org/10.1007/s12671-016-0676-8.CrossRef

56.

Medvedev, O. N., & Landhuis, C. E. (2018). Exploring constructs of well-being, happiness, and quality of life. PeerJ,6, e4903. https://doi.org/10.7717/peerj.4903.CrossRefPubMedPubMedCentral

57.

Jacob, S., Munro, I., & Taylor, B. J. (2017). Mental Health Recovery: A review of the peer-reviewed published literature. The Australian Journal of Nursing Practice, Scholarship & Research,24(1), 53–61. https://doi.org/10.1016/j.colegn.2015.08.001.CrossRef

58.

Ellison, M. L., Belanger, L. K., Niles, B. L., Evans, L. C., & Bauer, M. S. (2018). Explication and definition of Mental Health Recovery: A systematic review. Administration and Policy in Mental Health and Mental Health Services Research,45(1), 91–102. https://doi.org/10.1007/s10488-016-0767-9.CrossRefPubMed

59.

Williams, K., Sansoni, J., Morris, D., Grootemaat, P., & Thompson, C. (2016). Patient-reported outcome measures: Literature Review. Australian Commission on Safety and Quality in Health Care. IBSN: 978-1-925224-74-0. Retrieved from: https://www.safetyandquality.gov.au/publications-and-resources/resource-library/patient-reported-outcome-measures-literature-review.

60.

Gordon, S. E., Ellis, P. M., Siegert, R. J., et al. (2013). Development of a self-assessed consumer recovery outcome measure: My voice, my life. Administration and Policy in Mental Health and Mental Health Services Research, 40(3), 199–210. https://doi.org/10.1007/s10488-012-0417-9.CrossRef

Titel: Development of a mental health recovery module for the WHOQOL
Auteurs: Melissa J. Rowthorn
D. Rex Billington
Christian U. Krägeloh
Jason Landon
Oleg N. Medvedev
Publicatiedatum: 10-08-2019
Uitgeverij: Springer International Publishing
Gepubliceerd in: Quality of Life Research / Uitgave 12/2019
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI: https://doi.org/10.1007/s11136-019-02265-y

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Development of a mental health recovery module for the WHOQOL

Abstract

Purpose

Methods

Results

Conclusions

Andere artikelen Uitgave 12/2019

Health-related quality of life in adult population before and after the onset of financial crisis: the case of Athens, Greece

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Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

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Abstract

Purpose

Methods

Results

Conclusions

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