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Gepubliceerd in:

06-01-2024 | Original Paper

Grief Intervention Program for Caregivers to Individuals with Autism Spectrum Disorder (ASD): A Randomized Preliminary Trial

Auteurs: Jorge Bravo-Benítez, Francisco Cruz-Quintana, Elena Navarro, María Nieves Pérez-Marfil

Gepubliceerd in: Journal of Child and Family Studies | Uitgave 2/2024

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Abstract

The aim of this study was to adapt and deliver a grief intervention program for family caregivers of individuals with ASD and assess its effectiveness in improving grief symptoms, distress, and emotional well-being. The intervention was adapted from Shear and Bloom’s grief intervention program. The characteristics of the symptoms, along with uncertainty about how the disorder will progress, contribute to the cyclical nature of this grief. A total of 28 family caregivers of individuals with ASD took part. A series of self-report measures were used to assess grief, overload, resilience, post-traumatic growth, experiential avoidance, perceived health, and the benefits of caregiving. Findings indicate this program is effective in improving grief symptoms, overload, resilience, post-traumatic growth, and the quality of life of these caregivers. It is essential to develop and deliver interventions that address the feelings and manifestations of ambiguous grief in this type of caregiver, as there are currently no programs providing an effective response to this issue.
Literatuur
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go back to reference Crespo, M., Fernández-Lansac, V., & Soberón, C. (2014). Adaptación Española de la “Escala de Resiliencia de Connor-Davidson” (CD-RISC) en Situaciones de Estrés Crónico. Behavioral. Psychology/Psicología Conductual, 22(2), 219–238. https://doi.org/10.1037/t62957-000.CrossRef Crespo, M., Fernández-Lansac, V., & Soberón, C. (2014). Adaptación Española de la “Escala de Resiliencia de Connor-Davidson” (CD-RISC) en Situaciones de Estrés Crónico. Behavioral. Psychology/Psicología Conductual, 22(2), 219–238. https://​doi.​org/​10.​1037/​t62957-000.CrossRef
go back to reference Rarity, J. C. (2007). Nonfinite grief in families with children on the autism spectrum. (Publication n° 180195268). PhD Thesis, St. Mary’s University, San Antonio, Texas, USA. ProQuest Dissertations & Theses Global. Rarity, J. C. (2007). Nonfinite grief in families with children on the autism spectrum. (Publication n° 180195268). PhD Thesis, St. Mary’s University, San Antonio, Texas, USA. ProQuest Dissertations & Theses Global.
go back to reference Schofield, D., Shrestha, R. N., Zeppel, M. J., Cunich, M. M., Tanton, R., Veerman, J. L., & Passey, M. E. (2019). Economic costs of informal care for people with chronic diseases in the community: lost income, extra welfare payments, and reduced taxes in Australia in 2015–2030. Health & Social Care in the Community, 27(2), 493–501. https://doi.org/10.1111/hsc.12670.CrossRef Schofield, D., Shrestha, R. N., Zeppel, M. J., Cunich, M. M., Tanton, R., Veerman, J. L., & Passey, M. E. (2019). Economic costs of informal care for people with chronic diseases in the community: lost income, extra welfare payments, and reduced taxes in Australia in 2015–2030. Health & Social Care in the Community, 27(2), 493–501. https://​doi.​org/​10.​1111/​hsc.​12670.CrossRef
go back to reference Tarlow, B. J., Wisniewski, S. R., Belle, S. H., Ruber, M., Ory, M. G., & Gallagher-Thompson, D. (2004). Positive aspects of caregiving: contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Research on Aging, 26(4), 429–453. https://doi.org/10.1177/0164027504264493.CrossRef Tarlow, B. J., Wisniewski, S. R., Belle, S. H., Ruber, M., Ory, M. G., & Gallagher-Thompson, D. (2004). Positive aspects of caregiving: contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Research on Aging, 26(4), 429–453. https://​doi.​org/​10.​1177/​0164027504264493​.CrossRef
Metagegevens
Titel
Grief Intervention Program for Caregivers to Individuals with Autism Spectrum Disorder (ASD): A Randomized Preliminary Trial
Auteurs
Jorge Bravo-Benítez
Francisco Cruz-Quintana
Elena Navarro
María Nieves Pérez-Marfil
Publicatiedatum
06-01-2024
Uitgeverij
Springer US
Gepubliceerd in
Journal of Child and Family Studies / Uitgave 2/2024
Print ISSN: 1062-1024
Elektronisch ISSN: 1573-2843
DOI
https://doi.org/10.1007/s10826-023-02750-6