Top

Journal of Autism and Developmental Disorders

Gepubliceerd in:

05-11-2021 | Original Paper

Feelings of Loneliness and Social Dissatisfaction in Siblings of Children with Autism Spectrum Disorders: The Role of Birth Order and Perceived Social Support

Auteurs: Evangelia Koukouriki, Evangelini Athanasopoulou, Elias Andreoulakis

Gepubliceerd in: Journal of Autism and Developmental Disorders | Uitgave 11/2022

Abstract

Loneliness has been associated with several adverse psychosocial outcomes in childhood and adolescence. The present study aimed to investigate feelings of loneliness and social dissatisfaction in school-aged typically-developing (TD) siblings of children with an autism spectrum disorder (ASD). For this purpose, 118 siblings of children with ASD and 115 siblings of TD children and one of their parents participated in this study. Siblings of ASD-children reported higher levels of loneliness and social dissatisfaction than the controls. The hierarchical multiple regressions performed revealed that those feelings were inversely associated with being the first-born and with specific aspects of social support as perceived by the parent. The younger siblings of ASD-children seem to be in need of certain interventions beyond social support.

vorige artikel Serum Vitamin D, Folate and Fatty Acid Levels in Children with Autism Spectrum Disorders: A Systematic Review and Meta-Analysis

volgende artikel Characterising the Early Presentation of Motor Difficulties in Autistic Children

Alleen toegankelijk voor geautoriseerde gebruikers

Achenbach, T. M. (1991). Manual for the child behavior checklist 4–18 and 1991 profile. University of Vermont Department of Psychiatry.

Adler, A. (1998). What life could mean to you. Hazelden Publishing.

Alon, R. (2019). Social support and post-crisis growth among mothers of children with autism spectrum disorder and mothers of children with down syndrome. Research in Developmental Disabilities, 90, 22–30.PubMedCrossRef

Asher, S. R., Hymel, S., & Renshaw, R. D. (1984). Loneliness in children. Child Development, 55, 1456–1464.CrossRef

Asher, S. R., & Wheeler, V. A. (1985). Children’s loneliness: A comparison of rejected and neglected peer status. Journal of Consulting and Clinical Psychology, 53, 500–505.PubMedCrossRef

Attwood, T. (2007). The complete guide to Asperger’s syndrome. Jessica Kingsley Publishers.

Bågenholm, A., & Gillberg, C. (1991). Psychosocial effects on siblings of children with autism and mental retardation: A population-based study. Journal of Mental Deficiency Research, 35, 291–307.PubMed

Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson-Rosenberg, C., White, T., Durkin, M. S., Imm, P., Nikolaou, L., Yeargin-Allsopp, M., Lee, L.-C., Harrington, R., Lopez, M., Fitzgerald, R. T., Hewitt, A., … Dowling, N. F. (2018). Prevalence of autism spectrum disorder among children aged 8 years—Autism and developmental disabilities monitoring network, 11 sites, United States, 2014. Morbidity and mortality weekly report. Surveillance summaries (Washington, D.C: 2002), 67(6), 1–23.

Bauminger, N., & Kasari, C. (2000). Loneliness and friendship in high-functioning children with autism. Child Development, 71, 447–456.PubMedCrossRef

Bauminger, N., Shulman, C., & Agam, G. (2003). Peer interaction and loneliness in high-functioning children with autism. Journal of Autism and Developmental Disorders, 33, 489–507.PubMedCrossRef

Benderix, Y., & Sivberg, B. (2007). Siblings’ experiences of having a brother or sister with autism and mental retardation: A case study of 14 siblings from five families. Journal of Pediatric Nursing, 22(5), 410–418.PubMedCrossRef

Benner, A. D. (2011). Latino adolescents’ loneliness, academic performance, and the buffering nature of friendships. Journal of. Youth and Adolescent, 40, 556–567.CrossRef

Bitsika, V., Sharpley, C. F., & Mailli, R. (2015). The influence of gender, age, psychological resilience and family interaction factors upon anxiety and depression in non-autism spectrum disorder siblings of children with an autism spectrum disorder. British Journal of Guidance & Counselling, 43(2), 216–228.CrossRef

Black, S. E., Devereux, P. J., & Salvanes, K. G. (2005). The more the merrier? The effect of family size and birth order on children’s education. Journal of Population Economics, 120(2), 669–700.

Boivin, M., Hymel, S., & Bukowski, W. M. (1995). The roles of social withdrawal, peer rejection, and victimization by peers in predicting loneliness and depressed mood in childhood. Development and Psychopathology, 7, 765–785.CrossRef

Bonesrønning, H., & Massih, S. S. (2011). Birth order effects on young students’ academic achievement. The Journal of Socio-Economics, 40(6), 824–832.CrossRef

Booth, A. L., & Hiau, J. K. (2009). Birth order matters: The effect of family size on educational attainment. The Quarterly Journal of Population Economics, 22, 367–397.CrossRef

Canty-Mitchell, J., & Zimet, G. D. (2000). Psychometric properties of the Multidimensional Scale of Perceived Social Support in urban adolescents. American Journal of Community Psychology, 28(3), 91–400.CrossRef

Cebula, K. R. (2012). Applied behavior analysis programs for autism: Sibling psychosocial adjustment during and following intervention use. Journal of Autism and Developmental Disorders, 42, 847–862.PubMedCrossRef

Chamberlain, B., Kasari, C., & Rotheram-Fuller, E. (2007). Involvement or isolation? The social networks of children with autism in regular classrooms. Journal of Autism and Developmental Disorders, 37, 230–242.PubMedCrossRef

Chan, G. W. L., & Goh, E. C. L. (2014). ‘My parents told us that they will always treat my brother differently because he is autistic’—Are siblings of autistic children the forgotten ones? Journal of Social Work Practice, 28(2), 155–171.CrossRef

Chien, Y. L., Tu, E. N., & Gau, S. S. F. (2017). School functions in unaffected siblings of youths with autism spectrum disorders. Journal of Autism and Developmental Disorders, 47, 3059–3071.PubMedCrossRef

Chin, R., & Lee, B. Y. (2008). Analysis of data. Academic Press Elsevier Inc.CrossRef

Chung, L., Burke, M. M., Arnold, C. K., & Owen, A. (2019). Comparing differences in support needs as perceived by parents of adult offspring with down syndrome, autism spectrum disorder and cerebral palsy. Journal of Applied Research in Intellectual Disabilities, 32(1), 194–205.CrossRef

Cicirelli, V. G. (1995). Sibling relationships across the life span. Plenum Press.CrossRef

Corsano, P., Musetti, A., Guidotti, L., & Capelli, F. (2017). Typically developing adolescents’ experience of growing up with a brother with an autism spectrum disorder. Journal of Intellectual and Developmental Disabilities, 42(2), 151–161.CrossRef

Costa, T. M., & da Silva Pereira, P. (2019). The child with autism spectrum disorder: The perceptions of siblings. Support for Learning, 34(2), 193–210.CrossRef

Cridland, E. K., Jones, S. C., Magee, C. A., & Caputi, P. (2014). Family-focused autism spectrum disorder research: A review of the utility of family systems approaches. Autism, 18(3), 213–222.PubMedCrossRef

Cridland, E. K., Jones, S. C., Stoyles, G., Caputi, P., & Magee, C. A. (2016). Families living with autism spectrum disorder: Roles and responsibilities of adolescent sisters. Focus on Autism & Other Developmental Disabilities, 31(3), 196–207.CrossRef

Dai, X., & Heckman, J. J. (2013). Older siblings’ contributions to young child’s cognitive skills. Economic Modelling, 35, 235–248.PubMedPubMedCentralCrossRef

Deckers, A., Muris, P., & Roelofs, J. (2017). Being on your own or feeling lonely? Loneliness and other social variables in youths with autism spectrum disorders. Child Psychiatry and Human Development, 48, 828–839.PubMedPubMedCentralCrossRef

Dempsey, A. G., Llorens, A., Brewton, C., Mulchandani, S., Robin, P., & Goin-Kochel, R. P. (2012). Emotional and behavioral adjustment in typically developing siblings of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(7), 1393–1402.PubMedCrossRef

Dumas, J. E., Neese, D. E., Prinz, R. J., & Blechman, E. A. (1996). Short term stability of aggression, peer rejection, and depressive symptoms in middle childhood. Journal of Abnormal Child Psychology, 24, 105–119.PubMedCrossRef

Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40, 1274–1284.PubMedCrossRef

El Nokali, N. E., Bachman, H. J., & Votruba-Drzal, E. (2010). Parent involvement and children’s academic and social development in elementary school. Child Development, 8, 988–1005. https://doi.org/10.1111/j.1467-8624.2010.01447.xCrossRef

Faul, F., Erdfelder, E., Buchner, A., & Lang, A.-G. (2009). Statistical power analyses using G*Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods, 41, 1149–1160.PubMedCrossRef

Faul, F., Erdfelder, E., Lang, A.-G., & Buchner, A. (2007). G*Power 3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behavior Research Methods, 39, 175–191.PubMedCrossRef

Galanaki, E. (2004). Are children able to distinguish among the concepts of aloneness, loneliness, and solitude? International Journal of Behavioral Development, 28, 435–443.CrossRef

Galanaki, E. P., & Kalantzi-Azizi, A. (1999). Loneliness and social dissatisfaction: Its relation with children’s self-efficacy for peer interaction. Child Study Journal, 29, 1–22.

Gau, S. S. F., Chou, M. C., Lee, J. C., Wong, C. C., Chou, W. J., Chen, M. F., Soong, W.-T., & Wu, Y.-Y. (2010). Behavioral problems and parenting style among Taiwanese children with autism and their siblings. Psychiatry and Clinical Neurosciences, 64, 70–78.PubMedCrossRef

Georgas, J. (2000). Psychodynamic of family in Greece: Similarities and differences with other countries. In A. Kalantzi-Azizi, & I. Besevengis (Eds.), Issues of training and sensitization of workers in Centers for Mental Health of children and adolescents (pp. 231–251). Greek Letters. (in Greek).

Gerner, J., & Lillard, D. (2006). The effect of birth order on early educational attainment. Cornell University. Working paper.

Giallo, R., & Gavidia-Payne, S. (2006). Child, parent and family factors as predictors of adjustment for siblings of children with a disability. Journal of Intellectual Disability Research, 50(12), 937–948.

Goedeke, S., Shepherd, D., Landon, J., & Taylor, S. (2019). How perceived support relates to autism child symptoms and care related stress in parents caring for a child with autism. Research in Autism Spectrum Disorders, 60, 36–47.CrossRef

Gorjy, R. S., Fielding, A., & Falkmer, M. (2017). “It’s better than it used to be”: Perspectives of adolescent siblings of children with an autism spectrum condition. Child and Family Social Work, 22, 1488–1496.CrossRef

Gregory, A., Hastings, R. P., & Kovshoff, H. (2020). Academic self-concept and sense of school belonging of adolescent siblings of autistic children. Research in Developmental Disabilities, 96, 103519. https://doi.org/10.1016/j.ridd.2019.103519CrossRefPubMed

Griffith, G., Hastings, R., & Petalas, M. (2014). Brief report: Fathers’ and mothers’ ratings of behavioral and emotional problems in siblings of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 44, 1230–1235.PubMedCrossRef

Hall, S. A., & Rossetti, Z. (2018). The roles of adult siblings in the lives of people with severe intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 31(3), 423–434.PubMedCrossRef

Harris, R. A., Qualter, P., & Robinson, S. J. (2013). Loneliness trajectories from middle childhood to early adolescence: Impact on perceived health and sleep disturbance. Journal of Adolescence, 36, 1295–1304.PubMedCrossRef

Harter, S. (1985). Manual for the social support scale for children. University of Denver.

Hastings, R. P. (2003). Behavioral adjustment of siblings of children with autism engaged in applied behavior analysis early intervention programs: The moderating role of social support. Journal of Autism and Developmental Disorders, 33(2), 141–150.PubMedCrossRef

Hastings, R. P. (2007). Longitudinal relationships between sibling behavioral adjustment and behavior problems of children with developmental disabilities. Journal of Autism and Developmental Disorders, 37, 1485–1492.PubMedCrossRef

Hastings, R. P., Kovshoff, H., Ward, N. J., Espinosa, F. D., Brown, T., & Remington, B. (2005). System analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Developmental Disorders, 35(5), 635–644.PubMedCrossRef

Heinrich, L. M., & Gullone, E. (2006). The clinical significance of loneliness: A literature review. Clinical Psychology Review, 26, 695–718.PubMedCrossRef

Howlin, P. (1988). Living with impairment: The effects on children of having an autistic sibling. Child Care, Health and Development, 14, 395–408.PubMedCrossRef

IBM Corp. Released. (2011). IBM SPSS statistics for Windows, version 20.0. IBM Corp.

Jones, S. (2020). Predictors of school functioning and problem behaviors in siblings of children with autism. Unpublished Thesis, The University of Texas at Arlington. https://rc.library.uta.edu/uta-ir/bitstream/handle/10106/29394/JONES-THESIS-2020.pdf?sequence=1&isAllowed=y

Jones, E. A., Fiani, T., Stewart, J. L., Neil, N., McHugh, S., & Fienup, D. M. (2020). Randomized controlled trial of a sibling support group: Mental health outcomes for siblings of children with autism. Autism, 24(6), 1468–1481.PubMedCrossRef

Jones, A. C., Schinka, K. C., van Dulmen, M. H. M., Bossarte, R. M., & Swahn, M. H. (2011). Changes in loneliness during middle childhood predict risk for adolescent suicidality indirectly through mental health problems. Journal of Clinical Child & Adolescent Psychology, 40, 818–824.CrossRef

Kagitcibasi, C. (2007). Family, self, and human development across cultures. Erlbaum.CrossRef

Kaminsky, L., & Dewey, D. (2002). Psychosocial adjustment in siblings of children with autism. The Journal of Child Psychology and Psychiatry, 43(2), 225–232.PubMedCrossRef

Karst, J. S., & van Hecke, A. V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15, 247–277.PubMedCrossRef

Kontopoulou, M., & Tzivinikou, S. (2004). Critical review of a “new” institution in the area of special education: The parents’ perspective. Review of Pedagogy, 38, 110–126. in Greek.

Koukouriki, E., & Soulis, S. G. (2020). Self-reported health related quality of life and anxiety among Greek school-age siblings of individuals with autism spectrum disorders (ASD) in relation to parental mental health and social support. Journal of Autism and Developmental Disorders, 50(8), 2913–2930.PubMedCrossRef

Koukouriki, E., Soulis, S.-G., & Andreoulakis, E. (2021). Depressive symptoms of autism spectrum disorder children’s siblings in Greece: Associations with parental anxiety and social support. Autism, 25(2), 529–544.PubMedCrossRef

Kovshoff, H., Cebula, K., Tsai, H.-W.J., & Hastings, R. P. (2017). Siblings of children with autism: The siblings embedded systems framework. Current Developmental Disorders Reports, 4(2), 37–45.PubMedPubMedCentralCrossRef

Kryzak, L. A., Cengher, M., Feeley, K. M., Fienup, D. M., & Jones, E. A. (2015). A community support program for children with autism and their typically developing siblings: Initial investigation. Journal of Intellectual Disabilities, 19(2), 159–177.PubMedCrossRef

Kupersmidt, J. B., & Patterson, C. J. (1991). Childhood peer rejection, aggression, withdrawal, and perceived competence as predictors of self-reported behavior problems in preadolescence. Journal of Abnormal Child Psychology, 19, 427–449.PubMedCrossRef

Kutner, M. H., Nachtsheim, C. J., & Neter, J. (2004). Applied linear regression models (4th ed.). McGraw-Hill Irwin.

Lasgaard, M., Nielsen, A., & Eriksen, M. E. (2010). Loneliness and social support in adolescent boys with autism spectrum disorders. Journal of Autism and Developmental Disorders, 40(2), 218–226.PubMedCrossRef

Locke, J., Ishijima, E. H., & Kasari, C. (2010). Loneliness, friendship quality and the social networks of adolescents with high-functioning autism in an inclusive school setting. Journal of Research in Special Educational Needs, 10(2), 74–81.CrossRef

Loukisas, T., & Papoudi, D. (2016). Mothers’ experiences of children in the autistic spectrum in Greece: Narratives of development, education and disability across their blogs. International Journal of Disability, Development and Education, 63(1), 64–78.CrossRef

Lowell, B., & Wetherell, M. A. (2016). The psychophysiological impact of childhood autism spectrum disorder on siblings. Research in Developmental Disabilities, 49, 226–234.PubMedCrossRef

Macks, R. J., & Reeve, R. E. (2007). The adjustment of non-disabled siblings of children with autism. Journal of Autism and Developmental Disorders, 37(6), 1060–1067.PubMedCrossRef

Marangudakis, M. (2019). The Greek self in social analysis. In The Greek crisis and its cultural origins. Cultural sociology. Palgrave Macmillan.

Margalit, M. (2010). Lonely children and adolescents. Springer.CrossRef

Marsack, C. N., & Samuel, P. S. (2017). Mediating effects of social support on quality of life for parents of adults with autism. Journal of Autism and Developmental Disorders, 47, 2378–2389.PubMedCrossRef

Mascha, K., & Boucher, J. (2006). Preliminary investigation of a qualitative method of examining siblings’ experiences of living with a child with ASD. British Journal of Developmental Disabilities, 52, 19–28.CrossRef

Mates, T. E. (1990). Siblings of autistic children: Their adjustment and performance at home and in school. Journal of Autism and Developmental Disorders, 20, 545–553.PubMedCrossRef

McAlister, A. R., & Peterson, C. C. (2013). Siblings, theory of mind, and executive functioning in children aged 3–6 years: New longitudinal evidence. Child Development, 84(4), 1442–1458.PubMedCrossRef

McGraw-Hill, I., & Sheather, S. (2009). A modern approach to regression with R. Springer.

Meyer, D. J., & Vadasy, P. F. (1994). Sibshop workshops for siblings of children with special needs. Paul H. Brookes.

Meyer, K., Ingersoll, B., & Hambrick, D. (2011). Factors influencing adjustment in siblings of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 5, 1413–1420.CrossRef

Minuchin, P. (1985). Families and individual development: Provocations from the field of family therapy. Child Development, 56, 289–302.PubMedCrossRef

Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2006). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187.

Ntre, V., Papanikolaou, K., Triantafyllou, K., Giannakopoulos, G., Kokkosi, M., & Kolaitis, G. (2018). Psychosocial and financial needs, burdens and support, and major concerns among Greek families with children with autism spectrum disorder (ASD). International Journal of Caring Sciences, 11(2), 985–995.

Nuttall, A. K., Coberly, B., & Diesel, S. J. (2018). Childhood caregiving roles, perceptions of benefits, and future caregiving intentions among typically developing adult siblings of individuals with autism spectrum disorder. Journal of Autism and Developmental Disorders, 4, 1199–1209.CrossRef

Orsmond, G. I., & Seltzer, M. M. (2007). Siblings of individuals with autism spectrum disorders across the life course. Mental Retardation and Developmental Disabilities Research Reviews, 13(4), 313–320.

Orsmond, G. I., & Seltzer, M. M. (2009). Adolescent siblings of individuals with an autism spectrum disorder: Testing a diathesis-stress model of sibling well-being. Journal of Autism and Developmental Disorders, 39(7), 1053–1065.PubMedPubMedCentralCrossRef

Parker, J. G., & Asher, S. R. (1993). Friendship and friendship quality in middle childhood: Links with peer group acceptance and feelings of loneliness and social dissatisfaction. Developmental Psychology, 29, 611–621.CrossRef

Peplau, L. A., & Perlman, D. (Eds.). (1982). Loneliness: A sourcebook of current theory, research, and therapy. Wiley.

Pepperell, T. A., Paynter, J., & Gilmore, L. (2018). Social support and coping strategies of parents raising a child with autism spectrum disorder. Early Child Development and Care, 188(10), 1392–1404.CrossRef

Perlman, D., & Peplau, L. A. (1981). Toward a social psychology of loneliness. In R. Duck & R. Gihour (Eds.), Personal relationships in disorder (pp. 31–56). Academic Press.

Petalas, M. A., Hastings, R. P., Nash, S., Lloyd, T., & Dowey, A. (2009). Emotional and behavioural adjustment in siblings of children with intellectual disability with and without autism. Autism, 13(5), 471–483.PubMedCrossRef

Pilowsky, T., Yirmina, N., Doppelt, S. O., Gross-Tsur, V., & Dhalev, R. S. (2004). Social and emotional adjustment of siblings of children with autism. Journal of Child Psychology and Psychiatry, 45, 855–865.

Price, J. (2008). Parent–child quality time: Does birth order matter? Journal of Human Resources, 43, 240–265.CrossRef

Prime, H., Pauker, S., Plamondon, A., Perlman, M., & Jenkins, J. (2014). Sibship size, sibling cognitive sensitivity, and children’s receptive vocabulary. Pediatrics, 133(2), 394–401.CrossRef

Prinstein, M. J., & Aikins, J. W. (2004). Cognitive moderators of the longitudinal association between peer rejection and adolescent depressive symptoms. Journal of Abnormal Child Psychology, 32, 147–158.PubMedPubMedCentralCrossRef

Qualter, P., Brown, S. L., Munn, P., & Rotenberg, K. J. (2010). Childhood loneliness as a predictor of adolescent depressive symptoms: An 8-year longitudinal study. European Child & Adolescent Psychiatry, 19, 493–501.CrossRef

Qualter, P., Brown, S. L., Rotenberg, K. J., Vanhalst, J., Harris, R. A., Goossens, L., Bangee, M., & Munn, P. (2013). Trajectories of loneliness during childhood and adolescence: Predictors and health outcomes. Journal of Adolescence, 36, 1283–1293.PubMedCrossRef

Quintero, N., & McIntyre, L. L. (2010). Sibling adjustment and maternal well-being: An examination of families with and without an autism spectrum disorder. Focus on Autism and Other Developmental Disabilities, 25(1), 37–46.PubMedPubMedCentralCrossRef

Rao, P. A., & Beidel, D. C. (2009). The impact of children with high functioning autism on parental stress, sibling adjustment, and family functioning. Behavior Modification, 33(4), 437–451.PubMedCrossRef

Rodrigue, J. R., Geffken, G. R., & Morgan, S. B. (1993). Perceived competence and behavioral adjustment of siblings of children with autism. Journal of Autism and Developmental Disorders, 23(4), 665–674.PubMedCrossRef

Rogers, M. L., & Hogan, D. P. (2003). Family life with children with disabilities: The key role of rehabilitation. Journal of Marriage and the Family, 65, 818.CrossRef

Rokach, A. (2012). Loneliness updated: Recent research on loneliness and how it affects our lives. Routledge.

Ross, P., & Cuskelly, M. (2006). Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder. Journal of Intellectual and Developmental Disability, 31(2), 77–86.PubMedCrossRef

Schinka, K. C., van Dulmen, M. H., Mata, A. D., Bossarte, R., & Swahn, M. (2013). Psychosocial predictors and outcomes of loneliness trajectories from childhood to early adolescence. Journal of Adolescence, 36, 1251–1260.PubMedCrossRef

Shivers, C. M., Jackson, J. B., & McGregor, C. M. (2019a). Functioning among typically developing siblings of individuals with autism spectrum disorder: A meta-analysis. Clinical Child and Family Psychology Review, 22(2), 172–196.PubMedCrossRef

Shivers, C., McGregor, C., & Hough, A. (2019b). Self-reported stress among adolescent siblings of individuals with autism spectrum disorder and Down syndrome. Autism, 23(1), 112–122.PubMedCrossRef

Shojaee, S., Alamdarloo, G. H., & Borujeni, F. N. (2020). Adjustment difficulties of siblings of children with disabilities and typically developing children. International Journal of Inclusive Education, 24(4), 414–426.CrossRef

Smith, L. E., Greenberg, J. S., & Seltzer, M. M. (2012). Social support and well-being at mid-life among mothers of adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(9), 1818–1826.PubMedPubMedCentralCrossRef

Stoneman, Z. (2005). Siblings of children with disabilities: Research themes. Mental Retardation, 43, 339–350.PubMed

Storch, E. A., Larson, M. J., Ehrenreich-May, J., Arnold, E. B., Jones, A. M., Renno, P., Fujii, C., Lewin, A. B., Mutch, P. J., Murphy, K. T., & Wood, J. J. (2012). Peer victimization in youth with autism spectrum disorders and co-occurring anxiety: Relations with psychopathology and loneliness. Journal of Developmental and Physical Disabilities, 24, 575–590.CrossRef

Theofilou, P. (2014). Translation and cultural adaptation of the Multidimensional Scale of Perceived Social Support for Greece. Health Psychology Research, 2, 45–47.

Tomeny, T. S., Barry, T. D., & Bader, S. H. (2012). Are typically developing siblings of children with autism spectrum disorder at risk for behavioral, emotional, and social maladjustment? Research in Autism Spectrum Disorders, 6, 508–518.CrossRef

Tomeny, T. S., Barry, T. D., & Bader, S. H. (2014). Birth order rank as a moderator of the relation between behavior problems among children with an autism spectrum disorder and their siblings. Autism, 18(2), 199–202.PubMedCrossRef

Tomeny, T. S., Barry, T. D., & Fair, E. C. (2017). Parentification of adult siblings of individuals with autism spectrum disorder: Distress, sibling relationship attitudes, and the role of social support. Journal of Intellectual and Developmental Disability, 42(4), 320–331. https://doi.org/10.3109/13668250.2016.1248376CrossRef

Tomeny, T. S., Rankin, J. A., Baker, T. D., Eldred, S. W., & Barry, T. D. (2019). Discrepancy in perceived social support among typically developing siblings of youth with autism spectrum disorder. Autism, 23(3), 594–606.PubMedCrossRef

Tsai, H.-W.J., Cebula, K., Liang, S. H., & Fletcher-Watson, S. (2018). Siblings’ experience of growing up with children with autism in Taiwan and the United Kingdom. Research in Developmental Disabilities, 83, 206–216.PubMedCrossRef

Tsibidaki, A., & Tsamparli, A. (2007). Support networks for the Greek family with preschool or school age disabled children. Electronic Journal of Research in Educational Psychology, 5(2), 283–306.

Veroni, E. (2019). The social stigma and the challenges of raising a child with Autism Spectrum Disorders (ASD) in Greece. Exchanges: The Interdisciplinary Research Journal, 6(2), 1–29.

Verte’, S., Roeyers, H., & Buysse, A. (2003). Behavioural problems, social competence and self-concept in siblings of children with autism. Child: Care, Health and Development, 29, 193–205.CrossRef

Vlachou, A., & Mavropalias, T. (2008). Education and school inclusion of children with disabilities: The parents’ perspective. In H. Phtiaka (Ed.), Drop by for a coffee. School–home relationships at the edge of diversity (pp. 87–122). Taxideftis (in Greek).

Walton, K. M., & Ingersoll, B. R. (2015). Psychosocial adjustment and sibling relationships in siblings of children with autism spectrum disorder: Risk and protective factors. Journal of Autism and Developmental Disorders, 45(9), 2764–2778.PubMedCrossRef

Watson, L., Hanna, P., & Jones, C. J. (2021). A systematic review of the experience of being a sibling of a child with an autism spectrum disorder. Clinical Child Psychology and Psychiatry. https://doi.org/10.1177/13591045211007921CrossRefPubMedPubMedCentral

Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115–130.PubMedCrossRef

Weiss, J. A., Robinson, S., Fung, S., Tint, A., Chalmers, P., & Lunsky, Y. (2013). Family hardiness, social support, and self-efficacy in mothers of individuals with autism spectrum disorders. Research in Autism Spectrum Disorders, 7, 1310–1317.CrossRef

Weng, Q., Gao, X., He, H., & Li, S. (2019). Family size, birth order and educational attainment: Evidence from China. China Economic Review, 57, 101346.CrossRef

White, S. W., & Roberson-Nay, R. (2009). Anxiety, social deficits, and loneliness in youth with autism spectrum disorders. Journal of Autism and Developmental Disorders, 39(7), 1006–1013.PubMedCrossRef

Whitehouse, A. J. O., Durkin, K., & Jaquet, E. (2009). Friendship, loneliness and depression in adolescents with Asperger’s syndrome. Journal of Adolescence, 32(2), 309–322.PubMedCrossRef

Wigston, C., Falkmer, M., Vaz, S., Parsons, R., & Falkmer, T. (2017). Participation in extracurricular activities for children with and without siblings with autism spectrum disorder. Developmental Neurorehabilitation, 20(1), 25–39.PubMed

Yorke, I., White, P., Weston, A., Rafla, M., Charman, T., & Simonoff, E. (2018). The association between emotional and behavioral problems in children with autism spectrum disorder and psychological distress in their parents: A systematic review and meta-analysis. Journal of Autism and Developmental Disorders, 48(10), 3393–3415.PubMedPubMedCentralCrossRef

Zeedyk, S. M., Cohen, S. R., Eisenhower, A., & Blacher, J. (2016). Perceived social competence and loneliness among young children with ASD: Child, parent and teacher reports. Journal of Autism and Developmental Disorders, 46, 436–449.PubMedCrossRef

Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment, 52, 30–41.CrossRef

Zoniou-Sideri, A. (2011). The necessity of inclusion: Current questions and perspectives. In A. Zoniou-Sideri (Ed.), Current inclusive perspectives (pp. 29–53). Pedio. [in Greek].

Zoniou-Sideri, A., Deropoulou-Derou, E., Karagianni, P., & Spandagou, I. (2006). Inclusive discourse in Greece: Strong voices, weak policies. International Journal of Inclusive Education, 10(2–3), 279–291.CrossRef

Titel: Feelings of Loneliness and Social Dissatisfaction in Siblings of Children with Autism Spectrum Disorders: The Role of Birth Order and Perceived Social Support
Auteurs: Evangelia Koukouriki
Evangelini Athanasopoulou
Elias Andreoulakis
Publicatiedatum: 05-11-2021
Uitgeverij: Springer US
Gepubliceerd in: Journal of Autism and Developmental Disorders / Uitgave 11/2022
Print ISSN: 0162-3257
Elektronisch ISSN: 1573-3432
DOI: https://doi.org/10.1007/s10803-021-05308-x

Andere artikelen Uitgave 11/2022

Development and Validation of the Assessment of Bullying Experiences Questionnaire for Neurodivergent Youth

Original Paper

Altered Metabolic Characteristics in Plasma of Young Boys with Autism Spectrum Disorder

Original Paper

Serum Vitamin D, Folate and Fatty Acid Levels in Children with Autism Spectrum Disorders: A Systematic Review and Meta-Analysis

Open Access
Original Paper

A Meta-Analysis of Autism and Clinical High-Risk for Psychosis is Too Premature. Comment on: Vaquerizo-Serrano, Salazar de Pablo, Singh & Santosh (2021)

Letter to the Editor

Antipsychotic Medication and Risk of Incident Seizure in People with Autism Spectrum Disorder: Analyses with Cohort and Within Individual Study Designs

Open Access
Original Paper

Attachment Style and Mental Health Profiles of Parents Caring for a Child with Autism: Suicidal Ideation, Depression and Anxiety

Original Paper

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

Registreer

Login

Feelings of Loneliness and Social Dissatisfaction in Siblings of Children with Autism Spectrum Disorders: The Role of Birth Order and Perceived Social Support

Abstract

Andere artikelen Uitgave 11/2022

Development and Validation of the Assessment of Bullying Experiences Questionnaire for Neurodivergent Youth

Altered Metabolic Characteristics in Plasma of Young Boys with Autism Spectrum Disorder

Serum Vitamin D, Folate and Fatty Acid Levels in Children with Autism Spectrum Disorders: A Systematic Review and Meta-Analysis

A Meta-Analysis of Autism and Clinical High-Risk for Psychosis is Too Premature. Comment on: Vaquerizo-Serrano, Salazar de Pablo, Singh & Santosh (2021)

Antipsychotic Medication and Risk of Incident Seizure in People with Autism Spectrum Disorder: Analyses with Cohort and Within Individual Study Designs

Attachment Style and Mental Health Profiles of Parents Caring for a Child with Autism: Suicidal Ideation, Depression and Anxiety

Bohn Stafleu van Loghum

Welkom bij THIM Hogeschool voor Fysiotherapie & Bohn Stafleu van Loghum

Registreer

Login

Deel dit onderdeel of sectie (kopieer de link)

Abstract

Log in om toegang te krijgen

Development and Validation of the Assessment of Bullying Experiences Questionnaire for Neurodivergent Youth

Altered Metabolic Characteristics in Plasma of Young Boys with Autism Spectrum Disorder

Serum Vitamin D, Folate and Fatty Acid Levels in Children with Autism Spectrum Disorders: A Systematic Review and Meta-Analysis

A Meta-Analysis of Autism and Clinical High-Risk for Psychosis is Too Premature. Comment on: Vaquerizo-Serrano, Salazar de Pablo, Singh & Santosh (2021)

Antipsychotic Medication and Risk of Incident Seizure in People with Autism Spectrum Disorder: Analyses with Cohort and Within Individual Study Designs

Attachment Style and Mental Health Profiles of Parents Caring for a Child with Autism: Suicidal Ideation, Depression and Anxiety