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Gepubliceerd in:

01-05-2010 | Commentary

Healthcare apartheid and quality of life for people with disabilities

Auteur: Margaret A. Nosek

Gepubliceerd in: Quality of Life Research | Uitgave 4/2010

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Extract

The sizzling debate on healthcare reform has very little to do with me as a person with a significant physical disability, yet it fuels the fire in my belly. I am well insured because I work and supposedly have access to some of the best healthcare in the world, yet I continue to receive, and suffer from, some services that are second-class for several reasons. Our current system is best prepared to deal with acute conditions; those of us with multiple chronic conditions are mostly left on our own to manage a bevy of specialists, each with their restricted, though extensive, knowledge and limitations in their practice. Trying to find a generalist who has knowledge of wellness in the context of disability is like trying to find a tofu burger at a Texas barbecue. There is nothing in the current system of medical education that prepares physicians on how to keep people like me well. As a result, when I go to see my internist with concerns about a seemingly common problem, for example, stomach pain and fatigue, it’s just so easy for her to say “That’s to be expected with such an extensive disability.” Aside from being an easy out, disability can mask possibly serious symptoms. The system lacks incentives to look deeper into a seemingly simple but potentially complex problem and consult with my other specialists to rule out, identify, and treat. …
Literatuur
1.
go back to reference Nosek, M. A., & Howland, C. A. (1997). Breast and cervical cancer screening among women with physical disabilities. Archives of Physical Medicine and Rehabilitation, 78(12, Suppl. 5), S39–S44.CrossRefPubMed Nosek, M. A., & Howland, C. A. (1997). Breast and cervical cancer screening among women with physical disabilities. Archives of Physical Medicine and Rehabilitation, 78(12, Suppl. 5), S39–S44.CrossRefPubMed
2.
go back to reference Iezzoni, L. I., & O’Day, B. L. (2006). More than ramps: A guide to improving health care quality and access for people with disabilities. New York: Oxford University Press. Iezzoni, L. I., & O’Day, B. L. (2006). More than ramps: A guide to improving health care quality and access for people with disabilities. New York: Oxford University Press.
3.
5.
go back to reference Woolhandler, S., Campbell, T., & Himmelstein, D. U. (2003). Costs of health administration in the U.S. and Canada. The New England Journal of Medicine, 349(8), 768–775.CrossRefPubMed Woolhandler, S., Campbell, T., & Himmelstein, D. U. (2003). Costs of health administration in the U.S. and Canada. The New England Journal of Medicine, 349(8), 768–775.CrossRefPubMed
6.
go back to reference Lasser, K. E., Himmelstein, D. U., & Woolhandler, S. (2006). Access to care, health status, and health disparities in the United States and Canada: Results of a cross-national population-based survey. American Journal of Public Health, 96(7), 1300–1307.CrossRefPubMed Lasser, K. E., Himmelstein, D. U., & Woolhandler, S. (2006). Access to care, health status, and health disparities in the United States and Canada: Results of a cross-national population-based survey. American Journal of Public Health, 96(7), 1300–1307.CrossRefPubMed
Metagegevens
Titel
Healthcare apartheid and quality of life for people with disabilities
Auteur
Margaret A. Nosek
Publicatiedatum
01-05-2010
Uitgeverij
Springer Netherlands
Gepubliceerd in
Quality of Life Research / Uitgave 4/2010
Print ISSN: 0962-9343
Elektronisch ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9607-7