Skip to main content
Mijn bibliotheek
Shop
Nieuws Boeken Tijdschriften Toetsvragen Web-tv Video Audio
Tips voor Mijn BSL
Inloggen

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

THIM Hogeschool voor Fysiotherapie heeft ervoor gezorgd dat je Mijn BSL eenvoudig en snel kunt raadplegen. Je kunt je links eenvoudig registreren. Met deze gegevens kun je thuis, of waar ook ter wereld toegang krijgen tot Mijn BSL. Heb je een vraag, neem dan contact op met helpdesk@thim.nl.

» Andere revante producten voor THIM studenten en medewerkers.

Registreer

Om ook buiten de locaties van THIM, thuis bijvoorbeeld, van Mijn BSL gebruik te kunnen maken, moet je jezelf eenmalig registreren. Dit kan alleen vanaf een computer op een van de locaties van THIM.

Eenmaal geregistreerd kun je thuis of waar ook ter wereld onbeperkt toegang krijgen tot Mijn BSL.

Login

Als u al geregistreerd bent, hoeft u alleen maar in te loggen om onbeperkt toegang te krijgen tot Mijn BSL.

Inloggen
Top
Journal of Autism and Developmental Disorders
Gepubliceerd in:

04-07-2015 | Original Paper

Support Needs of Families Living with Children with Autism Spectrum Disorder

Auteurs: Billie Margaret Jean Searing, Fiona Graham, Rebecca Grainger

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2015

Log in om toegang te krijgen
share
DELEN

Deel dit onderdeel of sectie (kopieer de link)

  • Optie A:
    Klik op de rechtermuisknop op de link en selecteer de optie “linkadres kopiëren”
  • Optie B:
    Deel de link per e-mail
    Link delen
publish
Publiceer nu

Abstract

This study examined the perceived availability and helpfulness of supports used by caregivers of children with Autism Spectrum Disorder in New Zealand, particularly for caregivers who are Māori, and who live rurally. Caregivers (N = 92) completed the Family Support Scale with comparisons analysed using t tests. Free text comments were invited and analysed using a general inductive approach. More support was perceived as available by Non-Māori than Māori p = 0.03, 95 % CI (0.21, 3.88). Spouses were rated as the most helpful support. Professional helpers were rated as ‘somewhat helpful’. Helpful support emphasised caring, knowledge and accessibility. Ethnic differences in perceptions of support endorse calls for culturally tailored supports. Informal supports are highly valued however professional supports require development to better meet caregiver needs.
vorige artikel The Adult Repetitive Behaviours Questionnaire-2 (RBQ-2A): A Self-Report Measure of Restricted and Repetitive Behaviours
volgende artikel Psychiatric Symptoms in Youth with a History of Autism and Optimal Outcome
Literatuur
Alliston, L. (2007). Principles and practices in Early Intervention: A literature review for the Ministry of Health. Wellington, New Zealand: Ministry of Health.
Arcia, E., Keyes, L., Gallagher, J., & Herrick, H. (1993). National portrait of sociodemographic factors associated with underutilization of services: Relevance to early intervention. Journal of Early Intervention, 17(3), 283–297. doi:10.​1177/​1053815193017003​06.CrossRef
Autism New Zealand. (2011). Respite care: The views of families and whanau of people with ASD. Autism New Zealand.
Benson, P. R. (2012). Network characteristics, perceived social support, and psychological adjustment in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 42(12), 2597–2610. doi:10.​1007/​s10803-012-1517-9.CrossRefPubMed
Bevan-Brown, J. (2004). Māori perspectives of autism spectrum disorder: Report to the Ministry of Education. Wellington, New Zealand: Ministry of Education.
Bevan-Brown, J. (2010). Messages from parents of children with autism spectrum disorder. Kairanga, 11(2), 16–22.
Bevan-Brown, J., Bourke, R., Butler, P., Carroll-Lind, J., Kearney, A., & Mentis, M. (2011). Evaluation of the ‘tips for autism’ professional learning and development programme. Wellington, New Zealand: Massey University.
Birkin, C., Anderson, A., Moore, D., & Seymour, F. (2004). Evaluating the efficacy of parent-focused interventions for Autism: How do we know what will work? Australian Journal of Early Childhood, 29(3), 42–47.
Cain Spannagel, S. A. (2011). The impact of access to services and symptom severity on parenting stress and stress-related growth in parents of children with Autism. (Doctor of Philosophy), Case Western Reserve University.
Crengle, S., Lay-Yee, R., Davis, P., & Pearson, J. (2005). A comparison of Māori and non-Māori patient visits to doctors: The national primary medical care survey (NatMedCa) 2001/2002. Wellington: Ministry of Health.
Creswell, J. W., & Plano Clark, V. L. (2011). Designing and conducting mixed methods research. Thousand Oaks, CA: Sage.
Divan, G., Vajaratkar, V., Desai, M. U., Strik-Lievers, L., & Patel, V. (2012). Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Research, 5(3), 190–200. doi:10.​1002/​aur.​1225.CrossRefPubMed
Dunst, C. J., Jenkins, V., & Trivette, C. M. (1984). Family support scale: Reliability and validity. Journal of Individual, Family, and Community Wellness, 1(4), 45–52.
Dunst, C. J., Trivette, C. M., & Hamby, D. W. (1994). Measuring social support in families with young children with disabilities. In C. J. Dunst, C. M. Trivette, & A. G. Deal (Eds.), Supporting & strengthening families: Methods, strategies and practices (Vol. 1, pp. 152–160). Cambridge: Brookline Books.
Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007). Meta-analysis of family-centred helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews, 13(4), 370–378. doi:10.​1002/​mrdd.​20176.CrossRefPubMed
Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284. doi:10.​1007/​s10803-010-0986-y.CrossRefPubMed
Gill, M. J., & Harris, S. L. (1991). Hardiness and social support as predictors of psychological discomfort in mothers of children with autism. Journal of Autism and Developmental Disorders, 21(4), 407–416. doi:10.​1007/​BF02206867.CrossRefPubMed
Khanna, R., Madhavan, S. S., Smith, M. J., Patrick, J. H., Tworek, C., & Cottrill-Becker, B. (2011). Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41(9), 1214–1227. doi:10.​1007/​s10803-010-1140-6.CrossRefPubMed
Ministries of Health and Education. (2008). New Zealand autism spectrum disorder guideline. New Zealand: Wellington.
Ministry of Health. (2007). Urban-rural health comparisons: Key results of the 2002/03 New Zealand Health Survey. Wellington, New Zealand: Ministry of Health.
Ministry of Health. (2012). The health of New Zealand children 2011/2012: Key findings of the New Zealand health survey. Wellington, New Zealand: Ministry of Health.
Nikora, L., Karapu, R., Hickey, H., & Te Awekotuku, N. (2004). Disabled Māori and disability support options. In University of Waikato & Ministry of Health (Eds.).
Roberts, J., Prior, M., & Trembath, D. (2006). A review of the research to identify the most effective models of practice in early intervention for children with autism spectrum disorders. Australia: Australian Government Department of Families, Housing, Community Services and Indigenous Affairs.CrossRef
Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centred service: A conceptual framework and research review. Physical & Occupational Therapy in Pediatrics, 18(1), 1–20. doi:10.​1080/​J006v18n01_​01.
Sawyer, M. G., Bittman, M., La Greca, A. M., Crettenden, A. D., Harchak, T. F., & Martin, J. (2010). Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40(5), 620–628. doi:10.​1007/​s10803-009-0912-3.CrossRefPubMed
Searing, B. (2014). Support needs of families living with children with autism spectrum disorder in New Zealand (Unpublished Master’s Degree), University of Otago, Dunedin, New Zealand
Statistics New Zealand. (2006). New Zealand: An urban/rural update. New Zealand: Wellington.
Statistics New Zealand. (2013). New Zealand in profile 2013: An overview of New Zealand’s people, economy, and environment. Wellington: Statistics New Zealand.
Metagegevens
Titel
Support Needs of Families Living with Children with Autism Spectrum Disorder
Auteurs
Billie Margaret Jean Searing
Fiona Graham
Rebecca Grainger
Publicatiedatum
04-07-2015
Uitgeverij
Springer US
Gepubliceerd in
Journal of Autism and Developmental Disorders / Uitgave 11/2015
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI
https://doi.org/10.1007/s10803-015-2516-4

Andere artikelen Uitgave 11/2015

Improving Collaborative Play Between Children with Autism Spectrum Disorders and Their Siblings: The Effectiveness of a Robot-Mediated Intervention Based on Lego® Therapy

  • Original Paper

Overactive Pattern Separation Memory Associated with Negative Emotionality in Adults Diagnosed with Autism Spectrum Disorder

  • S.I. : Emotion Regulation and Psychiatric Comorbidity in ASD

Emotional Disclosure Through Journal Writing: Telehealth Intervention for Maternal Stress and Mother–Child Relationships

  • Original Paper

A Qualitative Study of Autism Policy in Canada: Seeking Consensus on Children’s Services

  • Open Access
  • Original Paper

Neural Mechanisms of Emotion Regulation in Autism Spectrum Disorder

  • SI: Emotion Regulation and Psychiatric Comorbidity in ASD

Stoppage in Autism Spectrum Disorders

  • Original Paper