Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften Toetsvragen Web-tv Video Audio
Tips voor Mijn BSL
Inloggen

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

THIM Hogeschool voor Fysiotherapie heeft ervoor gezorgd dat je Mijn BSL eenvoudig en snel kunt raadplegen. Je kunt je links eenvoudig registreren. Met deze gegevens kun je thuis, of waar ook ter wereld toegang krijgen tot Mijn BSL. Heb je een vraag, neem dan contact op met helpdesk@thim.nl.

» Andere revante producten voor THIM studenten en medewerkers.

Registreer

Om ook buiten de locaties van THIM, thuis bijvoorbeeld, van Mijn BSL gebruik te kunnen maken, moet je jezelf eenmalig registreren. Dit kan alleen vanaf een computer op een van de locaties van THIM.

Eenmaal geregistreerd kun je thuis of waar ook ter wereld onbeperkt toegang krijgen tot Mijn BSL.

Login

Als u al geregistreerd bent, hoeft u alleen maar in te loggen om onbeperkt toegang te krijgen tot Mijn BSL.

Inloggen
Top
Journal of Autism and Developmental Disorders
Gepubliceerd in:

01-02-2012 | Original paper

High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families

Auteurs: Luisa Ruiz Calzada, Nancy Pistrang, William P. L. Mandy

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 2/2012

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

We used framework analysis to investigate the utility of pervasive developmental disorder diagnoses, interviewing young people (aged 9–16 years) with high-functioning autistic disorder (AD) and Asperger’s disorder (AsD), and their parents. Twenty two participants from ten families described both gains and costs resulting from diagnosis. Perceived advantages of AD and AsD diagnosis were increased understanding and practical support, and parental empowerment. Disadvantages included the effects of stigma and concerns about validity. Participants tended to consider AsD and AD as interchangeable terms. Findings suggest that the utility of AD and AsD depends upon both their validity and how these diagnoses are received in their cultural, economic and legislative context. Improvement of post-diagnostic services will improve the utility of AD and AsD.
vorige artikel Visual Afterimages of Emotional Faces in High Functioning Autism
volgende artikel Implicit Learning of Local Context in Autism Spectrum Disorder
Bijlagen
Alleen toegankelijk voor geautoriseerde gebruikers
Voetnoten
1
In the UK a Statement of Special Educational Needs (‘a statement’) results from a detailed assessment of a child’s needs by the local education authority, and is associated with additional support and funding for a child. Diagnosis with a PDD generally increases a child’s chances of gaining a statement.
 
2
In a UK school, a Special Educational Needs Coordinator (SENCO) is a specialist teacher responsible for promoting the interests of young people requiring additional support in education.
 
Literatuur
American Psychiatric Association. (2000). Diagnostic and Statistical manual of mental disorders (4th ed.). Text Revision. Washington, DC: American Psychiatric Association.
Avdi, E., Griffin, C., & Brough, S. (2000). Parents’ constructions of professional knowledge, expertise and authority during an assessment and diagnosis of their child for an autistic spectrum disorder. British Journal of Medical Psychology, 73, 327–338.PubMedCrossRef
Barker, C., & Pistrang, N. (2005). Quality criteria under methodological pluralism: Implications for conducting and evaluating research. American Journal of Community Psychology, 35(3/4), 201–212.PubMedCrossRef
Blacher, J., & McIntyre, L. L. (2006). Syndrome specificity and behavioural disorders in young adults with intellectual disability: Cultural differences in family impact. Journal of Intellectual Disability Research, 50(3), 184–198.PubMedCrossRef
Carbone, P. S., Behl, D. D., Azor, V., & Murphy, N. A. (2010). The medical home for children with autism spectrum disorders: Parent and pediatrician perspectives. Journal of Autism and Developmental Disorders, 40, 317–324.PubMedCrossRef
Cashin, A. (2006). Two terms–one meaning: The conundrum of contemporary nomenclature in autism. Journal of Child and Adolescent Psychiatric Nursing, 19(3), 137–144.PubMedCrossRef
Chilvers, R. (2007). The hidden world of autism. London: Jessica Kingsley Publishers.
Constantino, J. N., & Todd, R. D. (2003). Autistic traits in the general population: A twin study. Archives of General Psychiatry, 60, 524–530.PubMedCrossRef
Daniels, A. M., Rosenberg, R. E., Law, J. K., Lord, C., Kaufmann, W. E., & Law, P. A. (2010). Stability of initial autism spectrum disorder diagnoses in community settings. Journal of Autism and Developmental Disorders, 18, 236–246.
First, M. B., Pincus, H. A., Levine, J. B., Williams, J. B. W., Ustun, B., & Peele, R. (2004). Clinical utility as a criterion for revising psychiatric diagnoses. American Journal of Psychiatry, 161(6), 946–954.PubMedCrossRef
Geschwind, D. H., & Levitt, P. (2007). Autism spectrum disorders: Developmental disconnection syndromes. Current Opinion in Neurobiology, 17, 103–111.PubMedCrossRef
Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Medicine, 56, 631–642.PubMedCrossRef
Happé, F., Ronald, A., & Plomin, R. (2006). Time to give up on a single explanation for autism. Nature Neuroscience, 9(10), 1218–1220.PubMedCrossRef
Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004). Adult outcome for children with autism. Journal of Child Psychology and Psychiatry, 45, 212–229.PubMedCrossRef
Howlin, P., & Moore, A. (1997). Diagnosis in autism: A survey of over 1,200 patients in the UK. Autism, 1(2), 135–162.CrossRef
Hurlbutt, K., & Chalmers, L. (2002). Adults with autism speak out: Perceptions of their life experiences. Focus on Autism and Other Developmental Disabilities, 17(2), 103–111.CrossRef
Jones, R. S., Zahl, A., & Huws, J. C. (2001). First-hand accounts of emotional experiences in autism: A qualitative analysis. Disability and Society, 16(3), 393–401.CrossRef
Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250.
Kendell, R., & Jablensky, A. (2003). Distinguishing between the validity and utility of psychiatric diagnoses. American Journal of Psychiatry, 160(1), 4–12.PubMedCrossRef
Kendler, K. S. (1980). The nosologic validity of paranoia (simple delusional disorder). A Review. Archives of General Psychiatry, 37, 699–706.CrossRef
Kirk, S. (2007). Methodological and ethical issues in conducting qualitative research with children and young people: A literature review. International Journal of Nursing Studies, 44, 1250–1260.PubMedCrossRef
Kreuger, M., & Kendall, J. (2001). Descriptions of self: An exploratory study of adolescents with ADHD. Journal of Child and Adolescent Psychiatric Nursing, 14(2), 61–72.CrossRef
Landsman, G. (2003). Emplotting children’s lives: Developmental delay vs. disability. Social Science and Medicine, 26, 1947–1960.
Leekam, S., Libby, S., Wing, L., Gould, J., & Gillberg, C. (2000). Comparison of ICD-10 and Gillberg’s criteria for Asperger syndrome. Autism, 4(1), 11–28.CrossRef
Lord, C., Risi, S., Lambrecht, L., Cook, E. H., Jr., Leventhal, B. L., Di Lavore, P. C., et al. (2000). The autism diagnostic observation schedule-generic: A standard measure of social and communication deficits associated with the spectrum of autism. Journal of Autism and Developmental Disorders, 30, 205–223.PubMedCrossRef
Mahoney, W. J., Szatmari, P., MacLean, J. E., Bryson, S. E., Bartolucci, G., Walter, S. D., et al. (1998). Reliability and accuracy of differentiating pervasive developmental disorder subtypes. Journal of the American Academy of Child and Adolescent Psychiatry, 37(3), 278–285.PubMedCrossRef
Mandy, W. P., Charman, T., Gilmour, J. & Skuse, D. (2011). Toward specifying pervasive developmental disorder not otherwise specified. Autism Research. doi:10.​1002/​aur.​178.
Mandy, W. P., & Skuse, D. H. (2008). Research review: What is the association between the social-communication element of autism and repetitive interests, behaviours and activities? Journal of Child Psychology and Psychiatry, 49, 795–808.PubMedCrossRef
Mayes, S. D., Calhoun, S. L., & Crites, D. L. (2001). Does DSM-IV Asperger’s disorder exist? Journal of Abnormal Child Psychology, 29(3), 263–271.PubMedCrossRef
Mays, N., & Pope, C. (2000). Qualitative research in health care. Assessing quality in qualitative research. BMJ, 320, 50–52.PubMedCrossRef
McCabe, H. (2007). Parent advocacy in the face of adversity: Autism and families in the People’s Republic of China. Focus on Autism and Other Developmental Disabilities, 22(1), 39–50.CrossRef
Midence, K., & O’Neill, M. (1999). The experience of parents in the diagnosis of autism: A pilot study. Autism, 3(3), 273–285.CrossRef
Newman, B., & Newman, P. (2008). Development through life: A psychosocial perspective (10th ed.). Belmont, CA: Wadsworth Cengage Learning.
Nissenbaum, M. S., Tollefson, N., & Reese, R. M. (2002). The interpretative conference: Sharing a diagnosis of autism with families. Focus on Autism and Other Developmental Disabilities, 17(1), 30–43.CrossRef
O’Brien, M. (2007). Ambiguous loss in families of children with autism spectrum disorders. Family Relations, 56(2), 135–146.CrossRef
Pope, C., Ziebland, S., & Mays, N. (2000). Analysing qualitative data. British Medical Journal, 320, 114–117.PubMedCrossRef
Portway, S. M., & Johnson, B. (2005). Do you know i have Asperger’s syndrome? risks of a non-obvious disability. Health Risk and Society, 7(1), 73–83.CrossRef
Reichow, B., & Volkmar, F. R. (2010). Social skills interventions for individuals with autism: Evaluation for evidence-based practices within a best evidence synthesis framework. Journal of Autism and Developmental Disorders, 40, 149–166.PubMedCrossRef
Ritchie, J., & Spencer, L. (1994). Qualitative data analysis for applied policy research. In A. Bryman & R. G. Burgess (Eds.), Analysing qualitative data. London: Routledge.
Robins, E., & Guze, S. B. (1970). Establishment of diagnostic validity in psychiatric illness: Its application to schizophrenia. American Journal of Psychiatry, 126, 983–987.PubMed
Seida, J. K., Ospina, M. B., Karkhaneh, M., Hartling, L., Smith, V., & Clark, B. (2009). Systematic reviews of psychosocial interventions for autism: An umbrella review. Developmental Medicine and Child Neurology, 51, 95–104.PubMedCrossRef
Siklos, S., & Kerns, K. A. (2007). Assessing the diagnostic experiences of a small sample of parents of children with autism spectrum disorders. Research in Developmental Disabilities, 28, 9–22.PubMedCrossRef
Simonoff, E., Pickles, A., Charman, T., Chandler, S., Loucas, T., & Baird, G. (2008). Psychiatric disorders in children with autism spectrum disorders: Prevalence, comorbidity, and associated factors in a population-derived sample. Journal of the American Academy of Child and Adolescent Psychiatry, 47, 921–929.PubMedCrossRef
Skuse, D. H., Mandy, W., Steer, C., Miller, L. L., Goodman, R., Lawrence, K., et al. (2009). Social communication competence and functional adaptation in a General population of children: Preliminary evidence for sex-by-verbal IQ differential risk. Journal of the American Academy of Child and Adolescent Psychiatry, 48(2), 128–137.PubMedCrossRef
Skuse, D., Warrington, R., Bishop, D., Chowdhury, U., Lau, J., Mandy, W., et al. (2004). The developmental, dimensional and diagnostic interview (3di): A novel computerized assessment for autism spectrum disorders. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 548–558.PubMedCrossRef
Smith, J. A. (1995). Semi-structured interviewing and qualitative analysis. In J. A. Smith, R. Harre, & L. Van Langenhove (Eds.), Rethinking methods in psychology. London: Sage.
Stiles, W. B. (1999). Evaluating qualitative research. Evidence-Based Mental Health, 2, 99–101.CrossRef
Strauss, A., & Corbin, J. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Thousand Oaks, CA: Sage.
Streiner, D. L., & Norman, G. R. (1995). Health measurement scales. Oxford: Oxford University Press.
Vismara, L. A., & Rogers, S. J. (2010). Behavioral treatments in autism spectrum disorder: What do we know? Annual Review of Clinical Psychology, 6, 447–468.PubMedCrossRef
Williams, J. (2006). Learning from mothers: How Myths, policies and practices affect the detection of subtle developmental problems in children. Child: Care, Health and Development, 33(3), 282–290.CrossRef
Willig, C. (2008). Introducing qualitative research in psychology: Adventures in theory and method (2nd ed.). Buckingham: Open University Press.
Woodgate, R. L., Ateah, C., & Secco, L. (2008). Living in a world of our own: The experience of parents who have a child with autism. Qualitative Health Research, 18, 1075–1083.PubMedCrossRef
Metagegevens
Titel
High-Functioning Autism and Asperger’s Disorder: Utility and Meaning for Families
Auteurs
Luisa Ruiz Calzada
Nancy Pistrang
William P. L. Mandy
Publicatiedatum
01-02-2012
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 2/2012
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-011-1238-5

Andere artikelen Uitgave 2/2012

The Hilibrand Autism Fellowship in Adolescence and Adulthood

  • Announcement

Early Childhood Predictors of the Social Competence of Adults with Autism

  • Open Access
  • Original Paper

Preparing for College: A Day Long Conference for Students, Parents, and Professionals, April 22, 2012

  • Conference Announcement

Investigating the Clinical Usefulness of the Social Responsiveness Scale (SRS) in a Tertiary Level, Autism Spectrum Disorder Specific Assessment Clinic

  • Original Paper

The Effects of Face Expertise Training on the Behavioral Performance and Brain Activity of Adults with High Functioning Autism Spectrum Disorders

  • Original Paper

Bullying Experiences Among Children and Youth with Autism Spectrum Disorders

  • Original Paper