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Journal of Autism and Developmental Disorders

Gepubliceerd in:

02-02-2018 | Original Paper

From ‘Parent’ to ‘Expert’: How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access

Auteurs: Amelia G. Edwards, Chris M. Brebner, Paul F. McCormack, Colin J. MacDougall

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2018

Abstract

Parents of children with Autism Spectrum Disorder are responsible for deciding which interventions to implement with their child. There is limited research examining parental decision-making with regards to intervention approaches. A constructivist grounded theory methodology was implemented in this study. Semi-structured interviews were undertaken with 14 participants from 12 family units. Data collection and analysis occurred concurrently, allowing a grounded theory to be constructed. Parental decision-making was influenced by many factors, arranged into seven core categories (values, experience, information, motivation, understanding, needs and logistics). Decision-making evolved over time, as parents transformed from ‘parent’ to ‘expert’. The results of this study provide an insight into parental decision-making, which has implications for the support provided to parents by health professionals.

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Ethics approval and initial participant recruitment was undertaken prior to the release of the DSM-V, and at this time, autistic disorder (autism) was classified as a pervasive developmental disorder.

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Titel: From ‘Parent’ to ‘Expert’: How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access
Auteurs: Amelia G. Edwards
Chris M. Brebner
Paul F. McCormack
Colin J. MacDougall
Publicatiedatum: 02-02-2018
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 6/2018
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-018-3473-5

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From ‘Parent’ to ‘Expert’: How Parents of Children with Autism Spectrum Disorder Make Decisions About Which Intervention Approaches to Access

Abstract

Andere artikelen Uitgave 6/2018

Selective Impairment of Basic Emotion Recognition in People with Autism: Discrimination Thresholds for Recognition of Facial Expressions of Varying Intensities

Brief Report: Effects of Video-Based Group Instruction on Spontaneous Social Interaction of Adolescents with Autism Spectrum Disorders

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A Comparative Analysis of the ADOS-G and ADOS-2 Algorithms: Preliminary Findings

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

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Selective Impairment of Basic Emotion Recognition in People with Autism: Discrimination Thresholds for Recognition of Facial Expressions of Varying Intensities

Brief Report: Effects of Video-Based Group Instruction on Spontaneous Social Interaction of Adolescents with Autism Spectrum Disorders

Brief Report: Adults with Autism are Less Accurate at Predicting How Their Personality Traits are Evaluated by Unfamiliar Observers

An Initial Psychometric Evaluation of the Joint Attention Protocol

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A Comparative Analysis of the ADOS-G and ADOS-2 Algorithms: Preliminary Findings