Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften Toetsvragen Web-tv Video Audio
Tips voor Mijn BSL
Inloggen

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

THIM Hogeschool voor Fysiotherapie heeft ervoor gezorgd dat je Mijn BSL eenvoudig en snel kunt raadplegen. Je kunt je links eenvoudig registreren. Met deze gegevens kun je thuis, of waar ook ter wereld toegang krijgen tot Mijn BSL. Heb je een vraag, neem dan contact op met helpdesk@thim.nl.

» Andere revante producten voor THIM studenten en medewerkers.

Registreer

Om ook buiten de locaties van THIM, thuis bijvoorbeeld, van Mijn BSL gebruik te kunnen maken, moet je jezelf eenmalig registreren. Dit kan alleen vanaf een computer op een van de locaties van THIM.

Eenmaal geregistreerd kun je thuis of waar ook ter wereld onbeperkt toegang krijgen tot Mijn BSL.

Login

Als u al geregistreerd bent, hoeft u alleen maar in te loggen om onbeperkt toegang te krijgen tot Mijn BSL.

Inloggen
Top
Quality of Life Research
Gepubliceerd in:

01-07-2015

Perceptions of QOL among caregivers of Mexican ancestry of adults with advanced cancer

Auteurs: Gloria Juarez, Joan J. Branin, Monica Rosales

Gepubliceerd in: Quality of Life Research | Uitgave 7/2015

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

Purpose

There is a substantial gap in the literature about the perceptions of QOL of caregivers of Mexican ancestry. This qualitative study explores the role of culture on the perceptions of QOL of this understudied population.

Methods

Twenty caregivers providing care to adults with advanced cancer were interviewed. Thematic analysis identified several themes for each domain of QOL, including physical, psychological, social, and spiritual domains and the role of culture.

Results

Cultural background influenced all of the QOL domains. There was a tremendous synergy across domains of physical, psychological, social, and spiritual well-being. Extended family and religious beliefs, life experiences, and culture were important components of QOL for these caregivers. Cultural expectations influenced role functioning and caregiver burden.

Conclusion

This study informs our understanding of the role of culture on perceptions of QOL. Future investigations should be conducted with other Latino subgroups to describe QOL and to determine the role of culture on perceived QOL. Interventions should be specifically designed to improve caregivers’ QOL and to reduce the burden of cancer in this underserved population.
vorige artikel The effect of mirabegron on patient-related outcomes in patients with overactive bladder: the results of post hoc correlation and responder analyses using pooled data from three randomized Phase III trials
volgende artikel The impact of social support at home on health-related quality of life among veterans with spinal cord injury participating in a supported employment program
Literatuur
1.
Given, B. A., Given, C. W., & Sherwood, P. R. (2012). Family and caregiver needs over the course of the cancer trajectory. The Journal of Supportive Oncology, 10(2), 57–64.PubMedCrossRef
2.
Kim, Y., & Given, B. A. (2008). Quality of life of family caregivers of cancer survivors: Across the trajectory of the illness. Cancer, 112(S11), 2556–2568.PubMedCrossRef
3.
Kitrungrote, L., & Cohen, M. Z. (2006). Quality of life of family caregivers of patients with cancer: A literature review. Oncology Nursing Forum, 33(3), 625–632.CrossRef
4.
Ashing-Giwa, K., & Kagawa-Singer, M. (2006). Infusing culture into oncology research on quality of life. Oncology Nursing Forum, 33(S1), 31–36.PubMedCrossRef
5.
Kagawa-Singer, M., Padilla, G. V., & Ashing-Giwa, K. (2010). Health-related quality of life and culture. Seminars in Oncology Nursing, 26(1), 59–67.PubMedCrossRef
6.
Ferrell, B. R., Dow, K. H., Leigh, S., Ly, J., & Gulasekaram, P. (1995). Quality of life in long-term cancer survivors. Oncology Nursing Forum, 22(6), 915–922.PubMed
7.
Dow, K. H., Ferrell, B. R., Leigh, S., Ly, J., & Gulasekaram, P. (1996). An evaluation of the quality of life among long-term survivors of breast cancer. Breast Cancer Research and Treatment, 39(3), 261–273.PubMedCrossRef
8.
Holliday, A. (2010). Complexity in cultural identity. Language and Intercultural Communication, 10(2), 165–177.CrossRef
9.
Elder, K. A., Paris, M, Jr, Añez, L. M., & Grilo, C. M. (2008). Loss of control over eating is associated with eating disorder psychopathology in a community sample of Latinas. Eating Behaviors, 9(4), 501–503.PubMedCentralPubMedCrossRef
10.
Galanti, G. A. (2003). The Hispanic family and male-female relationships: An overview. Journal of Transcultural Nursing, 14(3), 180–185.PubMedCrossRef
11.
Kagawa-Singer, M., Dadia, A. V., Yu, M. C., & Surbone, A. (2010). Cancer, culture, and health disparities: Time to chart a new course? CA: A Cancer Journal for Clinicians, 60(1), 12–39. doi:10.​3322/​caac.​20051.
12.
Pew Hispanic Center. (2012). Statistical portrait of Hispanics in the United States, in Pew Hispanic Center.
13.
14.
15.
Census Bureau US. (2000). State and county quick facts, 2002. US Census Bureau.
16.
17.
Bradley, C. J., Given, C. W., & Roberts, C. (2001). Disparities in cancer diagnosis and survival. Cancer, 91(1), 178–188.PubMedCrossRef
18.
Guidry, J. J., Torrence, W., & Herbelin, S. (2005). Closing the divide: Diverse populations and cancer survivorship. Cancer, 104(S11), 2577–2583.PubMedCrossRef
19.
Sabogal, F., Marin, G., Otero-Sabogal, R., Marin, B., & Perez-Stable, E. (1987). Hispanic familism and acculturation: What changes and what doesn’t? Hispanic Journal of Behavioral Sciences, 9, 397–412.CrossRef
20.
Velasquez, R. J., Arellano, L. M., & McNeill, B. W. (2004). The handbook of Chicano/o psychology and mental health. Hillsdale, NJ: Erlbaum.
21.
Knight, B. C., Robinson, C. S., Flynn Longmire, C. V., Chun, M., Nakao, K., & Kim, J. (2002). Cross cultural issues in caregiving for dementia: Do familism values reduce burden and distress? Ageing International, 27, 70–93.CrossRef
22.
Escandon, S. (2006). Mexican American intergenerational caregiving model. Journal of Nursing Research, 28(5), 564–585.
23.
Chun, M., Knight, B., & Youn, G. (2007). Differences in stress and coping models of emotional distress among Korean, Korean-American and White-American caregivers. Aging & Mental Health, 11, 20–29.CrossRef
24.
Haley, W. E., et al. (1996). Appraisal, coping, and social support as mediators of well-being in black and white family caregivers of patients with Alzheimer’s disease. Journal of Consulting and Clinical Psychology, 64(1), 121–129.PubMedCrossRef
25.
Juarez, G., Ferrell, B., & Borneman, T. (1998). Perceptions of quality of life in Hispanic patients with cancer. Cancer Practice, 6(6), 318–324.PubMedCrossRef
26.
Munoz, C., Juarez, G., Munoz, M. L., Portnow, J., Fineman, I., Badie, B., et al. (2008). The quality of life of patients with malignant gliomas and their caregivers. Social Work in Health Care, 47(4), 455–478. doi:10.​1080/​0098138080223239​6.PubMedCrossRef
27.
28.
29.
Edwards, B., & Ung, L. (2002). Quality of life instruments for caregivers of patients with cancer: A review of their psychometric properties. Cancer Nursing, 25(5), 342–349.PubMedCrossRef
30.
Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101.CrossRef
31.
Creswell, J. W., & Miller, D. L. (2002). Determining validity in qualitative inquiry. Theory into Practice, 39(3), 1–130.
32.
Morrow, S. L. (2005). Quality and trustworthiness in qualitative research in counseling psychology. Journal of Counseling Psychology, 52(2), 250–260.CrossRef
33.
Ferrell, B. R., Dow, K. H., & Grant, M. (1995). Measurement of the quality of life in cancer survivors. Quality of Life Research, 4(6), 523–531.PubMedCrossRef
34.
Ashing-Giwa, K. (2005). The contextual model of HRQoL: A paradigm for expanding the HRQoL framework. Quality of Life Research, 14(2), 297–307.PubMedCrossRef
35.
36.
37.
Kim, Y., Kashy, D. A., & Evans, T. V. (2007). Age and attachment style impact stress and depressive symptoms among caregivers: A prospective investigation. Journal of Cancer Survivors, 1(1), 35–43. doi:10.​1007/​s11764-007-0011-4.CrossRef
38.
39.
Kim, Y., Wellisch, D. K., Spillers, R. L., & Crammer, C. (2007). Psychological distress of female cancer caregivers: Effects of type of cancer and caregivers’ spirituality. Supportive Care Cancer, 15(12), 1367–1374.CrossRef
40.
Flores, Y. G., Hinton, L., Barker, J. C., Franz, C. E., & Velasquez, A. (2009). Beyond familism: Ethics of care of Latina caregivers of elderly parents with dementia. Health Care Women International, 30(12), 1055–1072. doi:10.​1080/​0739933090314125​2.CrossRef
41.
Lim, Y. M., Luna, I., Cromwell, S. L., Philipps, L. R., Russell, C. K., & de Ardon, E. T. (1996). Towards a cross-cultural understanding of family caregiving burden. Western Journal of Nursing Research, 18(3), 252–266.PubMedCrossRef
42.
Mendelson, C. (2005). Mexican American women’s struggle to create household health. In J. W. Lee (Ed.), Gender roles (pp. 53–86). New York: Nova Biomedical Books.
43.
Carter, P. A. (2002). Caregivers’ descriptions of sleep changes and depressives symptoms. Oncology Nursing Forum, 29(9), 1277–1283.PubMedCrossRef
44.
Carter, P. A. (2003). Family caregivers’ sleep loss and depression over time. Cancer Nursing, 26(4), 253–259.PubMedCrossRef
45.
Kim, Y., Baker, F., Spillers, R. L., & Wellisch, D. K. (2006). Psychological adjustment of cancer caregivers with multiple roles. Psychooncology, 15(9), 795–804.PubMedCrossRef
46.
47.
48.
49.
Gustavsson-Lilius, M., Julkunwn, J., & Hietanen, P. (2007). Quality of life in cancer patients: The role of optimism, hopelessness, and partner support. Quality of Life Research, 16(1), 75–87.PubMedCrossRef
50.
51.
Knight, B. G., & Sayegh, P. (2010). Cultural values and caregiving: The updated sociocultural stress and coping model. Journal of Gerontology: Psychological Sciences, 65B(1), 5–13. doi:10.​1093/​geronb/​gbp096.CrossRef
52.
Adams, B., Aranda, M. P., Kemp, B., & Takagi, K. (2002). Ethnic and gender differences in distress among Anglo American, African American, Japanese American, and Mexican American spousal caregivers of persons with dementia. Journal of Clinical Geropsychology, 8(4), 279–301.CrossRef
53.
54.
Brady, M. J., Peterman, A. H., Fitchett, G., Mo, M., & Cella, D. (1999). A case for including spirituality in quality of life measurement in oncology. Psychooncology, 8(5), 417–428.PubMedCrossRef
55.
Connell, C. M., & Gibson, G. D. (1997). Racial, ethnic, and cultural differences in dementia caregiving: Review and analysis. The Gerontologist, 37(3), 355–364.PubMedCrossRef
56.
57.
Campesino, M., & Schwartz, G. E. (2006). Spirituality among Latinas/os: Implications of culture in conceptualization and measurement. Advances in Nursing Science, 29(1), 69–81.PubMedCentralPubMedCrossRef
58.
Harwood, D. G., Barker, W. W., Ownby, R. L., Bravo, M., Aguero, H., & Duara, R. (2000). Predictors of positive and negative appraisal among Cuban American caregivers of Alzheimer’s disease patients. International Journal of Geriatric Psychiatry, 15(6), 481–487.PubMedCrossRef
59.
60.
Roth, D. L., Haley, W. E., Owen, J. E., Clay, O. J., & Goode, K. T. (2001). Latent growth models of the longitudinal effects of dementia caregiving: A comparison of African American and White family caregivers. Psychology and Aging, 16(3), 427–436.PubMedCrossRef
61.
Wood, J. B., & Parham, I. A. (1990). Coping with perceived burden: Ethnic and cultural issues in Alzheimer’s family caregiving. Journal of Applied Gerontology, 9(3), 325–339.CrossRef
62.
Hinton, W. L., Fox, K., & Levkoff, S. (1999). Introduction: Exploring the relationships among aging, ethnicity, and family dementia caregiving. Culture, Medicine and Psychiatry, 23(4), 403–413.PubMedCrossRef
Metagegevens
Titel
Perceptions of QOL among caregivers of Mexican ancestry of adults with advanced cancer
Auteurs
Gloria Juarez
Joan J. Branin
Monica Rosales
Publicatiedatum
01-07-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 7/2015
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-014-0911-5

Andere artikelen Uitgave 7/2015

Erratum to: Genetic variations underlying self-reported physical functioning: a review

  • Erratum

Confirmatory factor analysis of the Patient Assessment of Constipation-Symptoms (PAC-SYM) among patients with chronic constipation

Health status and quality of life: results from a national survey in a community-dwelling sample of elderly people

Content validity and legacy patient-reported outcome measures in cancer

  • Commentary

The Patient Activation Measure: a validation study in a neurological population

Valuing EQ-5D health states for Sri Lanka