Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

07-04-2020 | Original Paper

The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context

Auteurs: Daniel Shepherd, Jason Landon, Sonja Goedeke, Jake Meads

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2020

Abstract

The underlying mechanisms by which social support exerts its (typically) positive effects on parental wellbeing are still being investigated in the autism spectrum disorder (ASD) context. Parents (n = 674) of a child with ASD responded to questions probing parenting stress, parent psychological health, their child’s ASD symptoms, and the types of social supports they were currently utilising. Hierarchical multiple linear regression analyses examined whether social support moderated or mediated (or neither) the relationships between: (a) parent-rated child ASD symptoms and parenting stress, and (b) parenting stress and parent psychological health. The main findings were that none of the mediating models reached statistical significance, while 7/20 moderation analyses were significant, though significance was dependent upon how social support was operationalised.

vorige artikel The Importance of Getting Kanner’s Account Right in Debates over First Descriptions of Autism

volgende artikel Social Camouflaging in Autistic and Neurotypical Adolescents: A Pilot Study of Differences by Sex and Diagnosis

Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual and Developmental Disability, 34(2), 142–152. https://doi.org/10.1080/13668250902845202.CrossRefPubMed

Baron, R. M., & Kenny, D. A. (1986). The moderator–mediator variable distinction in social psychological research: Conceptual, strategic, and statistical considerations. Journal of Personaility and Social Psychology, 51(6), 1173–1182. https://doi.org/10.1037/0022-3514.51.6.1173.CrossRef

Barroso, N. E., Mendez, L., Graziano, P. A., & Bagner, D. M. (2018). Parenting stress through the lens of different clinical groups: A systematic review and meta-analysis. Journal of Abnormal Child Psychology, 46(3), 449–461. https://doi.org/10.1007/s10802-017-0313-6.CrossRefPubMedPubMedCentral

Benson, P. R. (2012). Network characteristics, perceived social support, and psychological adjustment in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 42(12), 2597–2610. https://doi.org/10.1007/s10803-012-1517-9.CrossRefPubMed

Boswell, D. M. (1969). Personal crises and the mobilization of the social network. In J. C. Mitchell (Ed.), Social networks in urban situations (pp. 245–296). Manchester: Manchester University Press.

Brown, H. K., Ouellette-Kuntz, H., Hunter, D., & Kelley, E. (2010). Assessing need in school-aged children with an autism spectrum disorder. Research in Autism Spectrum Disorders, 4(4), 539–547. https://doi.org/10.1016/j.rasd.2009.12.009.CrossRef

Carlon, S., Carter, M., & Stephenson, J. (2013). A review of declared factors identified by parents of children with autism spectrum disorders (ASD) in making intervention decisions. Research in Autism Spectrum Disorders, 7(2), 369–381. https://doi.org/10.1016/j.rasd.2012.10.009.CrossRef

Center for Disease Control and Prevention. (2019). Autism spectrum disorder. Atlanta, GA: Center for Disease Control and Prevention.

Chin, F., & Hayes, S. C. (2017). Chapter 7—Acceptance and commitment therapy and the cognitive behavioral tradition: assumptions, model, methods, and outcomes. In S. G. Hofmann & G. J. G. Asmundson (Eds.), The science of cognitive behavioral therapy (pp. 155–173). San Diego: Academic Press.CrossRef

Cohen, J. (1988). Statistical power analysis for the behavioral sciences. New York: Routledge.

Cohen, S., & Willis, T. (1985). Stress, social support and the bufering hypothesis. Psychological Bulletin, 98(2), 307–357.CrossRef

Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress and Health, 31(1), 5–12. https://doi.org/10.1002/smi.2513.CrossRefPubMed

Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278–1291. https://doi.org/10.1007/s10803-007-0512-z.CrossRefPubMed

Duarte, C. S., Bordin, I. A., Yazigi, L., & Mooney, J. (2005). Factors associated with stress in mothers of children with autism. Autism, 9(4), 416–427. https://doi.org/10.1177/1362361305056081.CrossRefPubMed

Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274–1284. https://doi.org/10.1007/s10803-010-0986-y.CrossRefPubMed

Folkman, S., & Lazarus, R. S. (1988). Coping as a mediator of emotion. Journal of Personality and Social Psychology, 54(3), 466.CrossRef

Given, B. A., Given, C., & Sherwood, P. (2015). Caregiver burden. In A. Naeim, D. B. Reuben, & P. A. Ganza (Eds.), Management of cancer in the older patient (pp. 241–248). Philadelphia: Elsevier.

Goedeke, S., Shepherd, D., Landon, J., & Taylor, S. (2019). How perceived support relates to child autism symptoms and care-related stress in parents caring for a child with autism. Research in Autism Spectrum Disorders, 60, 36–47. https://doi.org/10.1016/j.rasd.2019.01.005.CrossRef

Goldberg, D. P., & Hillier, V. F. (1979). A scaled version of the general health questionnaire. Psychological Medicine, 9(1), 139–145. https://doi.org/10.1017/S0033291700021644.CrossRef

Hastings, R. P., & Brown, T. (2002). Behavior problems of children with autism, parental self-efficacy, and mental health. American Journal on Mental Retardation, 107(3), 222–232. https://doi.org/10.1352/0895-8017(2002)107%3c0222:BPOCWA%3e2.0.CO;2.CrossRefPubMed

Huang, C.-Y., Yen, H.-C., Tseng, M.-H., Tung, L.-C., Chen, Y.-D., & Chen, K.-L. (2014). Impacts of autistic behaviors, emotional and behavioral problems on parenting stress in caregivers of children with autism. Journal of Autism and Developmental Disorders, 44(6), 1383–1390. https://doi.org/10.1007/s10803-013-2000-y.CrossRefPubMed

Kahn, R. L. (1980). Convoys over the life course: Attachment roles and social support. In P. B. Baltes & O. G. Brim (Eds.), Life-span development and behavior (Vol. 3, pp. 253–286). New York: Academic Press.

Kanne, S. M., Mazurek, M. O., Sikora, D., Bellando, J., Branum-Martin, L., Handen, B., et al. (2014). The autism impact measure (AIM): Initial development of a new tool for treatment outcome measurement. Journal of Autism and Developmental Disorders, 44(1), 168–179. https://doi.org/10.1007/s10803-013-1862-3.CrossRefPubMed

Karst, J. S., & Van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15(3), 247–277. https://doi.org/10.1007/s10567-012-0119-6.CrossRefPubMed

Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact of behaviour problems on caregiver stress in young people with autism spectrum disorders. Journal of Intellectual Disability Research, 50(3), 172–183. https://doi.org/10.1111/j.1365-2788.2005.00732.x.CrossRefPubMed

Levy, S. E., & Hyman, S. L. (2005). Novel treatments for autistic spectrum disorders. Mental Retardation and Developmental Disabilities Research Reviews, 11(2), 131–142. https://doi.org/10.1002/mrdd.20062.CrossRefPubMed

Liu, M., Lambert, C. E., & Lambert, V. A. (2007). Caregiver burden and coping patterns of Chinese parents of a child with a mental illness. International Journal of Mental Health Nursing, 16(2), 86–95. https://doi.org/10.1111/j.1447-0349.2007.00451.x.CrossRefPubMed

MacKinnon, D. P., Lockwood, C. M., Hoffman, J. M., West, S. G., & Sheets, V. (2002). A comparison of methods to test mediation and other intervening variable effects. Psychological Methods, 7(1), 83–104. https://doi.org/10.1037/1082-989X.7.1.83.CrossRefPubMedPubMedCentral

Margolis, L. H., Mayer, M., Clark, K. A., & Farel, A. M. (2009). The relationship between state capacity measures and allocations to children and youth with special needs within the MCH services block grant. Maternal and Child Health Journal, 13(4), 435–444. https://doi.org/10.1007/s10995-008-0378-5.CrossRefPubMed

Marsack, C. N., & Samuel, P. S. (2017). Mediating effects of social support on quality of life for parents of adults with autism. Journal of Autism and Developmental Disorders, 47(8), 2378–2389. https://doi.org/10.1007/s10803-017-3157-6.CrossRefPubMed

Mendoza, T. S., & Dickson, G. L. (2010). Levels of stress among parents who have children diagnosed with autism in the United States-Mexico borders region. The Border Walking Journal, 8, 12–20.

Östberg, M., Hagekull, B., & Hagelin, E. (2007). Stability and prediction of parenting stress. Infant and Child Development, 16(2), 207–223. https://doi.org/10.1002/icd.516.CrossRef

Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of preschool-aged children with developmental disabilities. Journal of Intellectual Disability Research, 51(2), 109–124. https://doi.org/10.1111/j.1365-2788.2006.00829.x.CrossRefPubMed

Pottie, C. G., & Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 855–864. https://doi.org/10.1037/a0013604.CrossRefPubMed

Provencher, H. L., & Mueser, K. T. (1997). Positive and negative symptom behaviors and caregiver burden in the relatives of persons with schizophrenia. Schizophrenia Research, 26(1), 71–80. https://doi.org/10.1016/S0920-9964(97)00043-1.CrossRefPubMed

Rao, P. A., & Beidel, D. C. (2009). The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451. https://doi.org/10.1177/0145445509336427.CrossRefPubMed

Ricard, N., Bonin, J. P., & Ezer, H. (1999). Factors associated with burden in primary caregivers of mentally ill patients. International Journal of Nursing Studies, 36(1), 73–83. https://doi.org/10.1016/S0020-7489(98)00060-1.CrossRefPubMed

Robinson, S., Weiss, J. A., Lunsky, Y., & Ouellette-Kuntz, H. (2016). Informal support and burden among parents of adults with intellectual and/or developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 29(4), 356–365. https://doi.org/10.1111/jar.12184.CrossRefPubMed

Rodrigue, J. R., Morgan, S. B., & Geffken, G. (1990). Families of autistic children: Psychological functioning of mothers. Journal of Clinical Child Psychology, 19(4), 371–379. https://doi.org/10.1207/s15374424jccp1904_9.CrossRef

Singer, G. H., Marquis, J., Powers, L. K., Blanchard, L., Divenere, N., Santelli, B., et al. (1999). A multi-site evaluation of parent to parent programs for parents of children with disabilities. Journal of Early Intervention, 22(3), 217–229. https://doi.org/10.1177/105381519902200305.CrossRef

Searing, B. M. J., Graham, F., & Grainger, R. (2015). Support needs of families living with children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(11), 3693–3702. https://doi.org/10.1007/s10803-015-2516-4.CrossRefPubMed

Shepherd, D., Goedeke, S., Landon, J., & Mead, J. (2020). The types and functions of social supports used by parents caring for a child with autism spectrum disorder. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-019-04359-5.CrossRefPubMed

Shepherd, D., Landon, J., Taylor, S., & Goedeke, S. (2018). Coping and care-related stress in parents of a child with autism spectrum disorder. Anxiety, Stress and Coping, 31(3), 277–290. https://doi.org/10.1080/10615806.2018.1442614.CrossRef

Silva, L. M. T., & Schalock, M. (2012). Autism parenting stress index: Initial psychometric evidence. Journal of Autism and Developmental Disorders, 42(4), 566–574. https://doi.org/10.1007/s10803-011-1274-1.CrossRefPubMed

Tabachnick, B. G., & Fidell, L. S. (2019). Using multivariate statistics (Vol. 7). Boston: Pearson Education.

Yarcheski, A., & Mahon, N. E. (1999). The moderator-mediator role of social support in early adolescents. Western Journal of Nursing Research, 21(5), 685–698. https://doi.org/10.1177/01939459922044126.CrossRefPubMed

Yorke, I., White, P., Weston, A., Rafla, M., Charman, T., & Simonoff, E. (2018). The association between emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents: A systematic review and meta-analysis. Journal of Autism and Developmental Disorders, 48(10), 3393–3415. https://doi.org/10.1007/s10803-018-3605-y.CrossRefPubMedPubMedCentral

Titel: The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context
Auteurs: Daniel Shepherd
Jason Landon
Sonja Goedeke
Jake Meads
Publicatiedatum: 07-04-2020
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 12/2020
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-020-04487-3

Andere artikelen Uitgave 12/2020

Understanding Our Peers with Pablo: Exploring the Merit of an Autism Spectrum Disorder De-stigmatisation Programme Targeting Peers in Irish Early Education Mainstream Settings

Original Paper

Brief Report: Association of Complicated Appendicitis in Children with Autism Spectrum Disorders

Brief Report

SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children—A Feasibility Randomised Controlled Trial

Open Access
Original Paper

The Importance of Getting Kanner’s Account Right in Debates over First Descriptions of Autism

Letter to the Editor

Correction to: Exploring Social Biomarkers in High‑Functioning Adults with Autism and Asperger’s Versus Healthy Controls: A Cross‑Sectional Analysis

Correction

Exploring Social Biomarkers in High-Functioning Adults with Autism and Asperger’s Versus Healthy Controls: A Cross-Sectional Analysis

Open Access
Original Paper

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

Registreer

Login

The Cold Shoulder or a Shoulder to Cry on? Mechanisms of Formal and Informal Social Support in the ASD Parenting Context

Abstract

Andere artikelen Uitgave 12/2020

Understanding Our Peers with Pablo: Exploring the Merit of an Autism Spectrum Disorder De-stigmatisation Programme Targeting Peers in Irish Early Education Mainstream Settings

Brief Report: Association of Complicated Appendicitis in Children with Autism Spectrum Disorders

SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children—A Feasibility Randomised Controlled Trial

The Importance of Getting Kanner’s Account Right in Debates over First Descriptions of Autism

Correction to: Exploring Social Biomarkers in High‑Functioning Adults with Autism and Asperger’s Versus Healthy Controls: A Cross‑Sectional Analysis

Exploring Social Biomarkers in High-Functioning Adults with Autism and Asperger’s Versus Healthy Controls: A Cross-Sectional Analysis

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

Registreer

Login

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Understanding Our Peers with Pablo: Exploring the Merit of an Autism Spectrum Disorder De-stigmatisation Programme Targeting Peers in Irish Early Education Mainstream Settings

Brief Report: Association of Complicated Appendicitis in Children with Autism Spectrum Disorders

SOLACE: A Psychosocial Stigma Protection Intervention to Improve the Mental Health of Parents of Autistic Children—A Feasibility Randomised Controlled Trial

The Importance of Getting Kanner’s Account Right in Debates over First Descriptions of Autism

Correction to: Exploring Social Biomarkers in High‑Functioning Adults with Autism and Asperger’s Versus Healthy Controls: A Cross‑Sectional Analysis

Exploring Social Biomarkers in High-Functioning Adults with Autism and Asperger’s Versus Healthy Controls: A Cross-Sectional Analysis