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Quality of Life Research

08-12-2024

Patients’ experience on waiting for spinal arthrodesis: a qualitative study

Auteurs: Paolo Pillastrini, Silvano Ferrari, Angela Albano, Michela Beni, Ilaria Burbello, Laura De Cristofaro, Cristiana Griffoni, Katia Mattarozzi, Giuliana Nervuti, Carla Vanti

Gepubliceerd in: Quality of Life Research

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Abstract

Purpose

A number of studies have explored patients’ subjective experience of waiting for spinal surgery, however, they did so through an investigation conducted post-operatively. Thus, the aim of this study was to explore the experience of patients while still on the waitlist for lumbar spinal arthrodesis.

Methods

This qualitative study of semi-structured interviews was conducted at an orthopedic research institute in Italy. The interview track was developed by a team of professionals (physiotherapists, orthopedic surgeon, psychologist) and consisted of 40 questions. Fifteen patients, 10 females and 5 males aged between 23 and 80 years, waiting for spinal arthrodesis were interviewed. The interviews were performed, transcribed and analyzed by the multiprofessional team through thematic analysis using a reflexive approach.

Results

Five main themes were generated: (1) Impact of persistent pain on patients’ physical and psychological functioning; (2) Fear of the unknown and uncertainties; (3) Hope and regaining normality; (4) The impact of the unpredictability of the waiting time; (5) Need for better communication and information on the care pathway. Two minor themes were also produced.

Conclusions

These findings highlighted that patients on the waiting list for spinal arthrodesis need more certainty about waiting times, better communication with hospital staff, more thorough information about their care pathway. This could help patients feel more confident and may lead to more adequate expectations before surgery.

Trial Registration

The study protocol was registered on ClinicalTrials.gov database on 14/03/2022 with ID number NCT06323694.
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Metagegevens
Titel
Patients’ experience on waiting for spinal arthrodesis: a qualitative study
Auteurs
Paolo Pillastrini
Silvano Ferrari
Angela Albano
Michela Beni
Ilaria Burbello
Laura De Cristofaro
Cristiana Griffoni
Katia Mattarozzi
Giuliana Nervuti
Carla Vanti
Publicatiedatum
08-12-2024
Uitgeverij
Springer New York
Gepubliceerd in
Quality of Life Research
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-024-03861-3