Quality of Life Research

Using patient-reported measurement to pave the path towards personalized medicine

• Review

Mirjam A. G. Sprangers, Per Hall, Donald E. Morisky, William E. Narrow, Juan Dapueto

Mindfulness: a systematic review of instruments to measure an emergent patient-reported outcome (PRO)

Taehwan Park, Maryanne Reilly-Spong, Cynthia R. Gross

Understanding our best: eudaimonia’s growing influence in psychology

• Review

Stephen M. Schueller

Guidelines for secondary analysis in search of response shift

Carolyn E. Schwartz, Sara Ahmed, Richard Sawatzky, Tolulope Sajobi, Nancy Mayo, Joel Finkelstein, Lisa Lix, Mathilde G. E. Verdam, Frans J. Oort, Mirjam A. G. Sprangers

Evidence on the global measurement model of the Minnesota Living with Heart Failure Questionnaire

Olatz Garin, Montse Ferrer, Àngels Pont, Ingela Wiklund, Eric Van Ganse, Gemma Vilagut, Josué Almansa, Aida Ribera, Jordi Alonso

Using the EORTC-QLQ-C30 in clinical practice for patient management: identifying scores requiring a clinician’s attention

Claire F. Snyder, Amanda L. Blackford, Toru Okuyama, Tatsuo Akechi, Hiroko Yamashita, Tatsuya Toyama, Michael A. Carducci, Albert W. Wu

Self-rated health and life satisfaction among Canadian adults: associations of perceived weight status versus BMI

Katya M. Herman, Wilma M. Hopman, Mark W. Rosenberg

Erratum to: Self-rated health and life satisfaction among Canadian adults: associations of perceived weight status versus BMI

• Erratum

Katya M. Herman, Wilma M. Hopman, Mark W. Rosenberg

A mixed method exploration of survivorship among Chinese American and non-Hispanic White breast cancer survivors: the role of socioeconomic well-being

Judy Huei-yu Wang, Inez F. Adams, Reginald Tucker-Seeley, Scarlett Lin Gomez, Laura Allen, Ellen Huang, Yiru Wang, Rena J. Pasick

Quality of life and time perspective in inflammatory bowel disease patients

• Original Paper

Vanessa Laguette, Themis Apostolidis, Lionel Dany, Nelly Bellon, Jean-Charles Grimaud, Marie-Claude Lagouanelle-Simeoni

The health-related quality-of-life impact of nocturnal awakenings in the middle-aged and older Finnish population

Saku Väätäinen, Henri Tuomilehto, Jouko Saramies, Jaakko Tuomilehto, Hannu Uusitalo, Esko Hussi, Sirkka Keinänen-Kiukaanniemi, Janne Martikainen

Health-related quality of life and comorbidity among older women veterans in the United States

Claudia Der-Martirosian, Kristina M. Cordasco, Donna L. Washington

Informatively missing quality of life and unmet needs sex data for immigrant and Anglo-Australian cancer patients and survivors

• Brief Communication

Melanie L. Bell, Phyllis N. Butow, David Goldstein

Self-rated health: analysis of distances and transitions between response options

Thomas V. Perneger, Angèle Gayet-Ageron, Delphine S. Courvoisier, Thomas Agoritsas, Stéphane Cullati

Development of a crosswalk for pain interference measured by the BPI and PROMIS pain interference short form

Robert L. Askew, Jiseon Kim, Hyewon Chung, Karon F. Cook, Kurt L. Johnson, Dagmar Amtmann

Pain questionnaire performance in advanced prostate cancer: comparative results from two international clinical trials

Donald W. Robinson Jr., Ning Zhao, Fitzroy Dawkins, Ming Qi, Dennis Revicki

Assessing patient-reported peripheral neuropathy: the reliability and validity of the European Organization for Research and Treatment of Cancer QLQ-CIPN20 Questionnaire

Ellen M. Lavoie Smith, Debra L. Barton, Rui Qin, Preston D. Steen, Neil K. Aaronson, Charles L. Loprinzi

Psychometric evaluation of the National Eye Institute Visual Function Questionnaire and Visual Function Questionnaire Utility Index in patients with non-infectious intermediate and posterior uveitis

Rupali K. Naik, Katharine S. Gries, Anne M. Rentz, Jonathan W. Kowalski, Dennis A. Revicki

Psychometric properties of the Norwegian version of the Audit of Diabetes-Dependent Quality of Life

• Brief Communication

Marjolein M. Iversen, Birgitte Espehaug, Berit Rokne, Anne Haugstvedt, Marit Graue

An assessment of validity and responsiveness of generic measures of health-related quality of life in hearing impairment

• Open Access

Yaling Yang, Louise Longworth, John Brazier

Development of a paper-and-pencil semi-adaptive questionnaire for 5 domains of health-related quality of life (PAT-5D-QOL)

Jacek A. Kopec, Eric C. Sayre, Aileen M. Davis, Elizabeth M. Badley, Michal Abrahamowicz, Jacques Pouchot, Lesley Sherlock, John M. Esdaile

Validation of the Chinese version of the Summated Xerostomia Inventory (SXI)

• Brief Communication

Song-lin He, Jin-hua Wang, Min Li

Examination of the construct validity of the Swedish version of Hospital Anxiety and Depression Scale in breast cancer patients

Fredrik Saboonchi, Agneta Wennman-Larsen, Kristina Alexanderson, Lena-Marie Petersson

Factor analyses of the Hospital Anxiety and Depression Scale: a Bayesian structural equation modeling approach

Ted Chun Tat Fong, Rainbow Tin Hung Ho

An examination of the PROMIS® pediatric instruments to assess mobility in children with cerebral palsy

Anna L. Kratz, Mary D. Slavin, M. J. Mulcahey, Alan M. Jette, David S. Tulsky, Stephen M. Haley

The development and validation of a health-related quality of life questionnaire for pre-school children with a chronic heart disease

M. Niemitz, D. C. M. Seitz, M. Oebels, D. Schranz, H. Hövels-Gürich, M. Hofbeck, R. Kaulitz, C. Galm, F. Berger, N. Nagdymann, B. Stiller, T. Borth-Bruhns, I. Konzag, C. Balmer, L. Goldbeck

Perception of health-related quality of life in children with chronic kidney disease by the patients and their caregivers: Multicentre national study results

• Open Access

Katarzyna Kiliś-Pstrusińska, Anna Medyńska, Irena Bałasz Chmielewska, Ryszard Grenda, Agnieszka Kluska-Jóźwiak, Beata Leszczyńska, Julita Niedomagała, Ilona Olszak-Szot, Monika Miklaszewska, Maria Szczepańska, Marcin Tkaczyk, Agnieszka Urzykowska, Anna Wasilewska, Katarzyna Zachwieja, Maria Zajączkowska, Helena Ziółkowska, Ilona Zagożdżon, Danuta Zwolińska

Utility of the PedsQL™ family impact module: assessing the psychometric properties in a community sample

Gustavo R. Medrano, Kristoffer S. Berlin, W. Hobart Davies

Psychometric properties of the EuroQol Five Dimensional Questionnaire (EQ-5D-3L) in caregivers of autistic children

Rahul Khanna, Krutika Jariwala, John P. Bentley

Self-esteem and life satisfaction in adolescents—gender and age as potential moderators

Unni K. Moksnes, Geir A. Espnes

Quality of life in nursing homes: results of a qualitative resident survey

Liane Schenk, Roger Meyer, Anja Behr, Adelheid Kuhlmey, Martin Holzhausen

What does Cronbach’s alpha tell us about the EQ-5D? A methodological commentary to “Psychometric properties of the EuroQol Five-Dimensional Questionnaire (EQ-5D-3L) in caregivers of autistic children”

• Commentary

Uwe Konerding

Mapping CushingQOL scores to EQ-5D utility values using data from the European Registry on Cushing’s syndrome (ERCUSYN)

• Open Access

X. Badia, M. Roset, E. Valassi, H. Franz, A. Forsythe, S. M. Webb

A reference set of health utilities for long-term survivors of prostate cancer: population-based data from Ontario, Canada

Murray D. Krahn, Karen E. Bremner, Shabbir M. H. Alibhai, Andy Ni, George Tomlinson, Audrey Laporte, Gary Naglie

A comparison of directly elicited and pre-scored preference-based measures of quality of life: the case of adhesive capsulitis

Anthony H. Harris, Joanne Youd, Rachelle Buchbinder

Comparison of direct-measured and derived short form six dimensions (SF-6D) health preference values among chronic hepatitis B patients

Carlos K. H. Wong, Elegance T. P. Lam, Cindy L. K. Lam

Measuring health-related quality of life among adults in Singapore: population norms for the EQ-5D

Edimansyah Abdin, Mythily Subramaniam, Janhavi Ajit Vaingankar, Nan Luo, Siow Ann Chong