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Journal of Autism and Developmental Disorders

Gepubliceerd in:

16-05-2022 | S.I. :Expanding Telehealth Opportunities in Neurodevelopmental Disorders

A Distance-Delivered Social Skills Program for Young Adults with Williams Syndrome: Evaluating Feasibility and Preliminary Efficacy

Auteurs: Marisa H. Fisher, Rebecca R. Kammes, Rhonda S. Black, Kristin Houck, Katie Cwiakala

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 12/2022

Abstract

Adults with Williams syndrome (WS) display hypersocial behaviors and experience social skills deficits. To improve social outcomes, we evaluated the feasibility, acceptability, and preliminary efficacy of an 8-week distance-delivered social skills program for adults with WS. Sessions were offered twice a week for 90 min. Twenty-four adults with WS were assigned to an intervention or waitlist control group. Outcomes were assessed through interviews and surveys with adults with WS, parents, and facilitators. The intervention was rated as acceptable and feasible by all. Parents rated adults with WS as displaying significant improvements in social skills; yet ratings by adults with WS did not change. Adults also displayed increased social skills knowledge following participation. Implications for practice and future research are discussed.

vorige artikel Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism

volgende artikel A Module-Based Telepractice Intervention for Parents of Children with Developmental Disabilities

Buron, K. D. (2007). A 5 Is Against the Law! Autism Asperger Publishing Co. https://www.socialthinking.com/Products/5-is-against-law

Chafouleas, S. M., Briesch, A. M., Neugebauer, S. R., & Riley-Tillman, T. C. (2011). Usage Rating Profile–Intervention (Revised). University of Connecticut

Cheung, P. P. P., Siu, A. M. H., & Brown, T. (2017). Measuring social skills of children and adolescents in a Chinese population: Preliminary evidence on the reliability and validity of the translated Chinese version of the Social Skills Improvement System-Rating Scales (SSIS-RS-C). Research in Developmental Disabilities, 60, 187–197. https://doi.org/10.1016/j.ridd.2016.11.019CrossRefPubMed

Cohen, J. (1988). Statistical power analysis for the social sciences (2nd ed.). Lawrence Erlbaum Associates, Publishers

Davies, M., Howlin, P., & Udwin, O. (1998). Adults with Williams syndrome: Preliminary study of social, emotional and behavioural difficulties. The British Journal of Psychiatry, 172(3), 273–276. https://doi.org/10.1192/bjp.172.3.273CrossRefPubMed

Doyle, T. F., Bellugi, U., Korenberg, J. R., & Graham, J. (2004). Everybody in the world is my friend”: Hypersociability in young children with Williams syndrome. American Journal of Medical Genetics, 124A(3), 263–273. https://doi.org/10.1002/ajmg.a.20416CrossRefPubMed

Elison, S., Stinton, C., & Howlin, P. (2010). Health and social outcomes in adults with Williams syndrome: Findings from cross-sectional and longitudinal cohorts. Research in Developmental Disabilities, 31(2), 587–599. https://doi.org/10.1016/j.ridd.2009.12.013CrossRefPubMed

Emerson, E., Fortune, N., Llewellyn, G., & Stancliffe, R. (2021). Loneliness, social support, social isolation and wellbeing among working age adults with and without disability: Cross-sectional study. Disability and Health Journal, 14(1), 100965. https://doi.org/10.1016/j.dhjo.2020.100965CrossRefPubMed

Fisher, M. H., Josol, C. K., & Shivers, C. M. (2020a). An examination of social skills, friendship quality, and loneliness for adults with Williams syndrome. Journal of Autism and Developmental Disorders, 50(10), 3649–3660. https://doi.org/10.1007/s10803-020-04416-4CrossRefPubMed

Fisher, M. H., Lense, M. D., & Dykens, E. M. (2016). Longitudinal trajectories of intellectual and adaptive functioning in adolescents and adults with Williams syndrome: Functioning of Adults with WS. Journal of Intellectual Disability Research, 60(10), 920–932. https://doi.org/10.1111/jir.12303CrossRefPubMed

Fisher, M. H., Lough, E., Griffin, M. M., & Lane, L. A. (2017). Experiences of bullying for individuals with Williams syndrome. Journal of Mental Health Research in Intellectual Disabilities, 10(2), 108–125. https://doi.org/10.1080/19315864.2016.1278289CrossRef

Fisher, M. H., Mello, M. P., & Dykens, E. M. (2014). Who reports it best? A comparison between parent-report, self-report, and the real life social behaviors of adults with Williams syndrome. Research in Developmental Disabilities, 35(12), 3276–3284. https://doi.org/10.1016/j.ridd.2014.08.011CrossRefPubMedPubMedCentral

Fisher, M. H., & Morin, L. (2017). Addressing social skills deficits in adults with Williams syndrome. Research in Developmental Disabilities, 71, 77–87. https://doi.org/10.1016/j.ridd.2017.10.008CrossRefPubMed

Fisher, M. H., Moskowitz, A. L., & Hodapp, R. M. (2013). Differences in social vulnerability among individuals with autism spectrum disorder, Williams syndrome, and Down syndrome. Research in Autism Spectrum Disorders, 7(8), 931–937. https://doi.org/10.1016/j.rasd.2013.04.009CrossRefPubMedPubMedCentral

Fisher, M. H., Shivers, C. M., & Josol, C. K. (2020b). Psychometric properties and utility of the Social Vulnerability Questionnaire for individuals with intellectual and developmental disabilities. Journal of Autism and Developmental Disorders, 50(7), 2348–2359. https://doi.org/10.1007/s10803-018-3636-4CrossRefPubMed

Gilmore, L., & Cuskelly, M. (2014). Vulnerability to loneliness in people with intellectual disability: An explanatory model. Journal of Policy and Practice in Intellectual Disabilities, 11(3), 192–199. https://doi.org/10.1111/jppi.12089CrossRef

Gosch, A., & Pankau, R. (1997). Personality characteristics and behaviour problems in individuals of different ages with Williams syndrome. Developmental Medicine & Child Neurology, 39(8), 527–533. https://doi.org/10.1111/j.1469-8749.1997.tb07481.xCrossRef

Gresham, F., & Elliot, S. N. (2008). Social Skills Improvement System (SSIS) Rating Scales. Pearson

Gresham, F. M., Sugai, G., & Horner, R. H. (2001). Interpreting outcomes of social skills training for students with high-incidence disabilities. Exceptional Children, 67(3), 331–344. https://doi.org/10.1177/001440290106700303CrossRef

Hepburn, S. L., Blakeley-Smith, A., Wolff, B., & Reaven, J. A. (2016). Telehealth delivery of cognitive-behavioral intervention to youth with autism spectrum disorder and anxiety: A pilot study. Autism, 20(2), 207–218. https://doi.org/10.1177/1362361315575164

Hillier, L. W., Fulton, R. S., Fulton, L. A., Graves, T. A., Pepin, K. H., Wagner-McPherson, C. … Wilson, R. K. (2003). The DNA sequence of human chromosome 7. Nature, 424(6945), 157–164. https://doi.org/10.1038/nature01782CrossRefPubMed

Järvinen, A., Korenberg, J. R., & Bellugi, U. (2013). The social phenotype of Williams syndrome. Current Opinion in Neurobiology, 23(3), 414–422. https://doi.org/10.1016/j.conb.2012.12.006CrossRefPubMedPubMedCentral

Järvinen, A., Ng, R., & Bellugi, U. (2015). Autonomic response to approachability characteristics, approach behavior, and social functioning in Williams syndrome. Neuropsychologia, 78, 159–170. https://doi.org/10.1016/j.neuropsychologia.2015.10.012CrossRefPubMedPubMedCentral

Järvinen-Pasley, A., Adolphs, R., Yam, A., Hill, K. J., Grichanik, M., Reilly, J. … Bellugi, U. (2010). Affiliative behavior in Williams syndrome: Social perception and real-life social behavior. Neuropsychologia, 48(7), 2110–2119. https://doi.org/10.1016/j.neuropsychologia.2010.03.032CrossRefPubMedPubMedCentral

Jawaid, A., Riby, D. M., Owens, J., White, S. W., Tarar, T., & Schulz, P. E. (2012). ‘Too withdrawn’ or ‘too friendly’: Considering social vulnerability in two neuro-developmental disorders. Journal of Intellectual Disability Research, 56(4), 335–350. https://doi.org/10.1111/j.1365-2788.2011.01452.xCrossRefPubMed

Jones, W., Bellugi, U., Lai, Z., Chiles, M., Reilly, J., Lincoln, A., & Adolphs, R. (2000). II. Hypersociability in Williams Syndrome. Journal of Cognitive Neuroscience, 12(Supplement 1), 30–46. https://doi.org/10.1162/089892900561968CrossRefPubMed

Kaufman, A., & Kaufman, N. (2004). Kaufman Brief Intelligence Test (2nd ed.).). American Guidance Service

Klein-Tasman, B. P., Li-Barber, K. T., & Magargee, E. T. (2011). Honing in on the social phenotype in Williams syndrome using multiple measures and multiple raters. Journal of Autism and Developmental Disorders, 41(3), 341–351. https://doi.org/10.1007/s10803-010-1060-5CrossRefPubMedPubMedCentral

Klein-Tasman, B. P., Young, B. N., Levine, K., Rivera, K., Miecielica, E. J., Yund, B. D., & French, S. E. (2021). Acceptability and effectiveness of humor- and play-Infused exposure therapy for fears in Williams syndrome. Evidence-Based Practice in Child and Adolescent Mental Health, 1–18. https://doi.org/10.1080/23794925.2021.1950080

Laugeson, E. (2017). PEERS® for Young Adults: Social Skills Training for Adults with Autism Spectrum Disorder and Other Social Challenges. Routledge. https://doi.org/10.4324/9781315297057

Laugeson, E. A., Frankel, F., Mogil, C., & Dillon, A. R. (2009). Parent-assisted social skills training to improve friendships in teens with autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(4), 596–606. https://doi.org/10.1007/s10803-008-0664-5CrossRefPubMed

Lough, E., & Fisher, M. H. (2016). Parent and self-report ratings on the perceived levels of social vulnerability of adults with Williams syndrome. Journal of Autism and Developmental Disorders, 46(11), 3424–3433. https://doi.org/10.1007/s10803-016-2885-3CrossRefPubMed

Lough, E., Flynn, E., & Riby, D. M. (2016). Personal space regulation in Williams syndrome: The effect of familiarity. Journal of Autism and Developmental Disorders, 46(10), 3207–3215. https://doi.org/10.1007/s10803-016-2864-8CrossRefPubMed

Martens, M. A., Wilson, S. J., & Reutens, D. C. (2008). Research Review: Williams syndrome: A critical review of the cognitive, behavioral, and neuroanatomical phenotype. Journal of Child Psychology and Psychiatry, 49(6), 576–608. https://doi.org/10.1111/j.1469-7610.2008.01887.xCrossRefPubMed

Merrell, K. W. (2001). Assessment of children’s social skills: Recent developments, best practices, and new directions. Exceptionality, 9(1–2), 3–18. https://doi.org/10.1080/09362835.2001.9666988CrossRef

Mervis, C. B., & Klein-Tasman, B. P. (2000). Williams syndrome: Cognition, personality, and adaptive behavior. Mental Retardation and Developmental Disabilities Research Reviews, 6(2), 148–158. https://doi.org/10.1002/1098-2779(2000)6:2%3C148::AID-MRDD10%3E3.0.CO;2-TCrossRefPubMed

Mervis, C. B., Morris, C. A., Klein-Tasman, B. P., Bertrand, J., Kwitny, S., Appelbaum, L. G., & Rice, C. E. (2003). Attentional characteristics of infants and toddlers with Williams syndrome during triadic interactions. Developmental Neuropsychology, 23(1–2), 243–268. https://doi.org/10.1080/87565641.2003.9651894CrossRefPubMed

Petroutsou, A., Hassiotis, A., & Afia, A. (2018). Loneliness in people with intellectual and developmental disorders across the lifespan: A systematic review of prevalence and interventions. Journal of Applied Research in Intellectual Disabilities, 31(5), 643–658. https://doi.org/10.1111/jar.12432CrossRef

Pober, B., R (2010). Williams–Beuren Syndrome. New England Journal of Medicine, 362, 239–252CrossRefPubMed

R Core Team. (2021). R: A language and environment for statistical computing. R Foundation for Statistical Computing. https://www.R-project.org/

Rispoli, M., Machalicek, W. (2020). Advances in Telehealth and Behavioral Assessment and Intervention in Education: Introduction to the Special Issue. J Behav Educ 29, 189–194. https://doi.org/10.1007/s10864-020-09383-5

Scott, H. M., & Havercamp, S. M. (2014). Mental health for people with intellectual disability: The impact of stress and social support. American Journal on Intellectual and Developmental Disabilities, 119(6), 552–564. https://doi.org/10.1352/1944-7558-119.6.552CrossRefPubMed

Seltzer, M. M., & Li, L. W. (1996). The transitions of caregiving: Subjective and objective definitions. The Gerontologist, 36(5), 614–626. https://doi.org/10.1093/geront/36.5.614CrossRefPubMed

Soares, E. E., Bausback, K., Beard, C. L., Higinbotham, M., Bunge, E. L., & Gengoux, G. W. (2021). Social skills training for autism spectrum disorder: A meta-analysis of in-person and technological interventions. Journal of Technology in Behavioral Science, 6(1), 166–180. https://doi.org/10.1007/s41347-020-00177-0CrossRefPubMed

Stancliffe, R. J., Wilson, N. J., Bigby, C., Balandin, S., & Craig, D. (2014). Responsiveness to self-report questions about loneliness: A comparison of mainstream and intellectual disability-specific instruments: Responsiveness to self-report questions. Journal of Intellectual Disability Research, 58(5), 399–405. https://doi.org/10.1111/jir.12024CrossRefPubMed

Sullivan, K., Winner, E., & Tager-Flusberg, H. (2003). Can adolescents With Williams syndrome tell the difference between lies and jokes? Developmental Neuropsychology, 23(1–2), 85–103. https://doi.org/10.1080/87565641.2003.9651888CrossRefPubMed

Sung, C., Connor, A., Chen, J., Lin, C. C., Kuo, H. J., & Chun, J. (2019). Development, feasibility, and preliminary efficacy of an employment-related social skills intervention for young adults with high-functioning autism. Autism, 23(6), 1542–1553. https://doi.org/10.1177/1362361318801345CrossRefPubMed

Sutherland, R., Trembath, D., & Roberts, J. (2018). Telehealth and autism: A systematic search and review of the literature. International journal of speech-language pathology, 20(3), 324–336. https://doi.org/10.1080/17549507.2018.1465123

Thurman, A. J., & Fisher, M. H. (2015). The Williams syndrome social phenotype. In International Review of Research in Developmental Disabilities (Vol. 49, pp. 191–227). Elsevier. https://doi.org/10.1016/bs.irrdd.2015.06.002

Van der Fluit, F., Gaffrey, M., & Klein-Tasman, B. (2012). Social sognition in Williams syndrome: Relations between performance on the Social Attribution Task and cognitive and behavioral characteristics. Frontiers in Psychology, 3, 197. https://doi.org/10.3389/fpsyg.2012.00197CrossRefPubMedPubMedCentral

Walker-Hirsch, L., Champagne, M., & Stanfield, J. (2020). The Circles® Curriculum. James Stanfield Co., Inc. https://stanfield.com/product/circles-curriculum-bundle-w1004-38/

Walsh, E., Holloway, J., Lydon, H., McGrath, A., & Cunningham, T. (2019). An exploration of the performance and generalization outcomes of a social skills intervention for adults with autism and Iintellectual disabilities. Advances in Neurodevelopmental Disorders, 3(4), 372–385. https://doi.org/10.1007/s41252-019-00125-xCrossRef

Titel: A Distance-Delivered Social Skills Program for Young Adults with Williams Syndrome: Evaluating Feasibility and Preliminary Efficacy
Auteurs: Marisa H. Fisher
Rebecca R. Kammes
Rhonda S. Black
Kristin Houck
Katie Cwiakala
Publicatiedatum: 16-05-2022
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 12/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-022-05501-6

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A Distance-Delivered Social Skills Program for Young Adults with Williams Syndrome: Evaluating Feasibility and Preliminary Efficacy

Abstract

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