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Journal of Autism and Developmental Disorders

Gepubliceerd in:

06-04-2022 | Original Paper

Youth and Caregivers’ Perspective on Teens Engaged as Mentors (TEAM): An Inclusive Peer Mentoring Program for Autistic Adolescents

Auteurs: Belinda O’Hagan, Pooja Sonikar, River Grace, Dasha Castillo, Emily Chen, Malhaar Agrawal, Simone Dufresne, Zach Rossetti, Lauren Bartolotti, Shari Krauss

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 6/2023

Abstract

Past studies indicate that many autistic youth benefit from support with developing social relationships, exploring leadership opportunities, and engaging in post-secondary education. Teens Engaged as Mentors (TEAM) is an innovative mentoring program that provides socialization and community engagement opportunities in a safe environment for youth with and without autism. This qualitative study explored how participants and their caregivers perceived participation in TEAM. Stakeholder focus groups were conducted annually from 2016 to 2020 with 16 autistic mentees (ages 9–13), 30 autistic and neurotypical mentors (ages 14–21), and 30 caregivers. Participants reported enjoying TEAM because of increased socialization opportunities, which promoted friendships and openness toward others. Caregivers reported growth in their children’s social skills and confidence throughout their participation.

vorige artikel Using a Brief Intervention to Improve Partner-Focused Conversation in Adolescents with Autism

volgende artikel Spoken Language Change in Children on the Autism Spectrum Receiving Community-Based Interventions

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American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). American Psychiatric Association.CrossRef

Bair-Merritt, M., Rothman, E. F., Holmes, L. G., Ofei, L. M., Palmucci, P., Davis, P. A., Dufresne, S., Ford, M., Gomes, E., Grant, N., Kennebrew, T., King, S., Markow, J., Parker, N., Pearce, I., Picciotto, C., Rhea, C., Rheault, C., & Sanchez, J. O. (2021). Autistic adolescents and young adults: A research agenda. Boston University School of Public Health and Boston Medical Center Patient-Centered Outcomes Research Institute (PCORI) Engagement Award. Retrieved January 3, 2022 from https://www.bmc.org/sites/default/files/Patient_Care/Specialty_Care/Pediatrics%20-%20Autism/PCORI%20Research%20Agenda_V7_FINAL_VERSION_4-12-21.pdf

Bogdan, R. C., & Biklen, S. K. (2004). Qualitative research for education: An introduction to theories and methods (4th ed.). Allyn and Bacon.

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oaCrossRef

Brede, J., Remington, A., Kenny, L., Warren, K., & Pellicano, E. (2017). Excluded from school: Autistic students’ experiences of school exclusion and subsequent re-integration into school. Autism & Developmental Language Impairments, 2, 2396941517737511. https://doi.org/10.1177/2396941517737511CrossRef

Brown, S. E., Takahashi, K., & Roberts, K. D. (2010). Mentoring individuals with disabilities in postsecondary education: A review of the literature. Journal of Postsecondary Education and Disability, 23(2), 98–111.

Carter, E. W., Lane, K. L., Cooney, M., Weir, K., Moss, C. K., & Machalicek, W. (2013). Parent assessments of self-determination importance and performance for students with autism or intellectual disability. American Journal on Intellectual and Developmental Disabilities, 118(1), 16–31. https://doi.org/10.1352/1944-7558-118.1.16CrossRefPubMed

Causton-Theoharis, J., Ashby, C., & Cosier, M. (2009). Islands of loneliness: Exploring social interaction through the autobiographies of individuals with autism. Intellectual and Developmental Disabilities, 47(2), 84–96. https://doi.org/10.1352/1934-9556-47.2.84CrossRefPubMed

Chamberlain, B., Kasari, C., & Rotheram-Fuller, E. (2007). Involvement or isolation? The social networks of children with autism in regular classrooms. Journal of Autism and Developmental Disorders, 37(2), 230–242. https://doi.org/10.1007/s10803-006-0164-4CrossRefPubMed

Collins, C. S., & Stockton, C. M. (2018). The central role of theory in qualitative research. International Journal of Qualitative Methods, 17(1), 1609406918797475. https://doi.org/10.1177/1609406918797475CrossRef

Courchesne, V., Tesfaye, R., Mirenda, P., Nicholas, D., Mitchell, W., Singh, I., Zwaigenbaum, L., & Elsabbagh, M. (2021). Autism voices: A novel method to access first-person perspective of autistic youth. Autism. https://doi.org/10.1177/13623613211042128CrossRefPubMedPubMedCentral

Creswell, J. W. (2013). Qualitative inquiry & research design: Choosing among five approaches. Sage.

Crompton, C. J., Hallett, S., Ropar, D., Flynn, E., & Fletcher-Watson, S. (2020). ‘I never realised everybody felt as happy as I do when I am around autistic people’: A thematic analysis of autistic adults’ relationships with autistic and neurotypical friends and family. Autism, 24(6), 1438–1448. https://doi.org/10.1177/1362361320908976CrossRefPubMedPubMedCentral

Curtin, C., Humphrey, K., Vronsky, K., Mattern, K., Nicastro, S., & Perrin, E. C. (2016). Expanding horizons: A pilot mentoring program linking college/graduate students and teens with ASD. Clinical Pediatrics, 55(2), 150–156. https://doi.org/10.1177/0009922815588821CrossRefPubMed

Gerhardt, P. F., & Lainer, I. (2011). Addressing the needs of adolescents and adults with autism: A crisis on the horizon. Journal of Contemporary Psychotherapy, 41(1), 37–45. https://doi.org/10.1007/s10879-010-9160-2CrossRef

Goldsmith, S. F., & Kelley, E. (2018). Associations between emotion regulation and social impairment in children and adolescents with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(6), 2164–2173. https://doi.org/10.1007/s10803-018-3483-3CrossRefPubMed

Jobe, L. E., & Williams White, S. (2007). Loneliness, social relationships, and a broader autism phenotype in college students. Personality and Individual Differences, 42(8), 1479–1489. https://doi.org/10.1016/j.paid.2006.10.021CrossRef

Kalandadze, T., Norbury, C., Nærland, T., & Næss, K.-A.B. (2018). Figurative language comprehension in individuals with autism spectrum disorder: A meta-analytic review. Autism, 22(2), 99–117. https://doi.org/10.1177/1362361316668652CrossRefPubMed

Kramer, J. M., Ryan, C. T., Moore, R., & Schwartz, A. (2018). Feasibility of electronic peer mentoring for transition-age youth and young adults with intellectual and developmental disabilities: Project Teens making Environment and Activity Modifications. Journal of Applied Research in Intellectual Disabilities, 31(1), e118–e129. https://doi.org/10.1111/jar.12346CrossRefPubMed

Kuder, S. J., & Accardo, A. (2018). What works for college students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 48(3), 722–731. https://doi.org/10.1007/s10803-017-3434-4CrossRefPubMed

Lasgaard, M., Nielsen, A., Eriksen, M. E., & Goossens, L. (2010). Loneliness and social support in adolescent boys with autism spectrum disorders. Journal of Autism and Developmental Disorders, 40(2), 218–226. https://doi.org/10.1007/s10803-009-0851-zCrossRefPubMed

Locke, J., Ishijima, E. H., Kasari, C., & London, N. (2010). Loneliness, friendship quality and the social networks of adolescents with high-functioning autism in an inclusive school setting. Journal of Research in Special Educational Needs, 10(2), 74–81. https://doi.org/10.1111/j.1471-3802.2010.01148.xCrossRef

Lucas, R., & James, A. I. (2018). An evaluation of specialist mentoring for university students with autism spectrum disorders and mental health conditions. Journal of Autism and Developmental Disorders, 48(3), 694–707. https://doi.org/10.1007/s10803-017-3303-1CrossRefPubMed

Matthews, N. L., Orr, B. C., Warriner, K., DeCarlo, M., Sorensen, M., Laflin, J., & Smith, C. J. (2018). Exploring the effectiveness of a peer-mediated model of the PEERS curriculum: A pilot randomized control trial. Journal of Autism and Developmental Disorders, 48(7), 2458–2476. https://doi.org/10.1007/s10803-018-3504-2CrossRefPubMed

Mazurek, M. O. (2014). Loneliness, friendship, and well-being in adults with autism spectrum disorders. Autism, 18(3), 223–232. https://doi.org/10.1177/1362361312474121CrossRefPubMed

Morgan, D. L. (1996). Focus groups. Annual Review of Sociology, 22(1), 129–152. https://doi.org/10.1146/annurev.soc.22.1.129CrossRef

Nayar, K., Voyles, A. C., Kiorpes, L., & Martino, A. D. (2017). Global and local visual processing in autism: An objective assessment approach. Autism Research, 10(8), 1392–1404. https://doi.org/10.1002/aur.1782CrossRefPubMed

Nguyen, L., Jack, S., Ketelaar, M., Rezze, B. D., Soper, A. K., & Gorter, J. W. (2020). Understanding the essential components and experiences of youth with autism spectrum disorders in peer mentorship programmes during the transition to adulthood: A qualitative meta-ethnography. Child: Care, Health and Development, 46(6), 667–681. https://doi.org/10.1111/cch.12804CrossRefPubMed

Norris, J. E., Crane, L., & Maras, K. (2020). Interviewing autistic adults: Adaptations to support recall in police, employment, and healthcare interviews. Autism, 24(6), 1506–1520. https://doi.org/10.1177/1362361320909174CrossRefPubMedPubMedCentral

Piaget, J. (1970). Piaget’s theory. In P. H. Mussen (Ed.), Carmichael’s manual of child psychology (3rd ed., Vol. 1, pp. 703–732). Wiley.

Rotheram-Fuller, E., Kasari, C., Chamberlain, B., & Locke, J. (2010). Social involvement of children with autism spectrum disorders in elementary school classrooms. Journal of Child Psychology and Psychiatry, and Allied Disciplines, 51(11), 1227–1234. https://doi.org/10.1111/j.1469-7610.2010.02289.xCrossRefPubMedPubMedCentral

Sasson, N. J., Faso, D. J., Nugent, J., Lovell, S., Kennedy, D. P., & Grossman, R. B. (2017). Neurotypical peers are less willing to interact with those with autism based on thin slice judgments. Scientific Reports, 7(1), 40700. https://doi.org/10.1038/srep40700CrossRefPubMedPubMedCentral

Shattuck, P. T., Orsmond, G. I., Wagner, M., & Cooper, B. P. (2011). Participation in social activities among adolescents with an autism spectrum disorder. PLoS One San Francisco, 6(11), e27176. https://doi.org/10.1371/journal.pone.0027176CrossRef

Siew, C. T., Mazzucchelli, T. G., Rooney, R., & Girdler, S. (2017). A specialist peer mentoring program for university students on the autism spectrum: A pilot study. PLoS ONE, 12(7), e0180854. https://doi.org/10.1371/journal.pone.0180854CrossRefPubMedPubMedCentral

Stice, L. V., & Lavner, J. A. (2019). Social connectedness and loneliness mediate the association between autistic traits and internalizing symptoms among young adults. Journal of Autism and Developmental Disorders, 49(3), 1096–1110. https://doi.org/10.1007/s10803-018-3812-6CrossRefPubMed

Sword, C., & Hill, K. (2003). Creating mentoring opportunities for youth with disabilities: Issues and suggested strategies. American Rehabilitation, 27(1), 14–17.

Thompson, C., Falkmer, T., Evans, K., Bölte, S., & Girdler, S. (2018). A realist evaluation of peer mentoring support for university students with autism. British Journal of Special Education, 45(4), 412–434. https://doi.org/10.1111/1467-8578.12241CrossRef

van Roekel, E., Scholte, R. H. J., & Didden, R. (2010). Bullying among adolescents with autism spectrum disorders: Prevalence and perception. Journal of Autism and Developmental Disorders, 40(1), 63–73. https://doi.org/10.1007/s10803-009-0832-2CrossRefPubMed

White, S. J. (2013). The triple I hypothesis: Taking another(‘s) perspective on executive dysfunction in autism. Journal of Autism and Developmental Disorders, 43(1), 114–122. https://doi.org/10.1007/s10803-012-1550-8CrossRefPubMed

White, S. W., & Roberson-Nay, R. (2009). Anxiety, social deficits, and loneliness in youth with autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(7), 1006–1013. https://doi.org/10.1007/s10803-009-0713-8CrossRefPubMed

Titel: Youth and Caregivers’ Perspective on Teens Engaged as Mentors (TEAM): An Inclusive Peer Mentoring Program for Autistic Adolescents
Auteurs: Belinda O’Hagan
Pooja Sonikar
River Grace
Dasha Castillo
Emily Chen
Malhaar Agrawal
Simone Dufresne
Zach Rossetti
Lauren Bartolotti
Shari Krauss
Publicatiedatum: 06-04-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 6/2023
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05543-w

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Youth and Caregivers’ Perspective on Teens Engaged as Mentors (TEAM): An Inclusive Peer Mentoring Program for Autistic Adolescents

Abstract

Andere artikelen Uitgave 6/2023

Measuring Changes in Social Skills Throughout an Intervention Program for Children with ASD, Contributions from Polar Coordinate Analysis

Letter to the Editor Concerning “Evolution and Medical Implications of Neurodiversity: Where Must We Go?”

Eliciting Expressions of Emotion: An Exploratory Analysis of Alexithymia in Adults with Autism Utilising the APRQ

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Using a Brief Intervention to Improve Partner-Focused Conversation in Adolescents with Autism

Parent-reported Early Atypical Development and Age of Diagnosis for Children with Co-occurring Autism and ADHD

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

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Measuring Changes in Social Skills Throughout an Intervention Program for Children with ASD, Contributions from Polar Coordinate Analysis

Letter to the Editor Concerning “Evolution and Medical Implications of Neurodiversity: Where Must We Go?”

Eliciting Expressions of Emotion: An Exploratory Analysis of Alexithymia in Adults with Autism Utilising the APRQ

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