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Journal of Autism and Developmental Disorders

Gepubliceerd in:

27-01-2022 | Original Paper

Pivotal Response Treatment (PRT) - Parent Group Training for Young Children with Autism Spectrum Disorder: A Qualitative Study on Perspectives of Parents

Auteurs: Manon W. P. de Korte, Shireen P. T. Kaijadoe, Jan K. Buitelaar, Wouter G. Staal, Martine van Dongen-Boomsma

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2022

Abstract

Pivotal Response Treatment (PRT) is considered to be an empirically supported parent-mediated treatment for children with autism spectrum disorder (ASD), but research on parental experiences is lacking. This qualitative study examined the perspectives of parents of young children with ASD who participated in a 14-week PRT with parent group training (PRT-PG). Semi-structured interviews (n = 12) were carried out, based on Grounded Theory principles. Results indicated that facilitators and barriers were related to timing and expectations, training setting and characteristics, and participant characteristics. Perceived effects were related to improved child’s social-communication skills and well-being, parental insights into their child’s needs and own habitual patterns in communication and behavior, and positive changes in family cohesion. The findings indicate that in general parents value PRT-PG as feasible and effective.

vorige artikel A Longitudinal RCT of P-ESDM With and Without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes

volgende artikel Self-Perceived Quality of Life in Spanish-Speaking Women with Autism Spectrum Disorders

Alleen toegankelijk voor geautoriseerde gebruikers

Alshirawi, M., Alzayer, R., & Baqer Alnajjar, S. (2018). Parents perspective toward implementing pivotal response treatment in natural environment to enhance social communication and sensory processing of children with autism. Journal of Studies in Education. https://doi.org/10.5296/jse.v8i3.13378CrossRef

Althoff, C. E., Dammann, C. P., Hope, S. J., & Ausderau, K. K. (2019). Parent-mediated interventions for children with autism spectrum disorder: A systematic review. The American Journal of Occupational Therapy, 73(3), 7303205010p7303205011-7303205010p7303205013. https://doi.org/10.5014/ajot.2019.030015CrossRef

American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Author.CrossRef

Baier, A. L., Kline, A. C., & Feeny, N. C. (2020). Therapeutic alliance as a mediator of change: A systematic review and evaluation of research. Clinical Psychology Review, 82, 101921. https://doi.org/10.1016/j.cpr.2020.101921CrossRefPubMed

Baker-Ericzén, M. J., Stahmer, A. C., & Burns, A. (2007). Child demographics associated with outcomes in a community-based pivotal response training program. Journal of Positive Behavior Interventions, 9(1), 52–60. https://doi.org/10.1177/10983007070090010601CrossRef

Bearss, K., Burrell, T. L., Stewart, L., & Scahill, L. (2015). Parent training in autism spectrum disorder: What’s in a name? Clinical Child and Family Psychology Review, 18(2), 170–182. https://doi.org/10.1007/s10567-015-0179-5CrossRefPubMedPubMedCentral

Burrell, T. L., Postorino, V., Scahill, L., Rea, H. M., Gillespie, S., Evans, A. N., & Bearss, K. (2020). Feasibility of group parent training for children with autism spectrum disorder and disruptive behavior: A demonstration pilot. Journal of Autism and Developmental Disorders, 50(11), 3883–3894. https://doi.org/10.1007/s10803-020-04427-1CrossRefPubMed

Constantino, J. N., & Gruber, C. P. (2012). Social responsiveness scale second edition (SRS-2): Manual. Torrance: Western Psychological Services (WPS).

de Korte, M.W.P., van dongen-Boomsma, M., Buitelaar, J.K., Oosterling, I.J., Staal, W.G. (2021). Pivotal Response Treatment (PRT) parent group training for young children with autism spectrum disorder: a pilot study. [Manuscript submitted for publication].

de Greef, M., Pijnenburg, H. M., van Hattum, M. J. C., McLeod, B. D., & Scholte, R. H. J. (2017). Parent-professional alliance and outcomes of child, parent, and family treatment: A systematic review. Journal of Child and Family Studies, 26(4), 961–976. https://doi.org/10.1007/s10826-016-0620-5CrossRef

Estes, A., Munson, J., Rogers, S. J., Greenson, J., Winter, J., & Dawson, G. (2015). Long-term outcomes of early intervention in 6-year-old children with autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 54(7), 580–587.CrossRef

Freuler, A. C., Baranek, G. T., Tashjian, C., Watson, L. R., Crais, E. R., & Turner-Brown, L. M. (2014). Parent reflections of experiences of participating in a randomized controlled trial of a behavioral intervention for infants at risk of autism spectrum disorders. Autism, 18(5), 519–528. https://doi.org/10.1177/1362361313483928CrossRefPubMed

Gaspar de Alba, M. J., & Bodfish, J. W. (2011). Addressing parental concerns at the initial diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 5(1), 633–639. https://doi.org/10.1016/j.rasd.2010.07.009CrossRef

Gentles, S. J., Nicholas, D. B., Jack, S. M., McKibbon, K. A., & Szatmari, P. (2020). Coming to understand the child has autism: A process illustrating parents’ evolving readiness for engaging in care. Autism, 24(2), 470–483. https://doi.org/10.1177/1362361319874647CrossRefPubMed

Glaser, B. G., & Strauss, A. L. (2017). Discovery of grounded theory: Strategies for qualitative research. Routledge.CrossRef

Guest, G., Bunce, A., & Johnson, L. (2006). How many interviews are enough?: An experiment with data saturation and variability. Field Methods, 18(1), 59–82. https://doi.org/10.1177/1525822x05279903CrossRef

Guralnick, M., Hammond, M., Neville, B., & Connor, R. (2008). The relationship between sources and functions of social support and dimensions of child- and parent-related stress. Journal of Intellectual Disability Research: JIDR, 52, 1138–1154. https://doi.org/10.1111/j.1365-2788.2008.01073.xCrossRefPubMed

Guy, W. (1976). ECDEU assessment manual for psychopharmacology. Rockville, MD: U.S. Department of Healh, Education, and Welfare.

Hardan, A. Y., Gengoux, G. W., Berquist, K. L., Libove, R. A., Ardel, C. M., Phillips, J., Frazier, T. W., & Minjarez, M. B. (2015). A randomized controlled trial of Pivotal Response Treatment Group for parents of children with autism. Journal of Child Psychology and Psychiatry, 56(8), 884–892. https://doi.org/10.1111/jcpp.12354CrossRefPubMed

Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6CrossRefPubMed

Kim, S., & Trainor, A. (2020). Applicability and feasibility of pivotal response treatment with Korean American Children with Autism. Education and Training in Autism and Developmental Disabilities, 55(1), 75–88.

Koegel, R. L., & Koegel, L. K. (2018). Pivotal response treatment for autism spectrum disorders (2nd ed.). Brookes Publishing.

Leadbitter, K., Macdonald, W., Taylor, C., & Buckle, K. L. (2020). Parent perceptions of participation in a parent-mediated communication-focussed intervention with their young child with autism spectrum disorder. Autism, 24(8), 2129–2141. https://doi.org/10.1177/1362361320936394CrossRefPubMedPubMedCentral

Lord, C., Brugha, T. S., Charman, T., Cusack, J., Dumas, G., Frazier, T., Jones, E., Jones, R. M., Pickles, A., State, M. W., Taylor, J. L., & Veenstra-VanderWeele, J. (2020). Autism spectrum disorder. Nature Reviews. Disease Primers, 6(1), 5. https://doi.org/10.1038/s41572-019-0138-4CrossRefPubMedPubMedCentral

Minjarez, M. B., Mercier, E. M., Williams, S. E., & Hardan, A. Y. (2013). Impact of pivotal response training group therapy on stress and empowerment in parents of children with autism. Journal of Positive Behavior Interventions, 15(2), 71–78. https://doi.org/10.1177/1098300712449055CrossRef

Minjarez, M. B., Williams, S. E., Mercier, E. M., & Hardan, A. Y. (2011). Pivotal response group treatment program for parents of children with autism. Journal of Autism and Developmental Disorders, 41(1), 92–101. https://doi.org/10.1007/s10803-010-1027-6CrossRefPubMed

O’Cathain, A., Thomas, K., Drabble, S., Rudolph, A., & Hewison, J. (2013). What can qualitative research do for randomised controlled trials? A systematic mapping review. British Medical Journal Open. https://doi.org/10.1136/bmjopen-2013-002889CrossRef

Ona, H. N., Larsen, K., Nordheim, L. V., & Brurberg, K. G. (2019). Effects of pivotal response treatment (PRT) for children with autism spectrum disorders (ASD): A systematic review. Review Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s40489-019-00180-zCrossRef

Oono, I. P., Honey, E. J., & McConachie, H. (2013). Parent-mediated early intervention for young children with autism spectrum disorders (ASD). Cochrane Database of Systematic Reviews. https://doi.org/10.1002/14651858.CD009774.pub2CrossRefPubMed

Ozonoff, S., Heung, K., Byrd, R., Hansen, R., & Hertz-Picciotto, I. (2008). The onset of autism: Patterns of symptom emergence in the first years of life. Autism Research, 1(6), 320–328. https://doi.org/10.1002/aur.53CrossRefPubMedPubMedCentral

Poslawsky, I. E., Naber, F. B., Bakermans-Kranenburg, M. J., van Daalen, E., van Engeland, H., & van Ijzendoorn, M. H. (2015). Video-feedback Intervention to promote Positive Parenting adapted to Autism (VIPP-AUTI): A randomized controlled trial. Autism, 19(5), 588–603. https://doi.org/10.1177/1362361314537124CrossRefPubMed

Richards, M., Mossey, J., & Robins, D. L. (2016). Parents’ concerns as they relate to their child’s development and later diagnosis of autism spectrum disorder. Journal of Developmental and Behavioral Pediatrics, 37(7), 532–540. https://doi.org/10.1097/dbp.0000000000000339CrossRefPubMedPubMedCentral

Russell, G., & Norwich, B. (2012). Dilemmas, diagnosis and de-stigmatization: Parental perspectives on the diagnosis of autism spectrum disorders. Clinical Child Psychology and Psychiatry, 17(2), 229–245. https://doi.org/10.1177/1359104510365203CrossRefPubMed

Schreibman, L., Dawson, G., Stahmer, A. C., Landa, R., Rogers, S. J., McGee, G. G., Kasari, C., Ingersoll, B., Kaiser, A. P., Bruinsma, Y., McNerney, E., Wetherby, A., & Halladay, A. (2015). Naturalistic developmental behavioral interventions: Empirically validated treatments for autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(8), 2411–2428. https://doi.org/10.1007/s10803-015-2407-8CrossRefPubMedPubMedCentral

Shalev, R. A., Lavine, C., & Di Martino, A. (2020). A Systematic review of the role of parent characteristics in parent-mediated interventions for children with autism spectrum disorder. Journal of Developmental and Physical Disabilities, 32(1), 1–21. https://doi.org/10.1007/s10882-018-9641-xCrossRef

Stahmer, A. C., Suhrheinrich, J., Reed, S., & Schreibman, L. (2012). What works for you? Using teacher feedback to inform adaptations of pivotal response training for classroom use. Autism Research Treatment, 2012, 709861. https://doi.org/10.1155/2012/709861CrossRefPubMedPubMedCentral

Steiner, A. M., Koegel, L. K., Koegel, R. L., & Ence, W. A. (2012). Issues and theoretical constructs regarding parent education for autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(6), 1218–1227. https://doi.org/10.1007/s10803-011-1194-0CrossRefPubMed

Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042CrossRefPubMed

Towle, P. O., Patrick, P. A., Ridgard, T., Pham, S., & Marrus, J. (2020). Is earlier better? The relationship between age when starting early intervention and outcomes for children with autism spectrum disorder: a selective review. Autism Research and Treatment, 2020, 7605876. https://doi.org/10.1155/2020/7605876CrossRefPubMedPubMedCentral

Tufford, L., & Newman, P. (2010). Bracketing in qualitative research. Qualitative Social Work, 11(1), 80–96. https://doi.org/10.1177/1473325010368316CrossRef

van Schalkwyk, G. I., & Dewinter, J. (2020). Qualitative research in the journal of autism and developmental disorders. Journal of Autism and Developmental Disorders, 50(7), 2280–2282. https://doi.org/10.1007/s10803-020-04466-8CrossRefPubMed

Verschuur, R., Didden, R., Lang, R., Sigafoos, J., & Huskens, B. (2014). Pivotal response treatment for children with autism spectrum disorders: A systematic review. Review Journal of Autism and Developmental Disorders, 1(1), 34–61. https://doi.org/10.1007/s40489-013-0008-zCrossRef

Verschuur, R., Huskens, B., & Didden, R. (2019). Effectiveness of parent education in pivotal response treatment on pivotal and collateral responses. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-04061-6CrossRefPubMedPubMedCentral

Titel: Pivotal Response Treatment (PRT) - Parent Group Training for Young Children with Autism Spectrum Disorder: A Qualitative Study on Perspectives of Parents
Auteurs: Manon W. P. de Korte
Shireen P. T. Kaijadoe
Jan K. Buitelaar
Wouter G. Staal
Martine van Dongen-Boomsma
Publicatiedatum: 27-01-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 12/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05397-8

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Pivotal Response Treatment (PRT) - Parent Group Training for Young Children with Autism Spectrum Disorder: A Qualitative Study on Perspectives of Parents

Abstract

Andere artikelen Uitgave 12/2022

Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism

Defining in Detail and Evaluating Reliability of DSM-5 Criteria for Autism Spectrum Disorder (ASD) Among Children

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Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

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Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism

Defining in Detail and Evaluating Reliability of DSM-5 Criteria for Autism Spectrum Disorder (ASD) Among Children

A Module-Based Telepractice Intervention for Parents of Children with Developmental Disabilities

Subtypes of Aggressive Behavior in Children with Autism in the Context of Emotion Recognition, Hostile Attribution Bias, and Dysfunctional Emotion Regulation

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