Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften Toetsvragen Web-tv Video Audio
Tips voor Mijn BSL
Inloggen

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

THIM Hogeschool voor Fysiotherapie heeft ervoor gezorgd dat je Mijn BSL eenvoudig en snel kunt raadplegen. Je kunt je links eenvoudig registreren. Met deze gegevens kun je thuis, of waar ook ter wereld toegang krijgen tot Mijn BSL. Heb je een vraag, neem dan contact op met helpdesk@thim.nl.

» Andere revante producten voor THIM studenten en medewerkers.

Registreer

Om ook buiten de locaties van THIM, thuis bijvoorbeeld, van Mijn BSL gebruik te kunnen maken, moet je jezelf eenmalig registreren. Dit kan alleen vanaf een computer op een van de locaties van THIM.

Eenmaal geregistreerd kun je thuis of waar ook ter wereld onbeperkt toegang krijgen tot Mijn BSL.

Login

Als u al geregistreerd bent, hoeft u alleen maar in te loggen om onbeperkt toegang te krijgen tot Mijn BSL.

Inloggen
Top
Journal of Autism and Developmental Disorders
Gepubliceerd in:

08-06-2022 | Original Paper

In Their Own Words: Mothers Narrate the Lived Experience of Raising Children with Developmental Disorders Who Engage in Socially Disruptive Conduct

Auteur: Rondalyn Varney Whitney

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 8/2023

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

The occupational role of a mother parenting a child with developmental and socially disruptive conduct is unique. How mothers express their experiences is poorly explored in the literature. This study aims to better understand mothers’ description of their unique experiences in order to better inform interventions. Using a narrative inquiry approach, mothers convey unique stressors related to two central themes (role fulfillment and role support) during a journal writing intervention. Studying mothers’ own words as they attempted to make sense of their experiences aligns with the foundational principles of narrative medicine: People make sense of their experiences through storytelling. Knowledge gained from this research underscores the importance of centering a mother’s voice in order to create effective interventions.
vorige artikel Neural Processing of Speech Sounds in ASD and First-Degree Relatives
volgende artikel ‘They ask no questions and pass no criticism’: A mixed-methods study exploring pet ownership in autism
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Voetnoten
1
Sites included Sensory Street, NLDline, Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), McNeeds Yahoo Group, OT Connections and The Autism Montgomery of Maryland. Support groups included Kennedy Krieger Institute and Johns Hopkins Medicine—Baltimore.
 
2
The ‘node tree’ from Nvivo with full list of initial codes arranged by the first order concepts, second order themes and theoretical categories is available on request.
 
Literatuur
Abidin, R. R. (1995). Parenting stress index manual (3rd ed.). Psychological Assessment Resources Inc.
Adams, K. (1999). Writing as therapy. Counseling and Human Development, 31(5), 1–16.
American Occupational Therapy Association [AOTA]. (2020). Occupational therapy practice framework: Domain and process (4th ed.). American Journal of Occupational Therapy, 74(Suppl. 2).
Benson, P. R. (2006). The Impact of child symptom severity on depressed mood among parents of children with ASD. Autism Developmental Disorders, 36, 685–695.CrossRef
Cacioppo, J., & Patrick, W. (2009). Loneliness: Human nature and the need for social connection. W.W. Norton & Company.
Charon, R. (2006). Narrative medicine: Honoring the stories of illness. Oxford University Press.
Clandinin, D. J., & Connelly, F. M. (2004). Narrative Inquiry: Experience and story in qualitative research. Jossey-Bass.
Clark, F. A. (2015). Lifestyle redesign. The intervention tested in the USC well elderly studies. AOTA Press.
Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Developmental Disorders, 38, 1278–1291.CrossRef
DeGrace, B. (2004). The everyday occupations of families with children with autism. American Journal of Occupational Therapy, 58(5), 341–419.
Goldberg, J. S., & Carlson, M. J. (2014). Parents’ relationship quality and children’s behavior in stable married and cohabitating families. Journal of Marriage and Family, 76(4), 763–777.CrossRef
Goldstein, L. H., Harvey, E. A., & Freidman-Weieneth, J. L. (2007). Examining subtypes of behavior among 3-year-old children, Part III: Investigating differences in parenting practices and parenting stress. Journal of Abnormal Child Psychology, 35, 125–136.CrossRefPubMed
Heiman, T., & Berger, O. (2008). Parents of children with Asperger syndrome or learning disabilities: Family environment and social support. Research in Developmental Disabilities, 29, 289–300.CrossRefPubMed
Hoffman, C., Sweeney, D., Hodge, D., Lopez-Wagner, M., & Looney, L. (2009). Parenting stress and closeness: Mothers of typically developing children and mothers of children with autism. Focus on Autism and Other Developmental Disabilities, 24(3), 178–187.CrossRef
Lee, L., Harrington, R., Louie, B., & Newschaffer, C. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38(6), 1147–1160.CrossRefPubMed
Little, L. (2002). Differences in stress and coping for mothers and fathers of children with Asperger’s syndrome and nonverbal learning disorders. Pediatric Nursing, 28(6), 565.PubMed
Mariotti, A. (2015). The effects of chronic stress on health: New insights into the molecular mechanisms of brain-body communication. Future Science, 1(3), FSO23.
McCormack, C. (2004). Storying stories: A narrative approach to in-depth interview conversations. International Journal of Social Research Methodology, 7(3), 219–236.CrossRef
McLaughlin, D. P., & Harrison, C. A. (2006). Parenting practices of mothers of children with ADHD: The role of maternal and child factors. Child and Adolescent Mental Health, 11, 82–88.CrossRefPubMed
Miles, M. B., Huberman, A. M., & Saldaña, J. (2014). Qualitative data analysis: A methods sourcebook (3rd ed.). Sage.
Ottenbacher, K., & Cusick, A. (1990). Goal attainment scaling as a method of clinical service evaluation. American Journal of Occupational Therapy, 44(6), 519–525.CrossRef
Pennebaker, J. (2007). Emotion, disclosure and health (5th ed.). American Psychological Services.
Pennebaker, J. W. (1993). Putting stress into words: Health, linguistic, and therapeutic implications. Behavior Research and Therapy, 31(6), 539–548.CrossRef
Perry, D. F. (2007). A missed opportunity: Categorical programs fail to meet the needs of young children and their caregivers. Journal of Early Intervention, 29(2), 107–110.CrossRef
Polatajko, H. J., & Mandich, A. D. (2004). Enabling occupation in children: The Cognitive Orientation to daily Occupational Performance (CO–OP) approach. CAOT Publications.
Polatajko, H. J., Mandich, A. D., Miller, L. T., & Macnab, J. J. (2001). Cognitive Orientation to daily Occupational Performance (CO–OP): Part II—The evidence. Physical and Occupational Therapy in Pediatrics, 20, 83–106.CrossRefPubMed
Polkinghorne, D. E. (1995). Narrative configuration in qualitative analysis. In J. A. Hatch & R. Wisniewski (Eds.), Life history and narrative. Falmer Press, Taylor & Francis Inc.
Saldaña, J. (2009). The Coding Manual for Qualitative Researchers. Sage.
Segal, R. (2000). Adaptive strategies of mothers with children with attention deficit hyperactivity disorder. American Journal of Occupational Therapy, 54(3), 300–306.CrossRef
Seltzer, M., Almeida, D., Greenberg, J., Savla, J., Stawski, R., Hong, J., & Taylor, J. (2009). Psycho social and biological markers of daily lives of midlife parents of children with disabilities. Journal of Health and Social Behavior, 50(1), 1–15.CrossRefPubMedPubMedCentral
Silverman, D. (2014). Interpreting qualitative data (5th ed.). SAGE Publications.
Tunali, B., & Power, T. G. (2001). Coping by redefinition: Cognitive appraisals in mothers of children with and without autism. Journal of Autism and Developmental Disorders, 32, 25–34.CrossRef
Whitney, R. V., & Smith, G. (2015). Emotional disclosure through journal writing: Telehealth intervention for maternal stress and mother-child relationships. Journal of Autism & Developmental Disorders, 45(11), 3734–3745.CrossRef
Yamada, A., Kato, M., Suzuki, M., Suzuki, M., Watanabe, N., Akechi, T., & Furukawa, T. A. (2012). Quality of life of parents raising children with pervasive developmental disorders. BioMed Central Psychiatry, 12(119), 1–8.
Zemke, R., & Clark, F. (1996). Occupational science: The evolving discipline. FA Davis.
Metagegevens
Titel
In Their Own Words: Mothers Narrate the Lived Experience of Raising Children with Developmental Disorders Who Engage in Socially Disruptive Conduct
Auteur
Rondalyn Varney Whitney
Publicatiedatum
08-06-2022
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 8/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-022-05578-z

Andere artikelen Uitgave 8/2023

“Um” and “Uh” Usage Patterns in Children with Autism: Associations with Measures of Structural and Pragmatic Language Ability

  • Original Paper

Construct Validity of the Autism Classification System of Functioning: Social Communication (ACSF:SC) Across Childhood and Adolescence

  • Original Paper

Shining a Light on a Hidden Population: Social Functioning and Mental Health in Women Reporting Autistic Traits But Lacking Diagnosis

  • Open Access
  • Original Paper

Appropriateness, Acceptability, and Feasibility of a Neurodiversity-Based Self-determination Program for Autistic Adults

  • Original Paper

Retraction Note: Autism Tsunami: The Impact of Rising Prevalence on the Societal Cost of Autism in the United States

  • Open Access
  • Retraction Note

Predictors of Attrition in a Randomized Trial of a Social Communication Intervention for Infant-Toddlers at Risk for Autism

  • Original Paper