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Journal of Autism and Developmental Disorders
Gepubliceerd in:

08-06-2022 | Original Paper

In Their Own Words: Mothers Narrate the Lived Experience of Raising Children with Developmental Disorders Who Engage in Socially Disruptive Conduct

Auteur: Rondalyn Varney Whitney

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2023

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Abstract

The occupational role of a mother parenting a child with developmental and socially disruptive conduct is unique. How mothers express their experiences is poorly explored in the literature. This study aims to better understand mothers’ description of their unique experiences in order to better inform interventions. Using a narrative inquiry approach, mothers convey unique stressors related to two central themes (role fulfillment and role support) during a journal writing intervention. Studying mothers’ own words as they attempted to make sense of their experiences aligns with the foundational principles of narrative medicine: People make sense of their experiences through storytelling. Knowledge gained from this research underscores the importance of centering a mother’s voice in order to create effective interventions.
vorige artikel Neural Processing of Speech Sounds in ASD and First-Degree Relatives
volgende artikel ‘They ask no questions and pass no criticism’: A mixed-methods study exploring pet ownership in autism
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Voetnoten
1
Sites included Sensory Street, NLDline, Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), McNeeds Yahoo Group, OT Connections and The Autism Montgomery of Maryland. Support groups included Kennedy Krieger Institute and Johns Hopkins Medicine—Baltimore.
 
2
The ‘node tree’ from Nvivo with full list of initial codes arranged by the first order concepts, second order themes and theoretical categories is available on request.
 
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Metagegevens
Titel
In Their Own Words: Mothers Narrate the Lived Experience of Raising Children with Developmental Disorders Who Engage in Socially Disruptive Conduct
Auteur
Rondalyn Varney Whitney
Publicatiedatum
08-06-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 8/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05578-z

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