Cancer is one of the leading causes of death and continues to impact the lives of millions worldwide profoundly. Historically, the primary focus of cancer treatment has been overall survival or progression-free survival [ 1 ]. However …

Serious injuries or illnesses can severely compromise one’s quality of life, increase the strains on one’s caregivers and put one at high risk of death [ 1 ]. Such health conditions, whether chronic or acute, often require immediate treatment as an …

Approximately 3,700 ostomy surgeries are performed annually in Norway [ 1 ] due to conditions such as cancer, inflammatory bowel diseases (IBD), congenital abnormalities, and several other diagnoses [ 2 ]. An ostomy diverts urine or faeces to an …

Health-related quality of life (HRQoL) is an important outcome of health care, reflecting individuals’ subjective evaluations of their health [ 1 , 2 ]. Measuring HRQoL is crucial for understanding patient health [ 1 , 3 ] and evaluating healthcare …

Kinesiophobia (fear of movement) refers to the excessive and irrational fear of exercise or physical activity(PA) due to the perceived risk of injury or re-injury [ 1 ]. The fear may lead to PA avoidance, resulting in deconditioning, muscle …

The rising life expectancy, mostly driven by advancements in medical technology, is contributing to a growing global population of older adults aged 65 years and over [ 1 , 2 ]. By 2066, the proportion of Australians aged 65 years or over is …

Chronic conditions are long-lasting and persistent medical conditions that impact a person’s health-related quality of life (HRQL) [ 1 ] and are responsible for 74% of all deaths globally [ 2 ].

Hypertension, a major contributor to non-communicable diseases (NCDs), is driving a public health crisis in Bangladesh, exacerbating conditions such as cardiovascular diseases, chronic kidney disease, and more [ 1 ]. These conditions collectively …

Patient-reported outcome measures are increasingly collected in clinical settings for multiple purposes, including assessing the efficacy of new interventions, comparing population groups, assessing the quality of care delivered to patients, and …

Pediatric research and clinical care focus on measuring, preventing, or treating disease or other negative outcomes. Measuring and promoting positive health outcomes are increasingly important, especially in children with physical …

We-disease appraisal refers to viewing the illness as a shared experience within the relationship [ 10 ]. Berg and Upchurch [ 10 ] proposed that viewing the illness as “ours” rather than “mine” or “yours” can optimize the couple’s ability to …

The Patient-Reported Outcomes Measurement Information System (PROMIS) was initiated and funded by the National Institutes of Health (NIH) [ 1 ] to advance the science of patient-reported outcomes. The PROMIS pediatric project has specifically …

Quality of life (QoL) encompasses functioning (i.e., role performance), capacity to engage in activities, satisfaction, and material indicators across multiple domains including family, social interactions, work, and physical health [ 1 ]. Among US …

Patient reported outcome measures (PROMs) now play a significant role in randomized control trials (RCTs) providing the basis for efficacy or safety endpoints. Most PROM data is quantitative and is summarized at the group level. Whilst PROM data …

Bariatric metabolic surgery (BMS) is an effective treatment method for severe obesity, leading to substantial weight loss and amelioration or even complete resolution of obesity-related medical conditions such as cardiovascular disease and …

Developmental cascades theory [ 1 ] proposes that functioning within and across domains, levels, and systems is developmentally intertwined, and that specific functions and behaviours ‘spread’ over time into other functions and behaviours through …

This study is essential as it addresses the growing concern over health literacy, a crucial factor that influences health outcomes and disparities. Despite the importance of health literacy, there is limited understanding of how different sources …

A healthy ocular surface is essential for clear vision, comfort, and prevention of various eye disorders. The ocular surface is covered by a thin fluid layer, the tear film, which lubricates, protects, and supplies nutrients and optical clarity …

Involving patients in creating tools that measure their health outcomes is important for capturing their views accurately. However, we know little about how much patients contributed to the development of these tools for hip or knee replacement …