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Quality of Life Research
Gepubliceerd in:

01-06-2015

Strategies to improve success of pediatric cancer cooperative group quality of life studies: a report from the Children’s Oncology Group

Auteurs: Puja G. Whitlow, Mae Caparas, Patricia Cullen, Christine Trask, Fiona Schulte, Leanne Embry, Rajaram Nagarajan, Donna L. Johnston, Lillian Sung

Gepubliceerd in: Quality of Life Research | Uitgave 6/2015

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Abstract

Purpose

Quality of life (QoL) has been increasingly emphasized in National Cancer Institute (NCI)-sponsored multisite clinical trials. Little is known about the outcomes of these trials in pediatric cancer. Objectives were to describe the proportion of Children’s Oncology Group (COG) QoL studies that successfully accrued subjects and were analyzed, presented or published.

Methods

We conducted a survey to describe outcomes of COG QoL studies. We included studies that contained at least one QoL assessment and were closed to patient accrual at the time of survey dissemination. Respondents were the investigators most responsible for the QoL aim.

Results

Sixteen studies were included; response rate was 100 %. Nine (56 %) studies were embedded into a cancer treatment trial. Only 3 (19 %) studies accrued their intended sample size. Seven (44 %) studies were analyzed, 9 (56 %) were presented, and 6 (38 %) were published.

Conclusions

NCI-sponsored pediatric QoL studies have high rates of failure to accrue. Many were not analyzed or disseminated. Using these data, strategies have been implemented to improve conduct in future trials. Monitoring of QoL studies is important to maximize the chances of study success.
vorige artikel Thank you to Dennis Revicki
volgende artikel A person-centred analysis of the time-use, daily activities and health-related quality of life of Irish school-going late adolescents
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Literatuur
1.
Adamson, P. C. (2013). The Children’s Oncology Group’s 2013 five year blueprint for research. Pediatric Blood and Cancer, 60, 955–956.PubMedCrossRef
2.
Ward, E., Desantis, C., Robbins, A., et al. (2014). Childhood and adolescent cancer statistics, 2014. CA: A Cancer Journal for Clinicians, 64, 83–103.
3.
Linabery, A. M., & Ross, J. A. (2008). Childhood and adolescent cancer survival in the US by race and ethnicity for the diagnostic period 1975–1999. Cancer, 113, 2575–2596.PubMedCentralPubMedCrossRef
4.
Tomlinson, D., Bartels, U., Gammon, J., et al. (2011). Chemotherapy versus supportive care alone in pediatric palliative care for cancer: Comparing the preferences of parents and health care professionals. CMAJ, 183, E1252–E1258.PubMedCentralPubMedCrossRef
5.
The WHOQOL Group. (1998). The world health organization quality of Life assessment (WHOQOL). Development and psychometric properties. Social Science and Medicine, 46, 1569–1585.CrossRef
6.
Vanhoff, D., Hesser, T., Kelly, K. P., et al. (2013). Facilitating accrual to cancer control and supportive care trials: The clinical research associate perspective. BMC Medical Research Methodology, 13, 154.PubMedCentralPubMedCrossRef
7.
Schoot, R. A., van Ommen, C. H., Caron, H. N., et al. (2012). Accrual in supportive care trials in pediatric oncology, a challenge! Supportive Care in Cancer, 20, 3149–3153.PubMedCentralPubMedCrossRef
8.
Heiney, S.P., Adams, S.A., Cunningham, J.E., et al. (2006). Subject recruitment for cancer control studies in an adverse environment. Cancer Nursing 29: 291–299; quiz 300–291.
9.
Palesh, O., Demark-Wahnefried, W., Mustian, K., et al. (2011). Conducting cancer control and survivorship research via cooperative groups: A report from the American Society of Preventive Oncology. Cancer Epidemiol Biomarkers Prev, 20, 1050–1055.PubMedCentralPubMedCrossRef
10.
Carter, A., Landier, W., Schad, A., et al. (2008). Successful coordination and execution of nontherapeutic studies in a cooperative group setting: Lessons learned from Children’s Oncology Group studies. Cancer Epidemiol Biomarkers Prev, 17, 1665–1673.PubMedCentralPubMedCrossRef
11.
Johnston, D. L., Nagarajan, R., Caparas, M., et al. (2013). Reasons for non-completion of health related quality of life evaluations in pediatric acute myeloid leukemia: A report from the Children’s Oncology Group. PLoS ONE, 8, e74549.PubMedCentralPubMedCrossRef
Metagegevens
Titel
Strategies to improve success of pediatric cancer cooperative group quality of life studies: a report from the Children’s Oncology Group
Auteurs
Puja G. Whitlow
Mae Caparas
Patricia Cullen
Christine Trask
Fiona Schulte
Leanne Embry
Rajaram Nagarajan
Donna L. Johnston
Lillian Sung
Publicatiedatum
01-06-2015
Uitgeverij
Springer International Publishing
Gepubliceerd in
Quality of Life Research / Uitgave 6/2015
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-014-0855-9

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